The Patient Story (@patient_story) 's Twitter Profile
The Patient Story

@patient_story

We #HumanizeCancer - You are not alone ❤️. Your voice matters, share your story! ✍️ [email protected] Founded by #cancer #survivor @stephchuang 🙋🏻

ID: 804811286106161152

linkhttp://www.thepatientstory.com calendar_today02-12-2016 22:15:38

2,2K Tweet

946 Followers

507 Following

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

When I was going through chemo in 2017, going bald + down a dark spiral, the Golden State Warriors and their incredible run lifted my spirits. I consumed SO MUCH NBA via TV and podcasts. I watched nothing else (just ask my husband, he had to remind me they couldn't hear my "light coaching

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Who gets shafted? Patients and their families who NEED access to medicines that are getting more $$$!!! I need to do more research on what appears to be an unnecessarily (by design) convoluted system but this 🧵 is incredibly well laid out. We also interviewed Vincent Rajkumar of

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

In 1 hour: The Leukemia & Lymphoma Society's National Blood Cancer Conference. Join me virtually! I have the pleasure of kicking things off with a discussion about the power of stories (and how each one of you can make an impact). Then many of the country's top #cancer specialists will be available

Urology@UNC (@uncurology) 's Twitter Profile Photo

.The Patient Story is hosting a free community event in Raleigh on 10/5. Hear experts such as Dr. Ray Tan discuss cancer types, symptoms & treatments. The event features local health services & vendors, music/entertainment and lunch. UNC Lineberger bit.ly/47BwsAj

.<a href="/Patient_Story/">The Patient Story</a> is hosting a free community event in Raleigh on 10/5. Hear experts such as Dr. <a href="/tanray22/">Ray Tan</a> discuss cancer types, symptoms &amp; treatments. The event features local health services &amp; vendors, music/entertainment and lunch. <a href="/UNC_Lineberger/">UNC Lineberger</a>  bit.ly/47BwsAj
Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Such great discussion here in City of Raleigh at NC State University about why many in the Black & African-American community do not go to the doctor, much less know about #cancer #screenings and #clinicaltrials. Join us The Patient Story live online 👇thepatientstory.com/care-for-us-al…

Such great discussion  here in <a href="/RaleighGov/">City of Raleigh</a> at <a href="/NCState/">NC State University</a> about why many in the Black &amp; African-American community do not go to the doctor, much less know about #cancer #screenings and #clinicaltrials. 

Join us <a href="/Patient_Story/">The Patient Story</a> live online 👇thepatientstory.com/care-for-us-al…
Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Moderating a #patient #advocacy panel here at a room full of oncologists and HCPs in #cancer #care focused on the promise of precision medicine. For patients, this is critical. We won't know what is possible unless the communication is clear. 👇 Thanks to ANCO &

Moderating a #patient #advocacy panel here at a room full of oncologists and HCPs in #cancer #care focused on the promise of precision medicine. 

For patients, this is critical. We won't know what is possible unless the communication is clear. 👇

Thanks to <a href="/ANCO_News/">ANCO</a> &amp;
Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Join our "Living Strong with MPN" program happening now LIVE featuring Stephen Oh & Dr. Amy Zhou of WashU Medicine. Just now from Dr. Oh (snippets) on anemia and the impact: "It is a significant problem. Patients with myelofibrosis, anemia is a significant risk factor as it

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Also on clinical trials: "Participation is very individualized because every patient is different so you have to choose for yourself what fits best. In regards to why we think clinical trials are so important is because (for treatment) for some MPN patients we can do better than

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Kudos to Dr. Zhou for bringing up #fertility as a consideration for patients worried about impacts of both the disease and treatment side effects - she mentions in addition to talking to you hematologist-oncologist, some places (like WashU Medicine) offer someone like a fertility

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

I remember being so lost in the hospital bed as I faced my cancer diagnosis. So many emotions. This is why I made time for this “side conversation” at #ASH24, one I hope will be on main stages soon: Emotional impact of a cancer diagnosis and the support given (or lack thereof)

I remember being so lost in the hospital bed as I faced my cancer diagnosis. So many emotions. 

This is why I made time for this “side conversation” at #ASH24, one I hope will be on main stages soon: Emotional impact of a cancer diagnosis and the support given (or lack thereof)
U.S. Surgeon General (@surgeon_general) 's Twitter Profile Photo

NEW: Today, I’m releasing a Surgeon General’s Advisory on the causal link between alcohol consumption and increased cancer risk. Alcohol is the 3rd leading preventable cause of cancer in the U.S., contributing to about 100,000 cancer cases and 20,000 cancer deaths each year.

NEW: Today, I’m releasing a Surgeon General’s Advisory on the causal link between alcohol consumption and increased cancer risk. Alcohol is the 3rd leading preventable cause of cancer in the U.S., contributing to about 100,000 cancer cases and 20,000 cancer deaths each year.
Margo  R. Wickersham (@margowickersham) 's Twitter Profile Photo

@BladderCancer Patients - Sharing your story helps others struggling with this perplexing disease. I invite you to share whatever you feel comfortable sharing with The Patient Story, like I did. thepatientstory.com/patient-storie…

Stephanie Chuang (@stephchuang) 's Twitter Profile Photo

Join us LIVE now for a The Patient Story virtual discussion on the latest developments in non-Hodgkin lymphoma treatments/research. 👇thepatientstory.com/patient-events… Special thanks to docs like Tycel Phillips of City of Hope & Andrew M. Evens, DO, MBA, MSc of Rutgers Cancer Institute for spending so much time

Tom Hulsey (@tomhulsey) 's Twitter Profile Photo

Trailer - using my experiences to empower, educate, and inspire others. The Patient Story - "Human Answers to Your Cancer Questions" #cancer Full interview: youtu.be/DJIZvWBIBEs?si… youtube.com/watch?v=TgN2t6…

The Patient Story (@patient_story) 's Twitter Profile Photo

LIVE NOW: Great convo happening between two MPN (myeloproliferative neoplasms) experts - Dr. John Mascarenhas of The Tisch Cancer Institute Mount Sinai Health System and MPN #patient #advocate Andrew Schorr. 👩‍⚕️ Katherine Kan is here answering questions live! She's a Nurse Practitioner, Leukemia

LIVE NOW: Great convo happening between two MPN (myeloproliferative neoplasms) experts - Dr. John Mascarenhas of <a href="/TischCancer/">The Tisch Cancer Institute</a> <a href="/MountSinaiNYC/">Mount Sinai Health System</a>
and MPN #patient #advocate <a href="/andrewschorr/">Andrew Schorr</a>.  👩‍⚕️

 Katherine Kan is here answering questions live! She's a Nurse Practitioner, Leukemia