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It is not too late to join us for the online Canadian PSC patient event! 9am - 4pm EST tomorrow, 10am - 1pm EST Sunday. pscpartners.ca/events to register. #PSCAware @PSCPartners

Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention! Do you know what PSC is? It's a rare condition that affects the bile ducts, causing scarring and narrowing. This can lead to liver damage and impact digestion. #LiverCancerAwarenessMonth #PSCDay

The Quality of Life in PSC conversation w liver experts from Australia, Belgium, and UK for this global #pscaware day.

Patients, families, clinicians, & scientists gathered for #PSC @PSCPartners What the Cell?! Toronto event. Videos at bit.ly/YouTubePSCPC News release at go.pspcartners.org/WhatTheCellPre… Medicine by Design Ajmera Transplant Centre UHN Sonya MacParland Amanda Ricciuto Diana Nakib Gary Bader @AutoImmuneLiver

Teamwork Science! New publication with insights on what is going on at a cellular level in #PSC. So grateful for this team and the CIHR funding making this type of discovery possible! @PSCPartners

Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience and voice at the heart of the whole process. uhn.ca/corporate/news…

This cost-free research program is open to #PSC'ers in Canada and US! Check it out!

Calling all Canadian #PSCers and family members of a #PSCer who transitioned to adult care during the past few years. Please join this virtual town hall on Feb 8! #PSCAware

Save the date for the first ever Canadian Paediatric #PSC Day on June 1st at the Arts & Letters club in Toronto, Ontario, Canada! Registration will open in March and travelships will be available on a first come first serve basis. Stay tuned for updates! #pscaware @pscpartners

PSC Partners Canada is happy to announce that registration is NOW OPEN for the first Canadian Paediatric PSC Day happening June 1 at the Arts and Letters Club in Toronto. Register here 👇 eventbrite.ca/e/canadian-pae… @PSCPartners #PaediatricPSCday #pscaware

2024 Canadian Paediatric PSC Day for patient families! Registration is open for this June 1 event to be held in Toronto, Ontario. Full information at conta.cc/3TAZFEH @PSCPartners #PSCAware

Stephanie Azzarello is 39, she lives in Toronto and works at the University of Toronto in the art history department as a researcher and lecturer. She also has PSC and is on the transplant wait list hoping to find a living donor. Read her full story here: theglobeandmail.com/amp/life/first…

Tonight, the CN Tower / Tour CN will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Remember to check that you’re a registered organ and tissue donor at BeADonor.ca

Patients & families: Today & Tomorrow: Event for paeds autoimmune liver @ Center for Autoimmune Liver Disease at Cincinnati Children's Hospital & ALiNK. Reg open through noon tomorrow for online attendance. 1.Register: web.cvent.com/.../abe1bfce-6…... 2: instructions to join online

Help us reach paediatric PSC families w news of Canadian Paediatric PSC Day on June 1 @ Toronto. Full day educational programming & peer support. Register @ bit.ly/regPSC CASL Amanda Ricciuto Sonya MacParland Binita Kamath Simon Ling AASLD NASPGHAN

People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. buff.ly/3Ut2DeQ @PSCPartners

Last call to register: Sat Paeds PSC Day webinar for patients & families w amazing expert speakers Gideon Hirschfield, Amanda Ricciuto, Sonya MacParland, Gary Bader, Sarah Kohut, Amrita Mundh, & Albert Fung fr University Health Network @UofTGastroH The Hospital for Sick Children (SickKids) TVASurg bit.ly/PSCPC24

Community-driven research is critical to advance scientific discovery Science in Society meeting attendees share posters on their work to push for treatments or cures in their rare disease areas, emphasizing the critical role that patients & communities play in driving discovery

20 Years International Research Experience in PSC: What Have We Learn? 👉International Collaborations matters & make the difference @ipscsg ENS-CCA 👉Patient Associations play a central role @PSCPartners PSC Support Tom Hemming Karlsen at the stage, who better than him! 👏