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Did you (or someone you know) care for a terminally ill family member who died when you were aged 25 or under? If so please consider taking part in one of our online focus groups to help us improve support for young carers. Pls contact me on [email protected]. Many thanks!

💙 How did your upbringing shape your childhood understanding around death? Volunteers from St Joseph's Hospice share how their upbringing shaped their views on death. Thank you to Pauline, Lawrence and Berna for giving their time. #DyingMattersAwarenessWeek #TheCultureOfDyingMatters

💙 How does your culture shape the way you talk about death? As part of #DyingMattersAwarenessWeek, we spoke to our community about how death, dying and grief are approached in their own cultures. 👉 hospiceuk.org/our-campaigns/… #TheCultureOfDyingMatters

Huge thanks to Kathryn Mannix for a wonderful conversation tonight Front Room WSM for #DyingMattersAwarenessWeek 🙏 A full house and so many important questions from the audience, from DNACPR to including children after a death. WsM Community Network Good Grief Festival Dying Matters

Are you a healthcare professional in the UK caring for people living with #HIV aged over 50? What are the important issues for you & your patients? We are creating a bank of research questions for priority setting. Closing date Saturday 17th May. app.onlinesurveys.jisc.ac.uk/s/socs/have-yo…

📣 New paper from OSCAR_study online CKJ: How do patient information documents present dialysis and conservative kidney management? A document analysis. academic.oup.com/ckj/advance-ar… The UK Kidney Association ERA - European Renal Association 1/3

spikeisland.org.uk/programme/even… A conversation between artist Dan Lie and End of Life Doula Aly Dickinson - Honest grieving for a better life. Spike Island Studios in Bristol Saturday 17 May 3 to 4.30pm Free & booking necessary #Bristol Lucy Selman #EndoflifeDoulas #Grief

A massive thank you for 700 responses and counting... Are you a UK-based community nurse? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_9X… The RCN RCN District and Community Nursing Forum Primary Care Unit, University of Cambridge

Thank you to everyone who came to our #DyingMattersAwarenessWeek events -- & special thanks to the brilliant Kathryn Mannix who joined us in Bristol & Weston-super-Mare, our panellists who discussed learning disabilities, & Robert Neimeyer who talked about living beyond loss

I'm frequently asked, often by worried healthcare students, whether it's 'wrong' to show our emotions when we are supporting patients and their beloveds through difficult times, unwelcome news, anticipatory grief and deep sorrow. Here's my experience: 🧵 virtualhospice.ca/en_US/Main+Sit…

We’re looking for individuals with recent experience of palliative or end-of-life care, either personally or with a loved one, to help us develop a new, compassionate approach to end-of-life care called Sue Ryder Alongside Suites. Find out more: sueryder.org/blog/invitatio…

Read Arts Council England's piece about Good Grief Weston highlighting the festival as "a best practice example of cross-sector collaboration and the role of creativity in promoting health and wellbeing in our communities" Lucy Selman artscouncil.org.uk/creative-matte…

Palliative care nurse-led intervention for Ugandan drug-resistant TB pts improves symptoms & concerns, Qol, psychological morbidity AND treatment adherence shorturl.at/u5Tml The Lancet Global Health EAPC VZW APCA Stop TB Partnership IAHPC WHPCA Hospice Africa Ug Cicely Saunders Institute at King's King's College London

If we are brave enough to ask people about themselves & what & who is important to them, what they find difficult, what they are fearful of & what they need, we may have a chance to really improve the experiences of the people we care for.” 🧵 1/6 tandfonline.com/doi/full/10.10…

A privilege to hear Smriti Rana on the plenary stage EAPC VZW Congress 👏👏👏 #eapc2025

Smriti Rana Disparities persist - from research funding, to guidelines with a global north lens, and huge unwarranted variation in access to and use of opiods. Smriti Rana

Smriti Rana Can we challenge ourselves to tackle these biases and inequities? Can we listen generously? A tour de force from Smriti Rana EAPC VZW #eapc2025

We're delighted to share that Arts Council England has highlighted #GoodGriefWeston as ‘a best practice example of cross-sector collaboration and the role of creativity in promoting health and wellbeing in our communities’. Huge thanks to all involved! Read more: artscouncil.org.uk/creative-matte…

Join us for our next PEOLC research network meeting on Thursday 19 June 10am-12pm. We have an exciting list of speakers and interesting talks lined up. Register here forms.office.com/Pages/Response…

Stephanie Meddick-Dyson (Stephanie Meddick-Dyson) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details