
QUOKKA Research Program
@quokka_research
The QUOKKA Research Program aims to strengthen tools and evidence on health outcomes in paediatric populations to improve decision making.
ID: 1435107649897439235
http://www.quokkaresearchprogram.org 07-09-2021 05:09:32
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Today QUOKKA Research Program presented some of the findings from our P-MIC study to PBAC, Australia's HTA body. It's great being able to share key results on pediatric HRQoL instruments! nance devlin Kim Dalziel Brendan Mulhern Renee Jones


Interested in knowing what evidence exists about the relative social value of health gains to children vs. adults? Our systematic review, jointly with @TORCH, has just been published in Chris Carswell 👇 link.springer.com/article/10.100…… Tessa Peasgood Richard Norman nance devlin

A new EuroQol webinar is coming soon 🙌 Professor nance devlin, Professor Kim Dalziel and Research Fellow Christine Mpundu-Kammbwa will present results from the QUOKKA Research Program project on improving measurement of children's HRQoL. Register now 👉 bit.ly/40qSiCU


Wonderful to see this collaborative review in print. We took a broad look at the evidence on whether the public prioritises children’s health gains. They do - mostly, but the evidence is interestingly mixed and nuanced. TORCH Study QUOKKA Research Program link.springer.com/article/10.100…

3/3 And a poster reporting an experimental version of the EuroQol EQ-5D-Y, modified for used in 2-4 year olds by Alexander van Heusden Kim Dalziel, which is part of our QUOKKA Research Program work, is on poster board 5065. I'll be around all morning if anyone wants to talk about our work!


QUOKKA will be presenting results from P-MIC & understanding proxy/self-report at this EuroQol 🗓️Webinar 22nd Nov. Details below! nance devlin Kim Dalziel Christine kaambwa Brendan Mulhern Professor Julie. Ratcliffe Registration is free 👉 shorturl.at/qswH3


In our EuroQol webinar *now* Dr Christine kaambwa presenting an overview of key studies and results from QUOKKA's work on proxy vs. self-report & pictorial enhancement Kim Dalziel nance devlin Professor Julie. Ratcliffe


1/2 When QUOKKA first started we undertook a review of methods for valuing child HRQoL (see conclusions 👇) paper here: tinyurl.com/ms6uvbmw A reporting checklist was clearly needed. So guess what - we did something about it! dr cate bailey nance devlin TORCH Study


2/2 RETRIEVE, a checklist for reporting pediatric utilities, now published here 🔽 tinyurl.com/4kkp7fez RETRIEVE will help to strengthen reporting of child HRQoL values, improving info for users & decision makers. dr cate bailey nance devlin TORCH Study Donna Rowen

Hooray! Our 1st QUOKKA paper in 2024 is now online! 'Psychometric Comparison of Adapted vs Original Versions of the EQ‑5D‑Y‑3L and ‑Y‑5L in Proxy Respondents for 2‑4 yr olds' ➡️doi.org/10.1007/s40273… big congrats to Alexander van Heusden & Kim Dalziel nance devlin Harriet Hiscock

Save the date!🗓️ March 21st ISPOR Australia Chapter event: "Measuring & valuing paediatric HRQoL for use in economic evaluation: Issues & solutions" featuring results from QUOKKA Research Program & TORCH Study More info here: tinyurl.com/3pvpe2x6 Brendan Mulhern Renee Jones nance devlin

We're delighted to announce that a set of QUOKKA papers on measuring child HRQoL will feature in a special issue of Pharmacoeconomics. The first 5 papers are online *now* - more soon ➡️tinyurl.com/ycxe7ce7 nance devlin Kim Dalziel Harriet Hiscock Brendan Mulhern Professor Julie. Ratcliffe

Fantastic EuroQol younger populations workshop talk tonight by Christine kaambwa on QUOKKA's work to develop and test pictorial and audio-assisted versions of the CHU9D. Lots of interesting discussion on the challenges involved! Professor Julie. Ratcliffe nance devlin Brendan Mulhern


Measuring HRQoL in <5 yr olds?🧒This new paper, using P-MIC data, reports CHU9D with guidance notes was valid & reliable and suitable for use by parents of 2-4yr olds. Xiuqin Xiong Kim Dalziel Brendan Mulhern Renee Jones nance devlin Melbourne Health Economics ➡️ link.springer.com/article/10.100…


Want to know how to use pediatric PROMs in *routine clinical care*? Harriet Hiscock & Renee Jones will be talking at this @ChildHealthAU event, presenting evidence from QUOKKA & Renee's PhD Kim Dalziel nance devlin All are welcome - register here: ➡️tinyurl.com/2p97zuah


*new* QUOKKA paper led by our Flinders Caring Futures Institute colleagues, with new evidence on how & why child vs proxy assessment of HRQoL differs. Key finding: what perspective the proxy completer takes is important Professor Julie. Ratcliffe Diana Khanna nance devlin ➡️tinyurl.com/bdzkwbfw
