ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile
ELSI - Rare Disease Research UK

@rdruk_elsi

Official Rare Disease UK ELSI account. Improving the lives of people with rare conditions via ethical, legal and social considerations.

ID: 1795417925018353664

linkhttps://rd-research.org.uk/node/elsi/ calendar_today28-05-2024 11:33:05

16 Tweet

26 Followers

322 Following

Manchester Rare Conditions Centre (@mft_imrare) 's Twitter Profile Photo

We are excited to announce the dates & venue for the 20th Manchester Dysmorphology Conference! Date: Sun 16th – Wed 19th November 2025. Venue: Hilton Hotel,Deansgate, Manchester. Check our socials & website(mrcc.org.uk) for updates on the conference Dian Donnai Siddharth Banka

Siddharth Banka (@smbanka) 's Twitter Profile Photo

🚨Job alert 🚨 NW GMSA Generation Study Operational Manager Advert link 👉nhsjobs.com/job/UK/Manches… Find out more about the study👉generationstudy.co.uk and genomicsengland.co.uk/initiatives/ne… NWGMSA Manchester Rare Conditions Centre Genomics England

Rare Disease Research UK (@rdrukhub) 's Twitter Profile Photo

🌟Would you like to share your views about clinical trials for rare conditions? Apply to join the focus group now! Application deadline: 13 October

ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

Delighted to see our Collaborators champion creative ways to deepen our understanding of genomic testing and communicate the complex impact it can have on those who have experienced it

ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

Very happy to have hosted Autumn 2024 GenethicsForum . Our lead PI Ramona Moldovan gave a great overview of the ELSI Node. Thank you to everyone who attended and joined in the discussions, especially our plenary speaker FOP Friends

Very happy to have hosted Autumn 2024 <a href="/GenethicsForum/">GenethicsForum</a> . Our lead PI <a href="/ramonazmoldovan/">Ramona Moldovan</a> gave a great overview of the ELSI Node. Thank you to everyone who attended and joined in the discussions, especially our plenary speaker <a href="/FOPFriends/">FOP Friends</a>
ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

📅Save the Date! 📢Our 1st Annual Conference is happening on 26 March 2025 at the Hyatt Regency, Manchester (same day as REOLUT - Rare Disease Research UK and EpiGenRare - Rare Disease Research UK Conferences & following the Rare Disease Research UK Node Annual Conference on 25 March 2025). 📷Stay tuned for registration and more information!

📅Save the Date!

📢Our 1st Annual Conference is happening on 26 March 2025 at the Hyatt Regency, Manchester (same day as <a href="/REOLUT/">REOLUT - Rare Disease Research UK</a> and <a href="/EpiGenRare/">EpiGenRare - Rare Disease Research UK</a> Conferences &amp; following the <a href="/RDRUKHub/">Rare Disease Research UK</a> Node Annual Conference on 25 March 2025).

📷Stay tuned for registration and more information!
ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

📢REGISTRATION NOW OPEN📢 🚨1st ELSI Conference 🗓️26 March 2025 🏢Hyatt Regency, Manchester Please register your attendance for free using the link or QR code below buytickets.at/rdrukepigenrar… Ramona Moldovan Rare Disease Research UK Anneke Lucassen #RareDisease #ELSI #rareconditions

📢REGISTRATION NOW OPEN📢

🚨1st ELSI Conference
🗓️26 March 2025
🏢Hyatt Regency, Manchester

Please register your attendance for free using the link or QR code below

buytickets.at/rdrukepigenrar…

<a href="/ramonazmoldovan/">Ramona Moldovan</a>
<a href="/RDRUKHub/">Rare Disease Research UK</a>
<a href="/annekeluc/">Anneke Lucassen</a> 
#RareDisease #ELSI #rareconditions
ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

📢1st ELSI Conference Agenda 🗓️26 March 2025 🏨Hyatt Regency, Manchester Please register your attendance for free using the link below: buytickets.at/rdrukepigenrar… Ramona Moldovan Rare Disease Research UK Vocal Gene People Genetic Alliance UK Unique #rareconditions #ELSI

📢1st ELSI Conference Agenda

🗓️26 March 2025
🏨Hyatt Regency, Manchester  

Please register your attendance for free using the link below:
buytickets.at/rdrukepigenrar…

<a href="/ramonazmoldovan/">Ramona Moldovan</a>
<a href="/RDRUKHub/">Rare Disease Research UK</a>
<a href="/letsgetvocal/">Vocal</a>
<a href="/GenePeopleUK/">Gene People</a> 
<a href="/GeneticAll_UK/">Genetic Alliance UK</a> 
<a href="/Unique_charity/">Unique</a> 
#rareconditions #ELSI
ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

🔔 Reminder! The 1st ELSI Conference is coming up soon! 🗓️ 26 March 2025 🏨 Hyatt Regency, Manchester 🎟️Don't miss out! Register for free now:buytickets.at/rdrukepigenrar… 🌟More information about the event can be found through the registration link above Rare Disease Research UK #rareconditions

ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

📢 Exciting news! The 1st ELSI Conference is just around the corner! 🗓 26th March 2025 📍 Hyatt Regency, Manchester 🎟 Secure your FREE spot now: buytickets.at/rdrukepigenrar… 🌟More information about the event can be found through the registration link above Rare Disease Research UK

📢 Exciting news! The 1st ELSI Conference is just around the corner!

🗓 26th March 2025
📍 Hyatt Regency, Manchester
🎟 Secure your FREE spot now: buytickets.at/rdrukepigenrar…

🌟More information about the event can be found through the registration link above

<a href="/RDRUKHub/">Rare Disease Research UK</a>
ELSI - Rare Disease Research UK (@rdruk_elsi) 's Twitter Profile Photo

📢Final Call: Registration Closes 10th March! 🌟1st ELSI Conference 🗓️26th March 2025 🏨Hyatt Regency, Manchester 🎟️FREE Registration: buytickets.at/rdrukepigenrar… Rare Disease Research UK