🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

The PCD patient conference 2024 will take place online on Friday, November 29, 2024 from 2:00 to 6:00 pm (CET). Registration and information available on our website: beat-pcd.squarespace.com/events/2024/11…

🚴‍♂️ 🏃‍♀️🏊🏼2 DAYS TO GO until 55KM challenge 2024 kicks off across Australia! 🚴‍♂️ 🏃‍♀️🏊🏼 On October 1st, we will st art our month-long challenge and ride ,walk , swim or run for those kids and adults who live with PCD . ❤️ pcda55km2024.raiselysite.com

Delighted to have been asked to attend the first Global PCD Advocacy Summit - lots of great ideas on how to collaborate and how to encourage people to take part in research. Even managed a swift pint in an English pub! PCD Support UK PCD Australia PCD Australia

DCPES. Discinesia Ciliar Primaria / Kartagener acaba de asistir a un importantísimo encuentro en Londres de toda la comunidad DCP internacional PCD Australia PCD Support UK Fiona Copeland BEM PCD Foundation grupo de Brasil, grupo germanoparlante y asociación Francesa. Trabajamos en una actitud conjunta de impulso para la DCP💪🏻

Primary ciliary dyskinesia (PCD) is a genetic disorder where cilia in the lungs don’t work, leading to mucus buildup & frequent infections. Kartagener syndrome, a type of PCD, can also flip organ placement. PCD is usually inherited from both parents. #PCD #RareDisease

🎉 We're excited to share our first video on the importance of airway clearance for PCD! It's a helpful guide for parents and patients to manage respiratory health. Watch now! 👇 ow.ly/m0es50TIGWE 💨 #PCD #AirwayClearance #RespiratoryHealth #PatientEducation

Cilia are tiny hair-like structures that help move reproductive cells. In people with PCD, the cilia don't work properly, making it harder for sperm and eggs to move, which can cause fertility issues. #PCD #Awareness

Handwashing is vital for those with Primary Ciliary Dyskinesia (PCD) to reduce the risk of respiratory infections. Since clearing mucus is harder with PCD, regular handwashing helps keep germs away. Stay safe, stay clean! 🧼🤲 #PCDAwareness #Handwashing #PCDLife #StayHealthy"

Really looking forward to this. Don't forget October is PCD awareness month so follow BEAT-PCD (ERS CRC) for more updates

Join us in raising global awareness for Primary Ciliary Dyskinesia (PCD)! Check out the new film by ADCP with real patient stories. PCD affects the cilia, causing respiratory issues and sometimes organ inversion (situs inversus). Watch here: ow.ly/ZbFc50TPmFj

During PCD Awareness Month, we're highlighting the complex journey to a PCD diagnosis. Many remain undiagnosed due to low awareness. Here's a map of what it can look like. Contact us for info and support! #PCD #ChronicIllness #InvisibleIllness #DiagnosisJourney"

On this Good Friday, we reflect on sacrifice, hope, and compassion. At PCD Australia, these values guide all we do. Wishing you peace and a moment of reflection today. 🕊️ #GoodFriday #PCDAustralia

🇦🇺 Lest We Forget 🇳🇿 Today we honour the courage, sacrifice, and spirit of those who served at Gallipoli and beyond. At PC Australia, we reflect with gratitude on their legacy and the freedoms we hold dear. #ANZACDay #LestWeForget #PCAustralia #ANZACSpirit

Happy #MothersDay to the incredible moms raising children with #PrimaryCiliaryDyskinesia 💜 Your strength, love & tireless care don’t go unnoticed. From daily treatments to endless advocacy—you are heroes. Thank you for everything you do. 💪🌸 #PCD #RareMoms

This #VolunteerWeek, we’re sending a huge THANK YOU to all the amazing volunteers who’ve supported PCD over the years — from fundraising to serving on the board. Your passion and dedication make everything we do possible. We’re so grateful! 💙👏

🌍 Today is #WorldNoTobaccoDay People with PCD, every breath is a challenge. 🚭 Tobacco smoke can worsen symptoms & speed up lung damage— second-hand smoke can be harmful. Please, protect every breath. 💙 #EveryBreathMatters #BreatheForPCD #CleanAirMatters #SmokeFreeFuture

🧬 "Nobody ever spoke to me about PCD & fertility…” A new study reveals the fertility concerns & lived experiences of people with PCD & their families. 🔹 Gaps in care 🔹 Emotional toll 🔹 Inherited risk 📄 Read more: onlinelibrary.wiley.com/doi/full/10.11… #PCD #Fertility #RareDisease

📣 PCD Australia is heading to the 2025 World Bronchiectasis Conference in Brisbane! Come visit our stand, connect with the community, and learn more about PCD and bronchiectasis. Interested in volunteering? Email: [email protected] 👉 ow.ly/A7se50W8ccT #WBC2025

People with PCD face serious risks from RSV—but are being left out of prevention plans. Hospitalisation, lung damage, even death are real outcomes. 📢 Write to your federal rep: We need access, equity & not be overlooked. #PCD #RSVProtection #LungHealth #RareDisease #PCDAustralia

Today on #WorldBronchiectasisDay, PCD Australia stands with the global community to raise awareness of bronchiectasis—especially for those living with #PCD. Early diagnosis and better care matter. Let’s drive change, together. 💛🌏 #LungHealth #Bronchiectasis2025