PsA HQ (@psazzgroup) 's Twitter Profile
PsA HQ

@psazzgroup

Life with Psoriatic Arthritis, advocacy, research, podcaster & peer support and stuff (not medical expert, opinions my own) I'm also on πŸ¦‹ IYKYK

ID: 2573049678

calendar_today17-06-2014 15:04:24

3,3K Tweet

1,1K Followers

2,2K Following

PAPAA (@psoriasisinfo) 's Twitter Profile Photo

Discover fresh insights on psoriatic disease from smoking to the Patient Initiated Follow-Up that is empowering patient care #Psoriasis #PsoriaticDisease #PsoriasisResearch #GeneticsAndPsoriasis #PsoriasisTreatment #SmokingAndPsoriasis #skin #bones #PIFU papaa.org/news/current-f…

Discover fresh insights on psoriatic disease from smoking to the Patient Initiated Follow-Up that is empowering patient care #Psoriasis #PsoriaticDisease #PsoriasisResearch #GeneticsAndPsoriasis #PsoriasisTreatment #SmokingAndPsoriasis #skin #bones #PIFU

papaa.org/news/current-f…
Dr Jo Daniels (@drjodaniels) 's Twitter Profile Photo

It was a pleasure to speak Bath Institute for Rheumatic Diseases (BIRD) on #Raynauds particularly at this time of year when people with Raynauds will be struggling with symptoms. Interested? Give it a listenπŸ‘‡πŸŽ§ SRUK | Scleroderma & Raynaud's UK Raynaud's Assn. Raynaud's Disease @scleroderma Research studies posted below ⬇️

Hippocrates-IMI (@hippocrates_imi) 's Twitter Profile Photo

As the year draws to a close, we reflect on the milestones that lie ahead. We look forward to a new year of opportunities and results. The #HIPPOCRATES_IMI team will continue to work to accelerate research and treatment strategies for #psoriaticarthritis! HIPPO holidays!πŸŽ„πŸ¦›

As the year draws to a  close, we reflect on the milestones that lie ahead.  We look forward to a new year of opportunities and results. The #HIPPOCRATES_IMI team will continue to work to accelerate research and treatment strategies for #psoriaticarthritis! HIPPO holidays!πŸŽ„πŸ¦›
Cardio-Rheumatology Network (@cardiorheum_net) 's Twitter Profile Photo

Thank you Arthritis Society Canada for showcasing our study as one of the Top 10 Research Advances of 2024! Our team at Women's College Hospital | Research UofT Rheumatology is working hard effectively improve care for people with psoriatic arthritis. Published study: acrjournals.onlinelibrary.wiley.com/doi/10.1002/ar…

Thank you <a href="/ArthritisSoc/">Arthritis Society Canada</a> for showcasing our study as one of the Top 10 Research Advances of 2024! Our team at <a href="/WCHResearch/">Women's College Hospital | Research</a> <a href="/UofTRheum/">UofT Rheumatology</a>  is working hard effectively improve care for people with psoriatic arthritis. Published study: acrjournals.onlinelibrary.wiley.com/doi/10.1002/ar…
Francesca Martinez (@chessmartinez) 's Twitter Profile Photo

Seems like a good time to point out that the official fraud rate for PIP (the disability benefit) in 2024 was ZERO!! PIP has the lowest fraud rate of any benefit. So... why are Labour trying to push more disabled people off PIP???!!!

Seems like a good time to point out that the official fraud rate for PIP (the disability benefit) in 2024 was ZERO!!

PIP has the lowest fraud rate of any benefit.

So... why are Labour trying to push more disabled people off PIP???!!!
DWP Spin Decoder (@leith1076) 's Twitter Profile Photo

Labour argue that cutting PIP is about "dignity in work". However, PIP has nothing to with work and cutting it has nothing to do with dignity. #DisabilityBenefits

Psoriasis Association (@psoriasisuk) 's Twitter Profile Photo

We're excited to announce the agenda of 'Right Treatment: Right Time' The Psoriasis Association's Annual Meeting for 2025. Taking place on Saturday 28th June at County Hall in London, we have a fantastic line up of speakers. Booking info to be announced soon!

We're excited to announce the agenda of 'Right Treatment: Right Time' The Psoriasis Association's Annual Meeting for 2025.

Taking place on Saturday 28th June at County Hall in London, we have a fantastic line up of speakers.

Booking info to be announced soon!
Scope (@scope) 's Twitter Profile Photo

βœ‚οΈ The government wants to cut Β£5billion a year from the benefits system by 2030. It’s time to keep the pressure on and oppose these shameful plans.

Psoriasis Association (@psoriasisuk) 's Twitter Profile Photo

Our Vice-Chair trustee, Russ, has lived with psoriatic arthritis for 40 years and is urging people with #psoriasis to take part in the HPOS study Researchers are trying to find out what triggers #PsoriaticArthritis with this study funded by National Institute for Health and Care Research ow.ly/O0KJ50Vh9fW

Our Vice-Chair trustee, Russ, has lived with psoriatic arthritis for 40 years and is urging people with #psoriasis to take part in the HPOS study

Researchers are trying to find out what triggers #PsoriaticArthritis with this study funded by <a href="/NIHRresearch/">National Institute for Health and Care Research</a> ow.ly/O0KJ50Vh9fW
Bath Institute for Rheumatic Diseases (BIRD) (@birdbathcharity) 's Twitter Profile Photo

We are here at #BSR25 BSR Conference. First day involved a short talk to introduce delegates to BIRD and then it's so nice to start seeing many of our bursary recipients from the Royal National Hospital for Rheumatic Diseases come and visit our stand. πŸ˜€

We are here at #BSR25 <a href="/RheumatologyUK/">BSR</a>  Conference. First day involved a short talk to introduce delegates to BIRD and then it's so nice to start seeing many of our bursary recipients from the Royal National Hospital for Rheumatic Diseases come and visit our stand. πŸ˜€
PsA HQ (@psazzgroup) 's Twitter Profile Photo

Hi Rheum friends - sorry I can't bring you the #patientvoice from #BSR25 this year. There has been registration complications so I do not have remote access as in previous years. It's a real shame because our insights and voice matter tooπŸ–οΈ #rheumatology #researchpartners

Hi Rheum friends - sorry I can't bring you the #patientvoice from #BSR25 this year. There has been registration complications so I do not have remote access as in previous years. It's a real shame because our insights and voice matter tooπŸ–οΈ  #rheumatology #researchpartners
Dr Ai Lyn Tan (@drailyntan) 's Twitter Profile Photo

Combined #Mediterranean–Ketogenic diet in patients with #psoriasis #PsoriaticArthritis led to βœ…Reduced disease activity βœ…Reduced inflammation 🌟Favourable effects mainly due to #ketogenic #diet πŸ‘‰πŸΌmdpi.com/1422-0067/25/5… via William Tillett #BSR25

Combined #Mediterranean–Ketogenic diet in patients with #psoriasis #PsoriaticArthritis led to
βœ…Reduced disease activity
βœ…Reduced inflammation

🌟Favourable effects mainly due to #ketogenic #diet
πŸ‘‰πŸΌmdpi.com/1422-0067/25/5…

via <a href="/DrWTillett/">William Tillett</a> #BSR25
Atlanta πŸ¦ΉπŸ»β€β™€οΈ #DisabilityRebellion (@areyoflight) 's Twitter Profile Photo

Disabled people are more likely than non-abled people to be in poverty. These cuts will force Disabled people into deeper poverty, leaving the already-stretched NHS and public services to pick up the pieces. #DisabilityRebellion #MayDay #TaxTheRich #WelfareNotWarfare

Disabled people are more likely than non-abled people to be in poverty. These cuts will force Disabled people into deeper poverty, leaving the already-stretched NHS and public services to pick up the pieces.

#DisabilityRebellion #MayDay #TaxTheRich #WelfareNotWarfare
Psoriasis Association (@psoriasisuk) 's Twitter Profile Photo

Up to a third of people living with #psoriasis will go on to develop #PsoriaticArthritis. The HPOS study aims to help us understand why this happens, allowing us to better predict who is at risk and work towards improving prevention measures. Researchers are looking to hear

Versus Arthritis (@versusarthritis) 's Twitter Profile Photo

As the UK’s leading arthritis charity, we are determined to fight against these reforms and call on the Chancellor Rachel Reeves to rethink these devastating cuts. Read more on this issue: theguardian.com/society/2025/m… Deborah Alsina (also on Blue Sky)

Deborah Alsina (also on Blue Sky) (@deborahalsina) 's Twitter Profile Photo

People with arthritis and other musculoskeletal conditions are predicted to be worst hit by these reforms. People with arthritis are the largest group in receipt of PIP. Many use it to help them get to work so this doesn't add up.

Steve Darling MP (@stevedarlingmp) 's Twitter Profile Photo

🚨 PIP Cuts: The Government Must Change Course 🚨 New data has revealed that 87% of PIP claimants in Torbay could lose at least some of their benefit due to the Government’s planned cuts. This is utterly unacceptable, and I am fighting to ensure the Government reverses these

NASS (@nassexercise) 's Twitter Profile Photo

Do you have a free minute today? Why not fit in a quick arm and shoulder stretch using any doorway in your home? AStretch_Physio #AxialSpA #AxialSpondyloarthritis #AnkylosingSpondylitis

NRAS (@nras_uk) 's Twitter Profile Photo

Living with rheumatoid or inflammatory arthritis? You're not alone. NRAS offers free local support groups across the UKβ€”perfect for sharing experiences, hearing from guest speakers, and meeting others who get it. Run entirely by volunteers! πŸ“ In-Person Support Group Events 9

Living with rheumatoid or inflammatory arthritis? You're not alone. NRAS offers free local support groups across the UKβ€”perfect for sharing experiences, hearing from guest speakers, and meeting others who get it. Run entirely by volunteers!
 
πŸ“ In-Person Support Group Events
9