
PORT
@portoncology
Paediatric Oncology Reference Team - A group of parents helping to ensure that childhood cancer research trial documentation is clear and relevant #PORT
ID: 874969349299347457
http://www.port.uk.com 14-06-2017 12:38:43
122 Tweet
182 Followers
34 Following


2/2 15 Feb is International Childhood Cancer Day (ICCD). ICCD is a global collaborative campaign to raise awareness about childhood cancer and express support for children and adolescents with cancer, the survivors and their families. #beatingchildhoodcancer #ICCD2020 SIOP International




1/2 CCI Europe 🎗️ SIOPE 🎗️ want to make childhood cancer research designed, delivered & disseminated better, focus on the families and the children affected, work together to make research trials better & save more lives. Please complete the survey: coventryhls.eu.qualtrics.com/jfe/form/SV_9Y…


2/2 This survey is for parents, childhood/TYA survivors & professionals from Europe. We will use this information to make a change, to help countries develop and showcase those that do it well. Please complete the survey and share widely. SIOP International Bethany's Wish SIOPE 🎗️


1/2 @CRUK are looking for 5 parents of children affected by cancer to take part in a 2 hour focus group to help shape the design of a new clinical trial. If you’re interested, please contact [email protected] directly.





2/4 Multidisciplinary team of experts working on ChromaDose will develop a diagnostic drug monitoring tool to aid dose optimisation, enabling children receiving anthracycline chemotherapy – a drug commonly used to treat childhood lymphomas and leukaemias ChromaDose

3/4 ChromaDose enables clinicians to calculate the patient’s drug exposure. Nurses giving the chemo would collect a few drops of blood at different times following administration. These samples are then inserted into the ChromaDose bedside device. ChromaDose

4/4 This is a groundbreaking project and demonstrates the power of diversity. Many highly respected people from different disciplines working together to help children with cancer. See chromadose.org for more info. ChromaDose Pam Kearns Neil Ranasinghe

1/2 Important survey for parents/carers of a child that had cancer in UK. research into providing equipment to allow blood tests to be taken at home, and the tests to be analysed at home to give immediate information about drug levels. ChromaDose @CCLG_UK Bob Phillips @cr_uk

2/2 We want to hear your thoughts on this research. Please email [email protected] or DM us for a link to the survey. There is a £20 amazon voucher for people that take survey. ChromaDose @CCLG_UK Bob Phillips @cr_uk

Setting standards for international parent & patient involvement (PPIE) in children and young people’s cancer research: now published doi.org/10.1002/cnr2.1… SIOP International SIOPE 🎗️ Little Princess Trust @CCLG_UK

PORT’s very own Sharon Dempsey latest book amazon.co.uk/Midnight-Killi…. A brilliant read, and only 9️⃣9️⃣p on Kindle. Avon Books UK #BookTwitter

