Pheo Para Alliance (@pheopara) 's Twitter Profile
Pheo Para Alliance

@pheopara

Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para

ID: 790332840319733760

linkhttp://www.pheopara.org calendar_today23-10-2016 23:23:27

10,10K Tweet

1,1K Followers

646 Following

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

Have you been seen at U of Texas Southwestern (Dallas) in the past year for #pheo #para #PPGL? Take this short survey about your experience in support of its PPA Center of Excellence application. 📝 👉pheopara.org/2025/04/utsw

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

Have you been seen Addenbrookes Hospital at Cambridge University in the past year for #pheo #para #PPGL? Patient feedback is important in support of its continued PPA Center of Excellence status. Take this short survey about your experience.📝 👉pheopara.org/2025/05/patien…

CORD (@raredisorders) 's Twitter Profile Photo

Living with a rare disease impacts every part of life. In Canada, your voice can spark real change. Share your experience in this survey to help push for better support, funding & policies. 👉 Take the survey: tinyurl.com/4j9mfmtp

NANETS (@nanets1) 's Twitter Profile Photo

Calling all healthcare providers! Your insights are crucial in transforming NET patient care. Complete the NETPact provider survey to help guide future educational resources and advocacy initiatives. 🔗 loom.ly/0LZed14 #ProviderSurvey #NETCare #NETPact #NANETS

Calling all healthcare providers! Your insights are crucial in transforming NET patient care. Complete the NETPact provider survey to help guide future educational resources and advocacy initiatives.

🔗 loom.ly/0LZed14 

#ProviderSurvey #NETCare #NETPact #NANETS
Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

📢Thur, May 29th, 2025, 9:30AM PST/12:30PM ET. Talk to #pheo #para #PPGL #PHriends from around the world who can relate to being affected by this disease. 🌎🌍🌏 pheopara.org/2025/04/daytim…

NET Cancer Day (@netcancerday) 's Twitter Profile Photo

📢Save the date: June 3rd, 6pm CET: the new ENETS webinar on “Most frequent confusions in NEN management”. ✅The webinar is free, prior registration is required: enets.org/upcoming-webin… #LetsTalkAboutNETs #MedTwitter #MedEd #OncTwitter #EndoTwitter

📢Save the date: June 3rd, 6pm CET: the new <a href="/ENETS_ORG/">ENETS</a>  webinar on “Most frequent confusions in NEN management”. 
✅The webinar is free, prior registration is required: enets.org/upcoming-webin…
#LetsTalkAboutNETs #MedTwitter #MedEd #OncTwitter #EndoTwitter
Endocrine Society (@theendosociety) 's Twitter Profile Photo

ENDO Advance Registration ends today at 11:59 PM ET. Hurry, register now to attend the leading global meeting on endocrinology research and clinical care at the lowest remaining rate: bit.ly/4i4SDmw #ENDO2025 #endocrinology

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

We love it when the Birmingham Adrenal Team meets 👏👏👏-- hopefully, to discuss interesting topics like #pheo #para #PPGL! 😁 #teamwork #multidisciplinary #adrenal Cristina Ronchi

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

Thanks to Dr. Smita Abraham for mentioning #pheochromocytoma around minute 23 in your #NADF podcast & for recommending being an advocate for yourself to get to diagnosis/treatment as soon as possible. 👏👏👏

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

A skilled team is necessary to manage the complexities of #pheo #para #PPGL disease. Check out one of our Centers of Excellence to find experienced health care providers. 👉bit.ly/39VckiU

A skilled team is necessary to manage the complexities of #pheo #para #PPGL disease. Check out one of our Centers of Excellence to find experienced health care providers. 
👉bit.ly/39VckiU
Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

Outstanding that #PrimaryCarePhysicians around the 🌎🌍🌏are taking an interest in broadening their #NENs knowledge -- including #pheo #para #PPGL. A grateful #RareDisease patient population thanks these curious health care providers! 👏👏👏 AAFP SGIM ACP

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

Congratulations! 👏🎉We wish Professor Arlt much success in this important European Society of Endocrinology (ESE) role! If you need any #pheo #para #PPGL resources, we're here for you!

VHL Alliance (@vhlalliance) 's Twitter Profile Photo

Want to attend VHL Family Weekend 2025 in Ann Arbor, Michigan, but worried about travel costs? We're offering travel scholarships of up to $500 to help make this weekend accessible. Apply by June 12 to be considered. Click here to apply now! docs.google.com/forms/d/e/1FAI…

Want to attend VHL Family Weekend 2025 in Ann Arbor, Michigan, but worried about travel costs?

We're offering travel scholarships of up to $500 to help make this weekend accessible.

Apply by June 12 to be considered. Click here to apply now! docs.google.com/forms/d/e/1FAI…
NANETS (@nanets1) 's Twitter Profile Photo

Nominations are open for the 2025 NANETS Awards! 🏆 Help us recognize excellence in NET research, clinical practice, mentorship, and diversity initiatives. Learn more & nominate: nanets.net/about/nanets-a… #NANETSAwards

Pheo Para Alliance (@pheopara) 's Twitter Profile Photo

🗓️Tue, June 3, 5:30pm PST/8:30pm ET Join us as we share & connect about our #pheo #para #PPGL journey in a monthly meeting led by patients just like you. Everyone will have an opportunity to introduce themselves & share.⁠ 🫂 👉pheopara.org/2025/05/monthl…

🗓️Tue, June 3, 5:30pm PST/8:30pm ET
Join us as we share &amp; connect about our #pheo #para #PPGL journey in a monthly meeting led by patients just like you. Everyone will have an opportunity to introduce themselves &amp; share.⁠ 🫂
👉pheopara.org/2025/05/monthl…