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My friend Ian Brooks is fundraising for PCD Research. Check out their JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/fundraising/ia…

Many of you will have noticed a new charity recently, called PCDresearch . We're excited to work alongside each other to improve the lives of people with #PCD. A quick guide to what each of us do! PCD Support UK: pcdsupport.org.uk PCD Research: pcdresearch.org

You can help raise money for PCD Research by donating online #JustGiving justgiving.com/campaign/PCDRe… #londonlandmarkshalfmarathon #llhm2023 #pcdresearch

Watch our latest video to find out about what causes PCD 👇 If you would like to donate, please use this link: checkout.justgiving.com/c/3234524 Please also share our charity with your own network, raising awareness helps us access new resources! #PCD #PCDresearch

We attended the BEAT-PCD (ERS CRC) conference this weekend and it was fantastic to hear from all of the researchers, patients and support groups from around the world. We gave a quick intro to our charity, please get in touch if you have any questions! #PCD #BEATPCD #PCDresearch

There is still time to submit an application for this exciting project! We are looking forward to reading the applications 📝

NATA is proud to support #RareDiseaseDay 2023, working with ERUK is now @EpilepsyInst, Action for A-T and PCDresearch to translate research into benefits for patients with #raredisease. rarediseaseday.org #NucleicAcidTherapies #oligotherapeutics

Today is #RareDiseaseDay! We are proud to participate in this campaign to raise awareness of rare diseases. The ultimate aim is to reach equity in social opportunity, healthcare and access to diagnosis for all people with a rare disease. This all starts with raised awareness!

Last night we hosted the official launch of our #RareDiseaseTranslational Challenge. We'd like to say a huge thank you to those who attended the reception and thank our speakers for delivering inspiring talks throughout the evening. lifearc.org/strategy/rare-… #RDTC #LifeArc2030

That's a wrap on this year's BEAT-PCD (ERS CRC) ERN-LUNG meeting! Thank you Myrona Goutaki Amelia Shoemark for your efforts and growing this motivated community 😊👏 See you tomorrow at #ERSCongress

Excited to be at the Rare Diseases Industry Accelerator Day « getting cilia moving » organized by PCDresearch in London today. Amazing line up of speakers. It will be a great day! pcdresearch.org/gettingciliamo…

Together with NATA - Nucleic Acid Therapy Accelerator we will fund a £250k 2yr grant to develop #mRNA therapy for PCD. #geneticdiseases #mRNAtreatments #GettingCiliaMoving #primaryciliarydyskinesia #geneticTherapies #ciliopathies #pcdawarenessmonth