PKU Association IE (@pku_ireland) 's Twitter Profile
PKU Association IE

@pku_ireland

PKU Association of Ireland #SUPPORTINGPKU #LowProtein PKU Awareness in Ireland Registered Charity Number (RCN) 20202487

ID: 3309782775

linkhttp://www.pku.ie calendar_today05-06-2015 21:33:15

3,3K Tweet

1,1K Followers

2,2K Following

ESPKU (@official_espku) 's Twitter Profile Photo

Children with rare diseases often face bullying. Florentina, in her interview for #pkulifestories, shared her experience growing up with PKU and how her mother’s advice shaped her journey. 🌿

Children with rare diseases often face bullying. Florentina, in her interview for #pkulifestories, shared her experience growing up with PKU and how her mother’s advice shaped her journey. 🌿
Małgorzata Henek (@ma_henek) 's Twitter Profile Photo

I know Florentina's mum. She's wonderful! The wisdom shines though the advice she have her daughter on how she should perceive her #PKU #pkulifestories

Bernadette Sheehan Gilroy (@sheehangilroy) 's Twitter Profile Photo

Honored to represent PKU Association IE at the Vitaflo Metabolic Family Conference 2025, one of the largest gatherings of Ireland's metabolic community in recent years. Heartfelt thanks to Amy, Claire, Suzie, Elisa, Neil and the Vitaflo team for organising such an outstanding event.

Honored to represent <a href="/PKU_Ireland/">PKU Association IE</a> at the Vitaflo Metabolic Family Conference 2025, one of the largest gatherings of Ireland's metabolic community in recent years. Heartfelt thanks to Amy, Claire, Suzie, Elisa, Neil and the Vitaflo team for organising such an outstanding event.
Rare Diseases Ireland (@rarediseasesie) 's Twitter Profile Photo

Share your experiences of the challenges faced by a family when a child is diagnosed with a #RareDisease tinyurl.com/bdhwd2az Help us to understand what matters most for people living with rare diseases.

Share your experiences of the challenges faced by a family when a child is diagnosed with a #RareDisease
 tinyurl.com/bdhwd2az
Help us to understand what matters most for people living with rare diseases.
Kerry Longmore (@longmorekerry) 's Twitter Profile Photo

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… #RareDiseaseNI

Dr Suja Somanadhan (@sujas15) 's Twitter Profile Photo

📢 Share Your Story 🧬 Why This Matters: Families of children with rare diseases often face huge emotional, social, and financial challenges. Your experiences can help shape future healthcare policy Take the Survey Now👇 …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… RAiN Rare Diseases Ireland