
Parathyroid UK
@parathyroiduk
The only patient organisation for families living with #parathyroid conditions in the UK & Ireland. #rare #hypopara #hyperpara Tweets by @lucyweigall
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http://www.parathyroiduk.org/donate 09-05-2009 23:07:54
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Recent research by Jino Johns Lalitha et al. CMC Vellore (Official) analyses the risk factors of #hypoparathyroidism and #hypocalcaemia after total #thyroidectomy. Read it here 👉 doi.org/10.1530/EO-24-…




Chronic #hypoparathyroidism is associated with low bone turnover & abnormally dense bone structure but new study finds 35% of postmenopausal women have #osteoporosis and recommends skeletal monitoring in postmenopausal women and men over 50 with hypopara link.springer.com/article/10.100…

Many thanks to Prof Neil Gittoes and Dr David Bull Talk for raising awareness of #PrimaryHyperparathyroidism. Watch here at 2.51 watch.talk.tv/watch/replay/1…


We’ll be excited to see Prof Neil Gittoes present these encouraging results from the phase 3 Yorvipath by trial by AscendisPharma at the SfE BES endocrine conference in Harrogate next month. endocrine-abstracts.org/ea/0109/ea0109…

It's Rare Disease Day ! A time to raise awareness for all of those living with rare diseases. We are proud to support such a wonderful cause.


Fantastic start to #BES2025 with great talk by Prof Fadil Hannan on calcium homeostasis in pregnancy and lactation Society for Endo


We’re excited to be at the #SfEBES2025 this week where we'll be supporting the AscendisPharma #SeedsofChange awareness campaign and unveiling the #Hypopara Butterfly, presenting our patient survey results and talking about the UK HypOparathyroidism registry. Do visit our stand.



Final day at #SfEBES2025 with Chair of Endocrine Nurses Louise Breen's talk on the launch of the 3rd edition of the Society for Endo Competency Framework for Adult Endocrine Nursing & SfE's work with Patient Support Groups. 🩺 Read P279 - Adult Endocrine Nursing: endocrine-abstracts.org/ea/0109/ea0109…


AscendisPharma along with Parathyroid UK and the Society for Endo unveiled a butterfly mural on Monday. The artwork reflects the lived experiences of individuals with a serious condition called #hypoparathyroidism, commonly known as #hypopara. rarerevolutionmagazine.com/butterfly-mura…


We were very proud to have our poster accepted at #SfEBES2025 showing results of our patient survey on the burden of medication regimens in #hypoparathyroidism. Thank you to the brilliant doctor Atiya Kenworthy for representing us. AscendisPharma Society for Endo


Another great conference! Thanks to Society for Endo for having us, to all our dedicated medical advisors & speakers, to our friends at i@AscendisPharma and to our brilliant volunteers who, as patients with a rare condition, are just amazing for keeping going. #hypopara #SfEBES2025



Did you know that people with hypoparathyroidism may experience a range of physical, cognitive & emotional symptoms that can significantly impact their quality of life? We’re raising awareness with AscendisPharma’s #SeedsofChange campaign: seeds-of-change.com/UK/b


I am retiring as volunteer CEO of Parathyroid UK today after 20 years so I just wanted to thank you all for your wonderful support and say a heartfelt goodbye. It’s been the privilege of my life.
