Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile
Pseudomyxoma Survivor

@pmpsurvivor

Pseudomyxoma Survivor is the network for survivors and caregivers of pseudomyxoma peritonei (PMP) and appendix cancers. Registered charity no 1143642

ID: 556722420

linkhttps://www.pseudomyxomasurvivor.org/ calendar_today18-04-2012 07:31:07

4,4K Tweet

1,1K Followers

1,1K Following

Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

Charlotte Orr, Illustrator, has been longlisted for the World Illustration Awards 2025, for her PMP hospital diary. Talking about physical & emotional impact of PMP, it packs a punch! Congrats &🤞. #worldillustrationawards2025 #pseudomyxomasurvivor #peritonealmalignancyinstitute

Charlotte Orr, Illustrator, has been longlisted for the World Illustration Awards 2025, for her PMP hospital diary. Talking about physical & emotional impact of PMP, it packs a punch! Congrats &🤞.
#worldillustrationawards2025 #pseudomyxomasurvivor #peritonealmalignancyinstitute
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Volunteers Week concluded last week, we couldn't let it pass without acknowledging our own wonderful volunteers (too many to name!). Thank you each & every day for all that you do. #pseudomyxomasurvior #appendixcancer #pseudomyxomaperitonei #GratefulForVolunteers

Volunteers Week concluded last week, we couldn't let it pass without acknowledging our own wonderful volunteers (too many to name!). Thank you each & every day for all that you do. 
#pseudomyxomasurvior #appendixcancer #pseudomyxomaperitonei #GratefulForVolunteers
Peritoneal Surface Oncology Group International (@psogi_ec) 's Twitter Profile Photo

🔊 🔊 Calling on young surgeons/ clinicians around the 🌎 🌏 If you are conducting a clinical trial/ cohort study 📈 📉 or have an idea 🌪️ that you would like to share 👩‍🏫 👨‍🏫 with the PSM community 'Pitch your trial idea' to #PSOGI2025 #PSOGIBarcelona and participate in this

🔊 🔊 Calling on young surgeons/ clinicians around the 🌎 🌏 

If you are conducting a clinical trial/ cohort study 📈 📉 or have an idea 🌪️ that you would like to share 👩‍🏫 👨‍🏫 with the PSM community 

'Pitch your trial idea' to #PSOGI2025 #PSOGIBarcelona 

and participate in this
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

A concerning trend of appendix cancer being diagnosed in younger patients. Those born in the 1980s 4X more likely to receive a diagnosis of ac compared to those born in the 1940s. acpjournals.org/doi/10.7326/AN… #pseudomyxomasurvivorcharity #appendixcancerawareness #pseudomyxomaperitonei

Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

The challenge of a rare cancer that many are unfamiliar with, & we also need to master its pronunciation! Pseudomyxoma peritonei is pronounced “sue-doh-mix-oh-muh pary-ih-ton-nee-i” & often abbreviated to PMP. #pseudomyxomasurvivorcharity #pseudomyxomaperitonei #appendixcancer

The challenge of a rare cancer that many are unfamiliar with, & we also need to master its pronunciation! Pseudomyxoma peritonei is pronounced “sue-doh-mix-oh-muh pary-ih-ton-nee-i” & often abbreviated to PMP. #pseudomyxomasurvivorcharity #pseudomyxomaperitonei #appendixcancer
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

PMP in its early stages has few symptoms. It starts in the appendix, more rarely, the bowel, ovary or bladder. It affects♂️&♀️of all ages. The tumour polyp grows & bursts through the wall into the abdominal cavity, this is when the patient first realises that there is a problem.

PMP in its early stages has few symptoms. It starts in the appendix, more rarely, the bowel, ovary or bladder. It affects♂️&♀️of all ages. The tumour polyp grows & bursts through the wall into the abdominal cavity, this is when the patient first realises that there is a problem.
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

PMP tumours grow & burst through the wall of the appendix into the abdominal cavity. These tumours can secrete a jelly-like substance called mucin. A build up of mucin lead to the characteristic ‘jelly belly’ & compresses vital organs. #pseudomyxomasurvivorcharity #appendixcancer

PMP tumours grow & burst through the wall of the appendix into the abdominal cavity. These tumours can secrete a jelly-like substance called mucin. A build up of mucin lead to the characteristic ‘jelly belly’ & compresses vital organs. #pseudomyxomasurvivorcharity #appendixcancer
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Research indicates that patients often delay discussing their most pressing health concerns during a visit to their doctor. It's usually the thing that they mention on their way out of the consultation! #pseudomyxomasurvivor #appendixcancer #pseudomyxomaperitonei

Research indicates that patients often delay discussing their most pressing health concerns during a visit to their doctor. It's usually the thing that they mention on their way out of the consultation! #pseudomyxomasurvivor #appendixcancer #pseudomyxomaperitonei
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

Us humans are a complicated lot! Research indicates that patients often delay discussing their most pressing health concerns during a visit to their doctor. It can be the last thing mentioned as they walk to the door! #pseudomyxomasurvivor #appendixcancer #pseudomyxomaperitonei

Us humans are a complicated lot! Research indicates that patients often delay discussing their most pressing health concerns during a visit to their doctor. It can be the last thing mentioned as they walk to the door! #pseudomyxomasurvivor #appendixcancer #pseudomyxomaperitonei
OncoDaily (@oncodaily) 's Twitter Profile Photo

Indian Network for DEvelopment of Peritoneal Surface Oncology (INDEPSO) - Honoring the Star Acts of MVR CANCON 2025 glen Kurt Van der Speeten Peritoneal Surface Oncology Group International MVR Cancer Centre and Research Institute oncodaily.com/positive/mvr-c… #OncoDaily #Oncology #Cancer #Health #Medicine #MedTwitter #MedEd #MedOnc

Indian Network for DEvelopment of Peritoneal Surface Oncology (<a href="/indepso/">INDEPSO</a>) - Honoring the Star Acts of MVR CANCON 2025
<a href="/glehenolivier/">glen</a> <a href="/KurtSpeeten/">Kurt Van der Speeten</a> <a href="/PSOGI_EC/">Peritoneal Surface Oncology Group International</a> 
<a href="/MVRCancerCentre/">MVR Cancer Centre and Research Institute</a>

oncodaily.com/positive/mvr-c…

#OncoDaily #Oncology #Cancer #Health #Medicine #MedTwitter #MedEd #MedOnc
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

Being diagnosed with cancer is scary enough, imaging what PMP/appendix cancer patients feel when they hear about the current treatment for their cancer! Yet plenty of us have survived & thrived. #pseudomyxomasurvivorcharity #appendixcancerawareness #pseudomyxomaperitoneiawareness

Being diagnosed with cancer is scary enough, imaging what PMP/appendix cancer patients feel when they hear about the current treatment for their cancer! Yet plenty of us have survived &amp; thrived. #pseudomyxomasurvivorcharity
#appendixcancerawareness #pseudomyxomaperitoneiawareness
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

A campaign that amplifies the work of small charities across the UK. Join PS, whether through fundraising, funding research or raising awareness, in continuing our invaluable work. #smallcharitiesweek2025 #NCVO #pseudomyxomasurvivorcharity #pseudomyxomaperitoneiawareness

A campaign that amplifies the work of small charities across the UK. Join PS, whether through fundraising, funding research or raising awareness, in continuing our invaluable work. 
#smallcharitiesweek2025 #NCVO #pseudomyxomasurvivorcharity #pseudomyxomaperitoneiawareness
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

In recognition of Small Charities Week 2025, we share with you a brief overview of Our Impact, best summed on the last page by our users. #smallcharitiesweek2025 #pseudomyxomasurvivorcharity #pseudomyxomaperitoneiawareness #appendixcancerawareness

Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

PS are delighted to welcome Maddy Lomas to the Board of Trustees. A PMP patient herself, she is passionate about helping younger patients navigate a cancer diagnosis. ABB is smiling, and we look forward to working with you Maddy. Susan, Anne, Clare & Tim - PS Board of Trustees.

PS are delighted to welcome Maddy Lomas to the Board of Trustees. A PMP patient herself, she is passionate about helping younger patients navigate a cancer diagnosis.  ABB is smiling, and we look forward to working with you Maddy.
Susan, Anne, Clare &amp; Tim - PS Board of Trustees.
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

A cancer diagnosis is an unforgettable moment; you don't forget "we found cancer.” A study by Kessels found 40-80% of medical info is quickly forgotten, 1/2 of what is remembered is inaccurate. Write down questions before appoints & bring someone along to record the answers.

A cancer diagnosis is an unforgettable moment; you don't forget "we found cancer.” A study by Kessels found 40-80% of medical info is quickly forgotten, 1/2 of what is remembered is inaccurate. Write down questions before appoints &amp; bring someone along to record the answers.
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

At PSOGI Congress 2025 we are introducing a Patient Charter. Driven by Santiago Gonzalez Moreno, MD, Madrid, & Sandra Lara de Liz, #Asociacionperitoneum, in collab with #ACPMP, #Amarape, #MesotheliomaUK, #PALS, #PMPContactGroup & #pseudomyxomasurvivor. #psogi #rarecancer

At PSOGI Congress 2025 we are introducing a Patient Charter. Driven by Santiago Gonzalez Moreno, MD, Madrid, &amp; Sandra Lara de Liz, #Asociacionperitoneum, in collab with #ACPMP, #Amarape, #MesotheliomaUK, #PALS, #PMPContactGroup &amp;
#pseudomyxomasurvivor.
#psogi #rarecancer
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

Still have places in the Royal Parks Half 2025, 12th Oct. Would you like to run & fundraise for PS? The route through London's parks has a fantastic atmosphere, as many past PS runners would agree. More details here - pseudomyxomasurvivor.org/.../royal-park…

Still have places in the Royal Parks Half 2025, 12th Oct. Would you like to run &amp; fundraise for PS? The route through London's parks has a fantastic atmosphere, as many past PS runners would agree. More details here -
pseudomyxomasurvivor.org/.../royal-park…
Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

✨ Awareness starts with a spark. Each August, we light up landmarks across the U.S. to honor those affected by appendix cancer and spotlight this rare disease. See which places are glowing #AmberForAppendixCancer in 2025: acpmp.org/august/appendi…

✨ Awareness starts with a spark.

Each August, we light up landmarks across the U.S. to honor those affected by appendix cancer and spotlight this rare disease.

See which places are glowing #AmberForAppendixCancer in 2025: acpmp.org/august/appendi…