Parathyroid UK (@parathyroiduk) 's Twitter Profile
Parathyroid UK

@parathyroiduk

The only patient organisation for families living with #parathyroid conditions in the UK & Ireland. #rare #hypopara #hyperpara Tweets by @lucyweigall

ID: 38947866

linkhttp://www.parathyroiduk.org/donate calendar_today09-05-2009 23:07:54

2,2K Tweet

1,1K Followers

1,1K Following

Endocrine Oncology (@endooncology) 's Twitter Profile Photo

Recent research by Jino Johns Lalitha et al. CMC Vellore (Official) analyses the risk factors of #hypoparathyroidism and #hypocalcaemia after total #thyroidectomy. Read it here 👉 doi.org/10.1530/EO-24-…

Recent research by Jino Johns Lalitha et al. <a href="/OffCMCVellore/">CMC Vellore (Official)</a> analyses the risk factors of #hypoparathyroidism and #hypocalcaemia after total #thyroidectomy. 
Read it here 👉 doi.org/10.1530/EO-24-…
Rare Disease 360® (@raredisease360) 's Twitter Profile Photo

Although hypoparathyroidism management practices in Eastern and Western countries share similarities, there are significant differences, particularly in access to parathyroid hormone (PTH) replacement therapy. Read more: medjournal360.com/hypoparathyroi… #Hypoparathyroidism #Thyroid

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

#WorldCancerDay Be aware that rising levels of #thyroidcancer also means rising levels of post surgical #hypoparathyroidism. Choose your surgeon wisely parathyroiduk.org

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

Chronic #hypoparathyroidism is associated with low bone turnover & abnormally dense bone structure but new study finds 35% of postmenopausal women have #osteoporosis and recommends skeletal monitoring in postmenopausal women and men over 50 with hypopara link.springer.com/article/10.100…

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

We’ll be excited to see Prof Neil Gittoes present these encouraging results from the phase 3 Yorvipath by trial by AscendisPharma at the SfE BES endocrine conference in Harrogate next month. endocrine-abstracts.org/ea/0109/ea0109…

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

We’re excited to be at the #SfEBES2025 this week where we'll be supporting the AscendisPharma #SeedsofChange awareness campaign and unveiling the #Hypopara Butterfly, presenting our patient survey results and talking about the UK HypOparathyroidism registry. Do visit our stand.

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

Dr Narendra Reddy introduced the new #UKHypoparathyroidismRegistry at the Bone & Calcium Network meeting today supported by Tania Gelmetti from Parathyroid UK. A long awaited and much needed resource #SfEBES2025

Dr Narendra Reddy introduced the new #UKHypoparathyroidismRegistry at the Bone &amp; Calcium Network meeting today supported by Tania Gelmetti from Parathyroid UK. A long awaited and much needed resource #SfEBES2025
Addison's Disease Self-Help Group (ADSHG) (@addisonsuk) 's Twitter Profile Photo

Final day at #SfEBES2025 with Chair of Endocrine Nurses Louise Breen's talk on the launch of the 3rd edition of the Society for Endo Competency Framework for Adult Endocrine Nursing & SfE's work with Patient Support Groups. 🩺 Read P279 - Adult Endocrine Nursing: endocrine-abstracts.org/ea/0109/ea0109…

Final day at #SfEBES2025 with Chair of <a href="/Soc_EndoNurses/">Endocrine Nurses</a> Louise Breen's talk on the launch of the 3rd edition of the <a href="/Soc_Endo/">Society for Endo</a> Competency Framework for Adult Endocrine Nursing &amp; SfE's work with Patient Support Groups.

🩺 Read P279 - Adult Endocrine Nursing: endocrine-abstracts.org/ea/0109/ea0109…
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

AscendisPharma along with Parathyroid UK and the Society for Endo unveiled a butterfly mural on Monday. The artwork reflects the lived experiences of individuals with a serious condition called #hypoparathyroidism, commonly known as #hypopara. rarerevolutionmagazine.com/butterfly-mura…

<a href="/AscendisPharma/">AscendisPharma</a> along with <a href="/ParathyroidUK/">Parathyroid UK</a> and the <a href="/Soc_Endo/">Society for Endo</a> unveiled a butterfly mural on Monday. The artwork reflects the lived experiences of individuals with a serious condition called #hypoparathyroidism, commonly known as #hypopara.
rarerevolutionmagazine.com/butterfly-mura…
Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

We were very proud to have our poster accepted at #SfEBES2025 showing results of our patient survey on the burden of medication regimens in #hypoparathyroidism. Thank you to the brilliant doctor Atiya Kenworthy for representing us. AscendisPharma Society for Endo

We were very proud to have our poster accepted at #SfEBES2025 showing results of our patient survey on the burden of medication regimens in #hypoparathyroidism. Thank you to the brilliant doctor <a href="/AtiyaKenworthy/">Atiya Kenworthy</a> for representing us. <a href="/AscendisPharma/">AscendisPharma</a> <a href="/Soc_Endo/">Society for Endo</a>
Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

Another great conference! Thanks to Society for Endo for having us, to all our dedicated medical advisors & speakers, to our friends at i@AscendisPharma and to our brilliant volunteers who, as patients with a rare condition, are just amazing for keeping going. #hypopara #SfEBES2025

Another great conference! Thanks to <a href="/Soc_Endo/">Society for Endo</a> for having us, to all our dedicated medical advisors &amp; speakers, to our friends at i@AscendisPharma and to our brilliant volunteers who, as patients with a rare condition, are just amazing for keeping going. #hypopara #SfEBES2025
BioMedWire (@biomedwire) 's Twitter Profile Photo

$AZN acquired drug shows positive results in treating hypoparathyroidism, offering new hope for patients with this rare condition: ibn.fm/OnFCi #AstraZeneca #Biopharma #Hypoparathyroidism #ClinicalTrials #HealthcareInnovation

Parathyroid UK (@parathyroiduk) 's Twitter Profile Photo

Did you know that people with hypoparathyroidism may experience a range of physical, cognitive & emotional symptoms that can significantly impact their quality of life? We’re raising awareness with AscendisPharma’s #SeedsofChange campaign: seeds-of-change.com/UK/b

Did you know that people with hypoparathyroidism may experience a range of physical, cognitive &amp; emotional symptoms that can significantly impact their quality of life? 

We’re raising awareness with <a href="/AscendisPharma/">AscendisPharma</a>’s #SeedsofChange  campaign: 
 seeds-of-change.com/UK/b
Liz Glenister đź’™ (@liz_glenister) 's Twitter Profile Photo

I am retiring as volunteer CEO of Parathyroid UK today after 20 years so I just wanted to thank you all for your wonderful support and say a heartfelt goodbye. It’s been the privilege of my life.

I am retiring as volunteer CEO of <a href="/ParathyroidUK/">Parathyroid UK</a> today after 20 years so I just wanted to thank you all for your wonderful support and say a heartfelt goodbye. It’s been the privilege of my life.