RARE Science (@rare_science) 's Twitter Profile
RARE Science

@rare_science

We are a nonprofit research organization accelerating therapeutic solutions for patients and fostering research collaboration in the rare disease community.

ID: 2420960388

linkhttp://Rarescience.org calendar_today31-03-2014 19:15:19

467 Tweet

1,1K Followers

219 Following

Repositive.io (@repositiveio) 's Twitter Profile Photo
Repositive.io
@repositiveio

9 years ago

If we could lower barrier to access to data we could make a real difference to #rare #diseases - Christina Water at #BioDataWest

If we could lower barrier to access to data we could make a real difference to #rare #diseases - Christina Water at #BioDataWest
Manuel Corpas (@manuelcorpas) 's Twitter Profile Photo
Manuel Corpas
@manuelcorpas

9 years ago

#biodatawest RARE Science - giving hope to patients

#biodatawest <a href="/RARE_Science/">RARE Science</a> - giving hope to patients
Manuel Corpas (@manuelcorpas) 's Twitter Profile Photo
Manuel Corpas
@manuelcorpas

9 years ago

#biodatawest RARE Science can help gather info by combining similar diseases - they even have an app that collects info from patients

#biodatawest <a href="/RARE_Science/">RARE Science</a> can help gather info by combining similar diseases - they even have an app that collects info from patients
RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

9 years ago

We're so happy to see the #RAREBears have made themselves at home with #warriors Dylon, Ethan… instagram.com/p/BTX0eICFDDO/

The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

9 years ago

What are the Ehlers-Danlos syndromes? Check out ehlers-danlos.com for more information! #DazzleTogether

What are the Ehlers-Danlos syndromes? Check out ehlers-danlos.com for more information! #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

9 years ago

What are the Hypermobile Spectrum Disorders? Check out ehlers-danlos.com for more information! #DazzleTogether

What are the Hypermobile Spectrum Disorders? Check out ehlers-danlos.com for more information! #DazzleTogether
RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

9 years ago

ICYMI: We had our bear match for IFF FOXG1 last Sunday and bears are on their way home! #awareness #RAREBearArmy #donate #FOXG1syndrome x.com/Jimmay82/statu…

RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

9 years ago

May is #EhlersDanlosSyndrome Awareness Month! Check out some cool facts and #dazzletogether. #awareness #ehlersdanlosawareness #nonprofit x.com/TheEDSociety/s…

The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

9 years ago

What is Vascular Ehlers-Danlos Syndrome? Check out ehlers-danlos.com for more information. #DazzleTogether

What is Vascular Ehlers-Danlos Syndrome? Check out ehlers-danlos.com for more information. #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

9 years ago

If many forms of EDS are collagen disorders, can we take collagen supplements? Go to ehlers-danlos.com for more info. #DazzleTogether

If many forms of EDS are collagen disorders, can we take collagen supplements? Go to ehlers-danlos.com for more info. #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

9 years ago

Why do hypermobility spectrum disorders affect people differently? Check out ehlers-danlos.com for more information. #DazzleTogether

Why do hypermobility spectrum disorders affect people differently? Check out ehlers-danlos.com for more information. #DazzleTogether
RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

9 years ago

This is what #RAREScience is all about! Finding connections and, from there, cures. #ehlersdanlosawareness #raredisease #nonprofit x.com/TheEDSociety/s…

The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

8 years ago

But you don't look sick! Check out ehlers-danlos.com for more information. #DazzleTogether

But you don't look sick! Check out ehlers-danlos.com for more information. #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

8 years ago

Ehlers-Danlos patients often have GI comorbidities Learn more at bit.ly/2qQiQ2q #DazzleTogether

Ehlers-Danlos patients often have GI comorbidities Learn more at bit.ly/2qQiQ2q #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

8 years ago

Check out ehlers-danlos.com for more info #DazzleTogether

Check out ehlers-danlos.com for more info #DazzleTogether
The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo
The Ehlers-Danlos Society
@theedsociety

8 years ago

Check out ehlers-danlos.com for more info #DazzleTogether

Check out ehlers-danlos.com for more info #DazzleTogether
RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

8 years ago

Take a look into what life is like for children living with #EhlersDanlosSyndrome #awareness #dazzletogether x.com/TheEDSociety/s…

RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

8 years ago

Our goal is to send 1000 #RAREBears home this June! #Donate today to help w/ shipping &bring smiles around the world gofundme.com/SendARareBear

RARE Science (@rare_science) 's Twitter Profile Photo
RARE Science
@rare_science

8 years ago

Help our #boyscout earn is #Eagle! Partnering 2 build a global outreach program 4 #EDS, sending 1000 #RAREBears home rarescience.org/donate/

Help our #boyscout earn is #Eagle! Partnering 2 build a global outreach program 4 #EDS, sending 1000 #RAREBears home rarescience.org/donate/
Rare Genomics (@raregenomics) 's Twitter Profile Photo
Rare Genomics
@raregenomics

8 years ago

Thanks to our friends RARE Science for donating #RAREBears to 13 children who received free clinical whole genome sequencing from RGI!