
PKU Association IE
@pku_ireland
PKU Association of Ireland #SUPPORTINGPKU #LowProtein PKU Awareness in Ireland Registered Charity Number (RCN) 20202487
ID: 3309782775
http://www.pku.ie 05-06-2015 21:33:15
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Honored to represent PKU Association IE at the Vitaflo Metabolic Family Conference 2025, one of the largest gatherings of Ireland's metabolic community in recent years. Heartfelt thanks to Amy, Claire, Suzie, Elisa, Neil and the Vitaflo team for organising such an outstanding event.



Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… #RareDiseaseNI


📢 Share Your Story 🧬 Why This Matters: Families of children with rare diseases often face huge emotional, social, and financial challenges. Your experiences can help shape future healthcare policy Take the Survey Now👇 …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… RAiN Rare Diseases Ireland