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In our recent Community Feedback Survey, you told us that you wanted to hear more from others in similar circumstances. Whether you're a patient, carer or professional.. we're asking you to get involved and share your story! pkdaustralia.org/share-your-sto…

Today is Clinical Trials Day - the only global awareness campaign dedicated to recognising and championing clinical research professionals. Clinical researchers are the ones who keep our critical studies on track, they are the trailblazers among us. Today, we celebrate YOU!

Did you miss our recent webinar? Earlier this month we were joined by Professor Ian M. Smyth and Dr Denny Cottle to learn more about "Research into Treatments for PKD". You can catch up by watching the recording on our YouTube channel! youtu.be/-4lTQPE2g08?si…

With end of financial year fast approaching, it's a great time to donate to PKD Australia. Our goal is to raise $50,000 by EOFY, and all donations over $2 are tax deductible. We thank you for your ongoing support and generosity! pkd-australia-donate-now.raisely.com

Next Tuesday 18th June at 6.30pm (AEST) we will be joined by Professor Edwin Kirk to learn more about "Mackenzie's Mission: Genetic Carrier Screening & Family Planning". You can learn more and register at the link here: us06web.zoom.us/webinar/regist…

Are you joining us tomorrow night? On Tuesday 18th June at 6.30pm (AEST) we will be joined by Professor Edwin Kirk who co-lead the Mackenzie's Mission carrier screening project. You can learn more and register to join us here: us06web.zoom.us/webinar/regist…

Please join us in welcoming our new PKD Australia Board members: Alissa Lucas, Professor Jacqueline Phillips, Dan Pooley and Vanessa Cullen. We invite you to learn more about the team by reading our recent newsletter at the link below. mailchi.mp/f7cc6c11015b/p…

Next Tuesday 2nd July we will be joined by Dr Priyanka Sagar & Professor Gopala Rangan for our webinar titled "BEETPKD: The effect of beetroot juice on blood pressure in ADPKD". You can find out more and register at the link below. us06web.zoom.us/webinar/regist…

Please join us in welcoming our new PKD Australia Scientific Advisory Board member, Kelly Lambert. Kelly Lambert is an Associate Professor and Advanced Accredited Practising Dietitian at the University of Wollongong in New South Wales. mailchi.mp/f7cc6c11015b/p…

With only a few days left until EOFY, it's a great time to donate to the causes that mean the most to you! At the heart of PKDA's mission is our Grant Research Program, funding critical PKD research in Australia. We thank you for your support! pkd-australia-donate-now.raisely.com

We're thrilled to announce the recipients of our 2024 Research Grants! We encourage you read more about the incredible topics of research on our website by following the link below. pkdaustralia.org/our-researcher…

On Saturday 31st August, KidGen will be hosting their Adelaide Symposium! The theme for the 2024 meeting is 'Empowering Personalised Kidney Healthcare Through Genetic Risk Assessment and Patient-Focused Solutions'. Learn more or register to attend: trybooking.com/events/landing…

New research from Yale School of Medicine has discovered that the gene "Glis2" is a component of PKD signalling and may also be a new target for the treatment of the disease. You can read more about the study here: medicalxpress.com/news/2024-06-g…

Next Wednesday evening (one week today), the Brisbane Story Bridge will be lit up for our national PKD Awareness Day! If you live in Brisbane, why not take an evening stroll and snap a photo. You can send it our way or post it with the hashtag! #pkdawarenessday

Researchers at the University of Wollongong are looking for participants all around Australia to take part in their new study, investigating the role of diet in improving health in genetic kidney disease. To find out more visit the link here: redcap.uow.edu.au/redcap/surveys…

Today is PKD Awareness Day and this year, we also celebrate the tenth anniversary of PKD Australia! As we look back on the past ten years, we do so with immense pride in what we have accomplished together. youtu.be/haDohNnyfO4

Last week we celebrated ten years of PKD Australia and today we're proud to invite you to read our 10 Year Impact Report! pkdaustralia.org/wp-content/upl…

On Tuesday September 10th, the Federal Government announced it would ban the practice that saw consumers discriminated against if they disclosed the results of genetic tests that predict their likelihood of an inherited disease. You can read more here: bit.ly/3TCKBar

Are you interested in the role your diet may have on PKD? Researchers at UOW are looking for participants to take part in their new study! Follow the link below to read more about joining: redcap.uow.edu.au/redcap/surveys…

Signing off for the year, and signing off from X ❤️ If you want to stay up-to-date with PKD Australia, please connect with us on Facebook, LinkedIn and YouTube!