PDA ACTION (@pdaaction) 's Twitter Profile
PDA ACTION

@pdaaction

PDA Action is headed by four parents of children diagnosed with autism and who have a profile of Pathological Demand Avoidance.

ID: 855456690

calendar_today30-09-2012 22:43:21

7,7K Tweet

1,1K Followers

4,4K Following

Steve Broach KC (@stevebroach) 's Twitter Profile Photo

So much of my work during the pandemic essentially involves saying to government ‘you forgot about disabled people’. If disabled peoples organisations were properly involved in policy design, a large chunk of the JRs government has faced and will face would go away.

Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

Please share and share! - SOMERSET parent/carers - PLEASE COMPLETE THIS annoymous survey regarding your SEND experiences in Somerset: surveymonkey.com/r/52RDVD3 Follow: #UKfailsChildren #SomersetSENDharm #AccountabilityNow

Special Needs Jungle (@spcialndsjungle) 's Twitter Profile Photo

There is a petition on the parliamentary petitions site to extend urgently the statutory age limit for SEND provision in the wake of COVID-19. As young people with disability are losing almost of a year of education, EHCP should be extended to age 26. ow.ly/JWGj30qNBET

Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

If a child is living in #Somerset with #SEND they will end up under one of these pathways. Children’s services is the dipleation of respite and services. CWD are the disabled social care team. Many are under all the other services! #SomersetSENDharm

If a child is living in #Somerset with #SEND they will end up under one of these pathways. Children’s services is the dipleation of respite and services. CWD are the disabled social care team. Many are under all the other services! #SomersetSENDharm
Andrea Attree321 (@andrea_attree) 's Twitter Profile Photo

Thank U😊 I will Tweet progress. Today Myself & the community team have chosen a Care provider. The Care Quality Commission R looking at what can be done 2 support Dannielle while We form a team of specially trained Carers 2 look after D in the ATU & prep her 4 transition 2 her home.

Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

Boris Johnson are the petitions team on #StayAlert? We are holding back with families outrage #SomersetSENDharm. #AccountabilityNow would be great to authorise our petition please. Thousands of Somerset suffering children needs to end please. Thank you

<a href="/BorisJohnson/">Boris Johnson</a> are the petitions team on #StayAlert? We are holding back with families outrage #SomersetSENDharm. #AccountabilityNow would be great to authorise our petition please. Thousands of Somerset suffering children needs to end please. Thank you
Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

Localgov.co.uk Somerset young carers key workers dept were dismissed with out noticed. We really need them back, too many are now entering all categories of “troubled families”. 😢

Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

You can join Somerset Parent Alliance to see tonight's live stream. facebook.com/groups/1463452… facebook.com/groups/1463452…

Stop Somerset Cuts (@stopsomersetcut) 's Twitter Profile Photo

Somerset parents this is your chance to have your say after the OFSTED/CQC SEND inspection report. Sarah Baker and I did the survey and will be writing a briefing report, to support a campaign for change. surveymonkey.com/r/52RDVD3 You can join us at: m.facebook.com/groups/1463452…

Keir Harding (@keirwales) 's Twitter Profile Photo

Some thoughts on tribunals for those diagnosed with BPD. "the young women (and it is always young women) are not aware of how far their treatment has moved from what NICE would recommend" beamconsultancy.co.uk/the-blog/2020/…

Prudence (@princesspruk) 's Twitter Profile Photo

@paedsnursebeth Bethany's dad Males tend to be shoehorned into antisocial or narcisisstic personality disorder instead :( the ratio is 3:1, female to male diagnosis. Nice to see the number of studies linking undiagnosed female autism to bpd really are increasing over the years though psva.org/wp-content/upl…

MD or Bust - The Equitable Autist-Knowledge Magpie (@appyjumpindaze) 's Twitter Profile Photo

Keir Harding This is horrible! So many Autists are misdiagnosed with BPD and I could totally see how an Autistic person locked in a sensory overwhelming environment would be stimming/self harming more. Thank you for helping these ppl!

Keir Harding (@keirwales) 's Twitter Profile Photo

MD or Bust - The Equitable Autist-Knowledge Magpie Thanks for saying. I saw too many young girls get sent to awful places knowing that in another part of the country it wouldn't happen. I just couldn't watch it anymore.

Steph’s Two Girls (@stephstwogirls) 's Twitter Profile Photo

Keir Harding This is really interesting. I know it’s probably not huge numbers, but I do wonder how many might be diagnosed with autism, specifically PDA, if those with experience of this were assessing...

Keir Harding (@keirwales) 's Twitter Profile Photo

Steph’s Two Girls I wouldn't say many diagnosed with BPD were correctly diagnosed - its such a messy diagnosis that all sorts of issues that challenge clinicians are slipped into that diagnosos.

BIS-net (@cedabisnet) 's Twitter Profile Photo

Facebook Live Q&A this evening. 8pm - 9pm with Harry Thompson. Author of the PDA Paradox - the highs and lows of my life on a little known part of the Autism Spectrum. @Bisnetpage facebook.com/Bisnetpage #PDA #Autism #AutismAwareness #ActuallyAutistic PDA Society PDA ACTION