
PBC Foundation
@pbcfoundation
ID: 68720265
25-08-2009 15:24:58
5,5K Tweet
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We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis Rebecca West


Ana Lleo Catherine Frenette Phil Troke Lindsey Kennedy Ahmed Elsharkawy EASLnews Verena Keitel-Anselmino Palak Trivedi PBC Foundation Holistic care for people with #PBC starts with listening. 💬 At a pre-congress event on consensus endpoints in PBC, patients, clinicians, regulators & industry sat at the same table, sharing needs, emotions & goals. Learn more: easlcongress.eu/consensus-conf… EASLnews #EASLcongress


EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Fatigue in #PBC is not “just a symptom.” 👉Up to 30% of patients with severe fatigue are in disability schemes. 👉It affects daily function & quality of life. We must rethink how we measure & prioritise fatigue in trials and care. #EASLCongress #LiverX


EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Catherine Frenette The more we talk about symptoms, the more we ask the right questions: ❓Do you have an itch? ❓Are you fatigued? ❓Can you manage daily life? You won’t make it worse by asking, you may in fact uncover something the patient wasn’t comfortable sharing. EASLnews #EASLCongress


EASLnews Ana Lleo Phil Troke PBC Foundation PBCers Organization Catherine Frenette Lindsey Kennedy Jesus Bañales Palak Trivedi 🌍 Challenges in PBC care differ across the world. We must understand quality of life in diverse contexts. There’s no perfect solution but by bringing together each perspective, we move closer to meaningful, inclusive care. EASLnews #EASLCongress #PBC #PatientVoice #LiverX



