PBCers Organization (@pbcers) 's Twitter Profile
PBCers Organization

@pbcers

Providing education and support for those suffering from Primary Biliary Cholangitis and other autoimmune liver diseases.

ID: 2479909278

linkhttp://pbcers.org calendar_today06-05-2014 14:39:00

3,3K Tweet

1,1K Followers

199 Following

Romelia Barba MD (@romeliabarba) 's Twitter Profile Photo

Alan Bonder at #TLM24: addressing the Itch. #PBC ✅If there is itch> get a detailed view of the itching ✅Sx-based therapy is important to improve QoL and should be a priority when caring PBC patients. ✅Cholestatic sx aren’t longitudinal, can be up/down, so ask all the time!

<a href="/BonderAlan/">Alan Bonder</a> at #TLM24: addressing the Itch. #PBC 
âś…If there is itch&gt; get a detailed view of the itching 
âś…Sx-based therapy is important to improve QoL and should be a priority when caring PBC patients.
✅Cholestatic sx aren’t longitudinal, can be up/down, so ask all the time!
Mirum Pharmaceuticals (@mirumpharma) 's Twitter Profile Photo

Thanks to all who attended our presentations at #TLM2024 throughout the weekend. We had a great time catching up with many faces old and new, and learning about the exciting advancements in liver disease. If you would like to learn more about the data presented, visit our

Thanks to all who attended our presentations at #TLM2024 throughout the weekend. We had a great time catching up with many faces old and new, and learning about the exciting advancements in liver disease. If you would like to learn more about the data presented, visit our
PSC Support (@pscsupportuk) 's Twitter Profile Photo

The #RareDiseaseDay campaign launches today, kicking off 100 days of raising awareness for conditions like PSC, facing huge unmet needs. By uniting globally with researchers, policymakers, and healthcare professionals, we can improve care and advance research đź’™ #LetsBeatPSC

The #RareDiseaseDay campaign launches today, kicking off 100 days of raising awareness for conditions like PSC, facing huge unmet needs. By uniting globally with researchers, policymakers, and healthcare professionals, we can improve care and advance research đź’™ #LetsBeatPSC
Intercept Pharma (@interceptpharma) 's Twitter Profile Photo

We had a great time connecting with the #liver community at AASLD' The Liver Meeting 2024 in San Diego, CA. Thank you for joining us! #TLM24

We had a great time connecting with the #liver community at <a href="/AASLDtweets/">AASLD</a>' The Liver Meeting 2024 in San Diego, CA. Thank you for joining us! #TLM24
Cour Pharmaceutical Development Company, Inc. (@courpharma) 's Twitter Profile Photo

Our President and CEO, Dannielle Appelhans, recently spoke to @MattPillar of BioProcess Online. Learn more about our approach to treating #AutoimmuneDiseases with therapies developed using our #nanoparticle platform for antigen-specific immune tolerance: bit.ly/4ir9GQK

Cirrhosis Care Alberta (@cirrhosiscareab) 's Twitter Profile Photo

Did you know?! You can prescribe patient-friendly educational resources about cirrhosis (text and video) directly to your patient's inbox! You can also print these resources to keep on hand anytime: cirrhosiscare.ca/patient-referr…… #LiverTwitter

Did you know?!
You can prescribe patient-friendly educational resources about cirrhosis (text and video) directly to your patient's inbox! You can also print these resources to keep on hand anytime: cirrhosiscare.ca/patient-referr……

#LiverTwitter
Cirrhosis Care Alberta (@cirrhosiscareab) 's Twitter Profile Photo

🩺Direct your patients and caregivers to CirrhosisCare.ca for a comprehensive set of modules on cirrhosis. It’s a valuable resource for learning about symptoms, treatments, and managing their health. cirrhosiscare.ca/patients/ #LiverTwitter

🩺Direct your patients and caregivers to CirrhosisCare.ca for a comprehensive set of modules on cirrhosis. It’s a valuable resource for learning about symptoms, treatments, and managing their health.

cirrhosiscare.ca/patients/

#LiverTwitter
Alessio Gerussi (@alessiogerussi) 's Twitter Profile Photo

🌟 What’s it about? Biliary abnormalities in autoimmune hepatitis (AIH) and interface hepatitis in primary biliary cholangitis (PBC) can often be misinterpreted, leading to therapeutic mistakes that negatively impact patients.

National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

Your Rare Experience Matters! NORD launched the new #LivingRareStudy to collect insights from YOUR real-life experience of living with a #RareDisease. Are you or a loved one living with a rare disease? Learn more and share your story! LivingRareStudy.org

Your Rare Experience Matters! NORD launched the new #LivingRareStudy to collect insights from YOUR real-life experience of living with a #RareDisease.

Are you or a loved one living with a rare disease? Learn more and share your story! LivingRareStudy.org
EASL Education (@easledu) 's Twitter Profile Photo

🌟 New Release: The EASL Clinical Practice Guidelines for the Management of Patients with Decompensated Cirrhosis is now available on the EASL Guidelines App. Download today and access expert guidance at your fingertips! 📲easl.eu/news/launching… @EASLNews @Jhepatology

Gastroenterology (@aga_gastro) 's Twitter Profile Photo

In the largest biomarker validation study performed in cirrhosis, the GALAD score is better than alpha-fetoprotein (AFP) at detecting early stage HCC. 🔗ow.ly/i8ZA50UFpPt 🖋️ Elliot Tapper Marina Serper, MD, MS Juan Pablo (JP) Arab, MD 

In the largest biomarker validation study performed in cirrhosis, the GALAD score is better than alpha-fetoprotein (AFP) at detecting early stage HCC. 

đź”—ow.ly/i8ZA50UFpPt
 🖋️ <a href="/ebtapper/">Elliot Tapper</a> <a href="/serperm/">Marina Serper, MD, MS</a> <a href="/juanpabloarab/">Juan Pablo (JP) Arab, MD </a>
BCMHouston (@bcmhouston) 's Twitter Profile Photo

As temperatures dip, the most obvious signs of dehydration often disappear. Dr. Saundra Nguyen helps understand the importance of staying hydrated in cold weather and how to identify when it’s time to drink more water. bit.ly/3BTclij #hydration #ColdWeather

Mayo Clinic Transplant (@mayotransplant) 's Twitter Profile Photo

In 2024, our dedicated team at Mayo Clinic completed over 2,000 solid #organtransplants. Patients came to us from 47 states, and they are at the heart of everything we do. Thank you to our amazing team and the remarkable patients who inspire us every day. #DonateLife

In 2024, our dedicated team at <a href="/MayoClinic/">Mayo Clinic</a> completed over 2,000 solid #organtransplants. Patients came to us from 47 states, and they are at the heart of everything we do. Thank you to our amazing team and the remarkable patients who inspire us every day. #DonateLife
PBCers Organization (@pbcers) 's Twitter Profile Photo

With the approval of new 2nd line therapies, clinicians / patients will be discussing adding another treatment and which one. Great video discussion on this. While aimed at clinicians, patients will benefit also pharmacytimes.com/view/treatment…

National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

As #RareDiseaseDay approaches, consider joining NORD on Feb. 25 at the The Boston Globe’s inaugural Rare Disease Summit. NORD CEO Pamela Gavin is among the featured speakers who will discuss driving change for the #RareDisease community. It's free to attend virtually, and we’re

As #RareDiseaseDay approaches, consider joining NORD on Feb. 25 at the <a href="/BostonGlobe/">The Boston Globe</a>’s inaugural Rare Disease Summit. NORD CEO Pamela Gavin is among the featured speakers who will discuss driving change for the #RareDisease community. It's free to attend virtually, and we’re
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

NORD is providing emergency aid for #RareDisease patients affected by the #LAfires—including short-term lodging, car rental, limited home repairs, and more. Please spread the word to those you know in #LosAngeles! To request assistance, contact [email protected]

NORD is providing emergency aid for #RareDisease patients affected by the #LAfires—including short-term lodging, car rental, limited home repairs, and more. Please spread the word to those you know in #LosAngeles!

To request assistance, contact NaturalDisaster@rarediseases.org
EASL Education (@easledu) 's Twitter Profile Photo

Linerixibat, presented today at #EASLCongress, shows strong potential to become the first global therapy for pruritus in #PBC! đź§Ş Phase 3 GLISTEN trial showed rapid, meaningful itch relief & better sleep. âś… Well-tolerated, with expected AEs (diarrhoea, abdominal pain) A

Linerixibat, presented today at #EASLCongress, shows strong potential to become the first global therapy for pruritus in #PBC! 
đź§Ş Phase 3 GLISTEN trial showed rapid, meaningful itch relief &amp; better sleep.
âś… Well-tolerated, with expected AEs (diarrhoea, abdominal pain)
A