Patient Worthy (@patientworthy) 's Twitter Profile
Patient Worthy

@patientworthy

We're a resource for engaging, informative content and rare patient news, well done.

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linkhttp://patientworthy.com/ calendar_today14-04-2015 16:35:25

25,25K Tweet

7,7K Followers

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Kelly Baughman shared her story living with neuroendocrine cancer, and how her journey inspired her to jump headfirst into the world of patient advocacy. Read more here: patientworthy.com/2025/07/11/fro…

Kelly Baughman shared her story living with neuroendocrine cancer, and how her journey inspired her to jump headfirst into the world of patient advocacy. Read more here:

patientworthy.com/2025/07/11/fro…
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A common mistake doctors make when treating COPD patients involves the misdiagnosis of certain symptoms, due to overlapping similarities with other conditions. Read more here: patientworthy.com/2025/07/11/the…

A common mistake doctors make when treating COPD patients involves the misdiagnosis of certain symptoms, due to overlapping similarities with other conditions. Read more here:

patientworthy.com/2025/07/11/the…
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The FDA has granted "orphan drug status" to a new chemotherapy treatment aimed at targeting biliary tract cancer. Read more here: patientworthy.com/2025/07/12/fda…

The FDA has granted "orphan drug status" to a new chemotherapy treatment aimed at targeting biliary tract cancer. Read more here:

patientworthy.com/2025/07/12/fda…
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The first patient has been dosed in a clinical trial for a new medication aimed at treating dry-AMD (age-related macular degeneration). Read more here: patientworthy.com/2025/07/13/fir…

The first patient has been dosed in a clinical trial for a new medication aimed at treating dry-AMD (age-related macular degeneration). Read more here:

patientworthy.com/2025/07/13/fir…
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The first-ever oral on-demand HAE treatment has been approved by the FDA. This medication, produced by KalVista, is a major breakthrough for HAE patients, who previously relied solely on injections. Read more here: patientworthy.com/2025/07/14/kal…

The first-ever oral on-demand HAE treatment has been approved by the FDA. This medication, produced by KalVista, is a major breakthrough for HAE patients, who previously relied solely on injections. Read more here:

patientworthy.com/2025/07/14/kal…
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Analyzing the benefits of Regular exercise for Cancer Patients bit.ly/4lFdSNf Read now at PatientWorthy.com #PatientWorthy #Cancer #CancerExercise #CancerResearch

Analyzing the benefits of Regular exercise for Cancer Patients bit.ly/4lFdSNf Read now at PatientWorthy.com
#PatientWorthy #Cancer #CancerExercise #CancerResearch
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Today is International Disability Awareness Day! A day to listen, learn, and lift up the voices of people with disabilities. Disability is not a limitation- it's part of human diversity. #DisabilityAwareness #AccessibilityForAll #CelebrateDifferences #PatientWorthy

Today is International Disability Awareness Day! A day to listen, learn, and lift up the voices of people with disabilities. Disability is not a limitation- it's part of human diversity. 
#DisabilityAwareness #AccessibilityForAll #CelebrateDifferences #PatientWorthy
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Achieving Global Excellence in Duchenne Muscular Dystrophy Care: The Accredited Duchenne Centers Program bit.ly/4645GSq Read now at PatientWorthy.com #PatientWorthy #DuchenneMuscularDystrophy #DMD #AccreditedDuchenneCentersProgram #WorldDuchenneOrganization

Achieving Global Excellence in Duchenne Muscular Dystrophy Care: The Accredited Duchenne Centers Program bit.ly/4645GSq Read now at PatientWorthy.com
#PatientWorthy #DuchenneMuscularDystrophy #DMD #AccreditedDuchenneCentersProgram #WorldDuchenneOrganization
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We're summarizing the FDA's approvals from June for various cancer treatments, ranging from lymphoma to prostate cancer to squamous cell carcinoma. Read more here: patientworthy.com/2025/07/15/jun…

We're summarizing the FDA's approvals from June for various cancer treatments, ranging from lymphoma to prostate cancer to squamous cell carcinoma. Read more here:

patientworthy.com/2025/07/15/jun…
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Real-World Outcomes of Ataluren in Duchenne Muscular Dystrophy: Evidence from the STRIDE Registry patientworthy.com/2025/07/15/rea… Read now at PatientWorthy.com #PatientWorthy #DMD #STRIDERegistry #nmDMD

Real-World Outcomes of Ataluren in Duchenne Muscular Dystrophy: Evidence from the STRIDE Registry patientworthy.com/2025/07/15/rea… Read now at PatientWorthy.com
#PatientWorthy #DMD #STRIDERegistry #nmDMD
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A revolutionary breakthrough in cell therapy research has shown promising results in restoring insulin in diabetics during clinical trials. Read more here: patientworthy.com/2025/07/15/bre…

A revolutionary breakthrough in cell therapy research has shown promising results in restoring insulin in diabetics during clinical trials. Read more here:

patientworthy.com/2025/07/15/bre…
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A breakthrough in CAR-T cell therapy suggests a potential boon for multiple myeloma patients, with an increase in long-term survival rates even in advanced cases. Read more here: patientworthy.com/2025/07/16/a-p…

A breakthrough in CAR-T cell therapy suggests a potential boon for multiple myeloma patients, with an increase in long-term survival rates even in advanced cases. Read more here:

patientworthy.com/2025/07/16/a-p…
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Preventative medicine can help lower the risk of developing certain conditions, and proper nutrition is one of the most reliable forms of preventative medicine out there! For more information about how to utilize food to combat chronic illness, read here: patientworthy.com/2025/07/16/foo…

Preventative medicine can help lower the risk of developing certain conditions, and proper nutrition is one of the most reliable forms of preventative medicine out there! For more information about how to utilize food to combat chronic illness, read here:

patientworthy.com/2025/07/16/foo…
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Brogidirsen and the Promise of Exon 44 Skipping: New Horizons in RNA Therapy for Duchenne Muscular Dystrophy bit.ly/4nFvqur Read now at PatientWorthy.com #PatientWorthy #DuchenneMuscularDystrophy #DMD #Exon44

Brogidirsen and the Promise of Exon 44 Skipping: New Horizons in RNA Therapy for Duchenne Muscular Dystrophy bit.ly/4nFvqur Read now at PatientWorthy.com
#PatientWorthy #DuchenneMuscularDystrophy #DMD #Exon44
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Glioblastoma Awareness Day is July 16th! Glioblastoma (GBM) is the most aggressive and deadly form of brain cancer. GBM grows rapidly and infiltrates healthy brain tissue, making full removal nearly impossible. #GlioblastomaAwarenessDay #BrainCancerAwareness #PatientWorthy

Glioblastoma Awareness Day is July 16th!
Glioblastoma (GBM) is the most aggressive and deadly form of brain cancer. GBM grows rapidly and infiltrates healthy brain tissue, making full removal nearly impossible. #GlioblastomaAwarenessDay #BrainCancerAwareness #PatientWorthy
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New research suggests your gut health may indicate how well you might do in/after ICU. Read more here: patientworthy.com/2025/07/17/gut…

New research suggests your gut health may indicate how well you might do in/after ICU. Read more here:

patientworthy.com/2025/07/17/gut…
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European Commission Approves Groundbreaking Therapy for Duchenne Muscular Dystrophy bit.ly/46B5B8R Read now at PatientWorthy.com #PatientWorthy #DuchenneMuscularDystrophy #EuropeanCommission

European Commission Approves Groundbreaking Therapy for Duchenne Muscular Dystrophy bit.ly/46B5B8R Read now at PatientWorthy.com
#PatientWorthy #DuchenneMuscularDystrophy #EuropeanCommission
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Positive news for HAE patients: the FDA has approved the first oral on-demand therapy designed to treat acute HAE attacks. Read more here: patientworthy.com/2025/07/17/fda…

Positive news for HAE patients: the FDA has approved the first oral on-demand therapy designed to treat acute HAE attacks. Read more here:

patientworthy.com/2025/07/17/fda…
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Takeda has announced a novel drug designed to help those living with narcolepsy, with promising results from clinical trials so far. Read more here: patientworthy.com/2025/07/18/tak…

Takeda has announced a novel drug designed to help those living with narcolepsy, with promising results from clinical trials so far. Read more here:

patientworthy.com/2025/07/18/tak…
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New Duchenne Drug Offers Hope to Young Patient Losing Ability to Walk bit.ly/4eOsGas Read now at PatientWorthy.com #PatientWorthy #DuchenneMuscularDystrophy #DMD

New Duchenne Drug Offers Hope to Young Patient Losing Ability to Walk bit.ly/4eOsGas Read now at PatientWorthy.com
#PatientWorthy #DuchenneMuscularDystrophy #DMD