PBC Foundation (@pbcfoundation) 's Twitter Profile
PBC Foundation

@pbcfoundation

ID: 68720265

calendar_today25-08-2009 15:24:58

5,5K Tweet

2,2K Followers

2,2K Following

PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Finally please let me introduce Anna Lay, London Marathon runner number ten. Please show your support ow.ly/K4f550Vifex Good Luck

Finally please let me introduce Anna Lay, London Marathon runner number ten.

Please show your support

ow.ly/K4f550Vifex

Good Luck
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

March is autoimmune awareness month. Primary Biliary Cholangitis (PBC) is a rare autoimmune condition in which the body attacks the cells lining the bile ducts within the liver as if they are foreign to the body itself, i.e., attacking its own cells. #PBC #AutoImmune #Liver

March is autoimmune awareness month.

Primary Biliary Cholangitis (PBC) is a rare autoimmune condition in which the body attacks the cells lining  the bile ducts within the liver as if they are foreign to the body itself, i.e., attacking its own cells.

#PBC #AutoImmune #Liver
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

The International PBC Summit 2025 starts in 1 week! The Summit is a unique event taking place over 4 days during which stakeholders across PBC, including PAGs, HCPs and industry partners, give everything we have to make the PBC journey easier, smoother and with better results.

The International PBC Summit 2025 starts in 1 week!

The Summit is a unique event taking place over 4 days during which stakeholders across PBC, including PAGs, HCPs and industry partners, give everything we have to make the PBC journey easier, smoother and with better results.
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

On the 27th April, Stephanie Gray will be taking on the Glasgow Kiltwalk to support the PBC Foundation. Please read Stephanie's inspirational story below and donate. justgiving.com/page/stephanie… Thank you

On the 27th April, Stephanie Gray will be taking on the Glasgow Kiltwalk to support the PBC Foundation.
Please read Stephanie's inspirational story below and donate.

justgiving.com/page/stephanie… 

Thank you
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

London Marathon 2025 With less than two weeks to go. Our amazing 10 runners have worked so hard and are all looking forward to the big day. Please check out all their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…

London Marathon 2025 
With less than two weeks to go. Our amazing 10 runners have worked so hard and are all looking forward to the big day.
Please check out all their stories and support on the link below.
pbcfoundation.org.uk/get-involved/f…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

One week till the London Marathon 2025! Our outstanding 10 runners have gone above and beyond to train and raise funds. Please check out all their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…

One week till the London Marathon 2025!
Our outstanding 10 runners have gone above and beyond to train and raise funds.
Please check out all their stories and support on the link below.
pbcfoundation.org.uk/get-involved/f…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Just a few days till the London Marathon 2025! Our outstanding 10 runners have gone above and beyond to train and raise funds. Please check out all their stories and support on the link below. Good Luck!! pbcfoundation.org.uk/get-involved/f…

Just a few days till the London Marathon 2025!
Our outstanding 10 runners have gone above and beyond to train and raise funds.
Please check out all their stories and support on the link below.
Good Luck!!
pbcfoundation.org.uk/get-involved/f…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Glasgow Kilt walk Good luck to Stephanie Gray who will be taking on the Glasgow Kiltwalk to support the PBC Foundation. Please read Stephanie's inspirational story below and donate. justgiving.com/page/stephanie… Thank you

Glasgow Kilt walk 
Good luck to Stephanie Gray who will be taking on the Glasgow Kiltwalk to support the PBC Foundation.
Please read Stephanie's inspirational story below and donate.

justgiving.com/page/stephanie… 

Thank you
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Todays Q&A with Prof David Jones and Robert is now available on our YouTube channel and can be viewed here: youtube.com/watch?v=3sM1kH… #PBC #PBCQuestions #PBCAnswers #PrimaryBiliaryCholangitis #pbctv

Todays Q&A with Prof David Jones and Robert is now available on our YouTube channel and can be viewed here: youtube.com/watch?v=3sM1kH…
#PBC #PBCQuestions #PBCAnswers #PrimaryBiliaryCholangitis #pbctv
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Glasgow Kilt walk tomorrow! Good luck to Stephanie Gray who will be taking on the Kilt walk to support the PBC Foundation. Please read Stephanie's inspirational story below and donate. justgiving.com/page/stephanie… Thank you

Glasgow Kilt walk tomorrow!
Good luck to Stephanie Gray who will be taking on the Kilt walk to support the PBC Foundation.
Please read Stephanie's inspirational story below and donate.

justgiving.com/page/stephanie… 

Thank you
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Today is the day - London Marathon 2025! Good luck to our amazing 10 runners who have gone above and beyond to train and raise funds. Have a great day and enjoy the run. Please check out all their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…

Today is the day - London Marathon 2025!
Good luck to our amazing 10 runners who have gone above and beyond to train and raise funds.
Have a great day and enjoy the run.
Please check out all their stories and support on the link below.

pbcfoundation.org.uk/get-involved/f…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Congratulations to all our London Marathon runners. Outstanding performance- we hope you all had a great day. There will be some sore legs today. Photos to follow. Still time to read their stories and support on the link below. pbcfoundation.org.uk/get-involved/f…

Congratulations to all our London Marathon runners.
Outstanding performance-  we hope you all had a great day.
There will be some sore legs today.
Photos to follow.
Still time to read their stories and support on the link below.

pbcfoundation.org.uk/get-involved/f…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis Rebecca West

We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. 

We encourage you to meet Rebecca at EASL next week or visit our booth.  

#PBCFoundation #PBC #PrimaryBiliaryCholangitis <a href="/electricdreamz/">Rebecca West</a>
EASL Education (@easledu) 's Twitter Profile Photo

Ana Lleo Catherine Frenette Phil Troke Lindsey Kennedy Ahmed Elsharkawy EASLnews Verena Keitel-Anselmino Palak Trivedi PBC Foundation Holistic care for people with #PBC starts with listening. 💬 At a pre-congress event on consensus endpoints in PBC, patients, clinicians, regulators & industry sat at the same table, sharing needs, emotions & goals. Learn more: easlcongress.eu/consensus-conf… EASLnews #EASLcongress

<a href="/analleo/">Ana Lleo</a> <a href="/CarrieFrenette/">Catherine Frenette</a> <a href="/PhilTroke/">Phil Troke</a> <a href="/LiverNotFighter/">Lindsey Kennedy</a> <a href="/aelsharkawy75/">Ahmed Elsharkawy</a> <a href="/EASLnews/">EASLnews</a> <a href="/KeitelVerena/">Verena Keitel-Anselmino</a> <a href="/CholestasisDoc/">Palak Trivedi</a> <a href="/PBCFoundation/">PBC Foundation</a> Holistic care for people with #PBC starts with listening. 💬
At a pre-congress event on consensus endpoints in PBC, patients, clinicians, regulators &amp; industry sat at the same table, sharing needs, emotions &amp; goals.

Learn more: easlcongress.eu/consensus-conf…

<a href="/EASLnews/">EASLnews</a> 
#EASLcongress
EASL Education (@easledu) 's Twitter Profile Photo

EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Fatigue in #PBC is not “just a symptom.” 👉Up to 30% of patients with severe fatigue are in disability schemes. 👉It affects daily function & quality of life. We must rethink how we measure & prioritise fatigue in trials and care. #EASLCongress #LiverX

<a href="/EASLnews/">EASLnews</a> <a href="/analleo/">Ana Lleo</a> <a href="/PhilTroke/">Phil Troke</a> <a href="/PBCFoundation/">PBC Foundation</a> <a href="/PBCers/">PBCers Organization</a> Fatigue in #PBC is not “just a symptom.”
👉Up to 30% of patients with severe fatigue are in disability schemes.
👉It affects daily function &amp; quality of life.

We must rethink how we measure &amp; prioritise fatigue in trials and care.
#EASLCongress #LiverX
EASL Education (@easledu) 's Twitter Profile Photo

EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Catherine Frenette The more we talk about symptoms, the more we ask the right questions: ❓Do you have an itch? ❓Are you fatigued? ❓Can you manage daily life? You won’t make it worse by asking, you may in fact uncover something the patient wasn’t comfortable sharing. EASLnews #EASLCongress

<a href="/EASLnews/">EASLnews</a> <a href="/analleo/">Ana Lleo</a> <a href="/PhilTroke/">Phil Troke</a> <a href="/PBCFoundation/">PBC Foundation</a> <a href="/PBCers/">PBCers Organization</a> <a href="/CarrieFrenette/">Catherine Frenette</a> The more we talk about symptoms, the more we ask the right questions:
❓Do you have an itch?
❓Are you fatigued?
❓Can you manage daily life?
You won’t make it worse by asking, you may in fact uncover something the patient wasn’t comfortable sharing.

<a href="/EASLnews/">EASLnews</a> 
#EASLCongress
EASL Education (@easledu) 's Twitter Profile Photo

EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Catherine Frenette Lindsey Kennedy Jesus Bañales Palak Trivedi 🌍 Challenges in PBC care differ across the world. We must understand quality of life in diverse contexts. There’s no perfect solution but by bringing together each perspective, we move closer to meaningful, inclusive care. EASLnews #EASLCongress #PBC #PatientVoice #LiverX

<a href="/EASLnews/">EASLnews</a> <a href="/analleo/">Ana Lleo</a> <a href="/PhilTroke/">Phil Troke</a> <a href="/PBCFoundation/">PBC Foundation</a> <a href="/PBCers/">PBCers Organization</a> <a href="/CarrieFrenette/">Catherine Frenette</a> <a href="/LiverNotFighter/">Lindsey Kennedy</a> <a href="/JesusMBanales/">Jesus Bañales</a> <a href="/CholestasisDoc/">Palak Trivedi</a> 🌍 Challenges in PBC care differ across the world.
We must understand quality of life in diverse contexts.
There’s no perfect solution but by bringing together each perspective, we move closer to meaningful, inclusive care.
<a href="/EASLnews/">EASLnews</a> 
#EASLCongress #PBC #PatientVoice #LiverX
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Jamie, Mairi, Girvan, Taylor, A D, John and Jay will be taking on the Edinburgh Half Marathon on Sunday the 25th of May. Good Luck Please read their story and support on the page below; justgiving.com/fundraising/Ma…

Jamie, Mairi, Girvan, Taylor, A D, John and Jay will be taking on the Edinburgh Half Marathon on Sunday the 25th of May. 
Good Luck
Please read their story and support on the page below;

justgiving.com/fundraising/Ma…
PBC Foundation (@pbcfoundation) 's Twitter Profile Photo

Good Luck to Jamie, Mairi, Girvan, Taylor, A D, John and Jay who are running the Edinburgh Half Marathon tomorrow. Please read their story and support on the page below; justgiving.com/fundraising/Ma…

Good Luck to Jamie, Mairi, Girvan, Taylor, A D, John and Jay who are running the  Edinburgh Half Marathon tomorrow. 

Please read their story and support on the page below;

justgiving.com/fundraising/Ma…