How can goal setting be used in clinical trials as an outcome measure, to help focus on what matters most to the people your research is trying to help! This AMRG paper describes how we used goal-setting as our primary outcome in PRIME Parkinson - read it here sciencedirect.com/science/articl…

A fantastic day meeting participants to hear their feedback on our #Parkinson’s trial. When asked if they'd take part again, we were so pleased to see a resounding ‘Yes’! We remain committed to PPIE, ensuring our research is shaped by those it’s designed to help.

Are you a gym member ready to challenge your trainers and support Parkinson’s awareness? Sign up for the Challenge the Trainer campaign this April! Get your gym to take part in three amazing challenges inspired by Parkinson’s statistics. Find out more: buff.ly/oLXnHeq

Do you need some high protein, nutrient dense snack ideas? Protein intake is vital for everyone to build and maintain muscle mass and strength. Or perhaps you have been told to try and have more small snacks between meals to help maintain your weight! Here are a few ideas:

Session ⁦British Geriatrics Society⁩ #bgsconference on movement disorders, reminds me of importance of admin of time critical meds as highlighted by ⁦Adrian Boyle⁩ recently ⁦Louise Organista⁩

In 2024, we ran 7 sessions on Patient and Public Involvement and Engagement! From our PPIE showcase and helping to share knowledge amongst researchers, to in person PPIE sessions to help shape our research, we're committed to keeping people at the center of our research #PPIE

It was so amazing to hear this feedback from one of our PRIME participants at the recent Ageing and Movement Research Group Bristol outreach event ! The 'E' in PRIME stands for Empowerment, so we were so pleased with this feedback

We'd just like to wish a very happy International Nurses Day too all the incredible nurses out there 💙💜 thank you for all the care you provide and the amazing work you do #IND2025 #InternationalNursesDay

Volunteers needed! 📣 We're looking for adult volunteers to help us shape and develop our smart clothing within the VIVO Hub Project. See the flyer for more information!!! If you can't scan the QR code you can register here: forms.office.com/e/crd8A6NVq1 Age UK (now @age_uk) Age UK Gloucestershire

An overview and refresher on what’s involved in the PRIME Parkinson trial which is entering the final few weeks of follow up and data collection! 🥳

Last Friday, the PRIME team had their final testing day at the ReMind UK Centre in Bath ! This marks the end of over two years of trial assessments, we're so grateful to ReMind for providing this research space and to all our participants and their caregivers for their time!

Since our last participant finished the trial, the PRIME team have been working hard behind the scene! Collecting and inputting data, checking queries, and starting the analysis of the trial results! We're so excited to share these in due course so make sure you're following!

It’s common that when asked about Parkinson’s Disease, people think of a tremor. However, Parkinson's is so much more! There are over 40 possible motor and non-motor symptoms, affecting the entire body, and not just movement !

A balanced diet is crucial in improving health and managing symptoms, such as easing constipation, boosting mood, improving bone density and maintaining a healthy weight. Tip: both dairy and non-dairy alternative contain the required calcium and nutrients !

Some participant feedback from our PRIME study showing their appreciation for the easy and quick access to speak with the PRIME team !

This statistic has been increasing, and it is predicted that 172,000 people in the UK will be diagnosed with Parkinson’s Disease by 2030.