Tonight, we’re at the Senedd launching our Life + Breath report, bringing together policymakers & healthcare professionals to hear how lung conditions are impacting lives in Wales. Our key recommendations: 1️⃣Implement a dedicated respiratory care plan. 2️⃣GPs must prioritise lung

Pulmonary Fibrosis NI one for the support group!

Happy New Year everyone from Pulmonary Fibrosis NI.

I dont know how many of you have seen.the TV advertisement produce with Peter Bryce Chairman of the Pulmonary Fibrosis Trust youtu.be/PnfRlo_oFG0?fe… It is a very well thought out and delivered

Manchester Interstitial Lung Disease Course 2025 (MILD 2025) eventbrite.co.uk/e/manchester-i…

Colin Day who is a member of Pulmonary Fibrosis NI and his sons sing Walk of Life and others. Colin is using oxygen 24/7 youtu.be/meX3Y09K-go

🚨 Today we launch a new report on Domestic Burning in Northern Ireland. People need to be aware of the harmful effects of wood burning, especially on children’s lungs. Clean, safe, and affordable heating is essential. 🔗 Read the report: bit.ly/4hkn9bw #CleanAirNight

Starting Wednesday 5th March, our new body breathing sessions can help you learn about the relationship between breathing, the body, the mind and your emotions. You will learn common areas of tension, and how gentle movement can support good breathing: orlo.uk/oWZF4

🚨 Save the Date! 🚨 The EU-PFF Patient Advocacy Forum is in Frankfurt, April 24-27, 2025! 🙌 This members-only event will bring together patient advocates & healthcare leaders to shape the future of patient care. We’re excited to collaborate with partners to improve outcomes!

If you’re feeling a bit down today watch this ♥️.

Pulmonary Fibrosis NI: Team Ward 3B Ulster Hospital pulmonaryfibrosisni.enthuse.com/pf/team-3b

Manchester ILD course with the western trust research team Western Trust C-TRIC Cristina Avram 💙

Tomorrow Monday 12th May is International Nurses Day. I would like to thank all our dedicated nurses wherever they are. Do you have a special nurse who cares for you? I have a few; they are all our Specialist Respiratory Nurses in Northern Ireland ❤️

Research & Development would like to welcome 1st recruited participant to the “BREEZE” research study trial aiming to find out how best to support participants with pulmonary fibrosis to manage their breathlessness Contact [email protected] #MakingADifference

Starts today: Walk For Warriors, Walk For Hope, Walk For Me. Walk virtually the distance between our 2 respite centres 123 miles. Finish 30 September. pulmonaryfibrosisni.enthuse.com/cf/walk-for-wa…

📺 Policy and Public Affairs Officer Andrew Wilson was interviewed on BBC News NI about the disposable vapes ban which came into force yesterday across the UK. Watch here ⬇️ bbc.co.uk/iplayer/episod…

Fantastic news for all our patients with IPF who suffer with cough! An overall 43% reduction in cough counts, similar improvement in patient reported cough and benefits seen in 2 weeks. We look forward to the phase 3 study!

Today is another landmark day in the history of Pulumonary Fibrosis NI. We have been working hard behind the scenes to bring our patient community a bigger and much improved respite facility in Ballycastle. Yesterday we opened the new Puffin Lodge to our first family.

The Health Minister met with Pulmonary Fibrosis NI at their Lough Erne respite house and discussed patients' lived experiences. Minister Nesbitt also met with NIAS and Lower Lough Erne Community First Responders as part of his series of engagements in Co Fermanagh.