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Nicole died of 100% fatal #ALS leaving behind her husband & 2 young children. #ALS patients endure EXTREME suffering & die denied access to safe/effective #Nurown. #ALS patients now/future diagnosed need Congress to tell Dr. Robert M. Califf to review the BLA for #Nurown & approve NOW

Time to #EndALS. Join us. Become an advocate for change. #ALS

A group of incredible advocates are turning heartbreak into action by using their stories to force Congress into action. Join them by sending Rebecca's story to your senators and representative using this action. iamals.org/action/rebecca…

Wow. Looks like their biggest expenses are salaries. And the people they are supposed to be helping are suffering Sheree Paolello WLWT

Today. I would travel anywhere in the world, at my expense, if I were guaranteed I would receive #NurOwn for a year.

Kathy Poirier passed away today. You may remember this beautiful & talented woman from this tearjerker of a mother-son wedding dance to Tim McGraw ... or you may have seen some of her amazing paintings that she did holding the brush in her mouth. foxnews.com/lifestyle/mom-…

This is Kathy's letter to the FDA. "The reason I share these stories with you is because I too have ALS. I was diagnosed in January of 2019, and I quickly jumped on the NurOwn trial, was accepted, and discovered that I received the treated cells. So for five years, I have

Brooke disrupts the stereotype that #LouGehrig disease is only a disease of old men. Follow her in May to learn about #ALS #ALSAwarenessMonth #EndALS #neurotwitter #HerALSstory

Hope is his superpower, progress is his legacy. Celebrate Brian Wallach in #ForLoveAndLife: No Ordinary Campaign, streaming May 28.

BREAKING NEWS: I am freaking out with excitement to share that No Ordinary Campaign will be streaming on Prime Video May 28th! Please share the trailer below with everyone so that, together, we can change the world. #ForLoveAndLife #NoOrdinaryCampaign

Everyone is about to have a new favorite superhero movie: Brian & Sandra’s incredible story fighting for a cure will now be know to the entire world - thrilled for I AM ALS and grateful for Prime Video. Follow Brian Wallach & Sandra Abrevaya to learn more!

Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!

A cool thing happed today. A new website went live that features Synapticure, I AM ALS, and our documentary, For Love and Life : No Ordinary Campaign, all in one place. I hope you will check it out as it is pretty awesome. forloveandlifefilm.com

When Brian Wallach was diagnosed with ALS, he was given six months to live. Brian Wallach and Sandra Abrevaya’s film, For Love & Life: No Ordinary Campaign, chronicles their incredible journey, and proves that all of us are far more powerful than we know. I hope you’ll watch it on Prime

A shoutout from Barack Obama was not on our 2024 bingo card, but boy will we take it!!

Thank you Sheree Paolello WLWT and MikeDardisWLWT for this story. You know we are fighting for our lives and we appreciate you fighting beside us.

Im a movie star! Check it off my bucket list!

Huge thank you to Rep. Marcy Kaptur Congressman Greg Landsman and Sherrod Brown offices for meeting with us to talk about the fight for our lives. #NurownNow #NoWhiteFlags