🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Congratulations to one of our Co-Investigators Dr Neil Roberts for securing another prestigious grant that aims to develop a new gene therapy for the rare bladder disease, Urofacial Syndrome.

Great opportunity for any rare disease early career researchers!

🌟Would you like to share your views about clinical trials for rare conditions? Apply to join the focus group now! Application deadline: 13 October

The UK Kidney Association Timothy_Bowen UK Renal Pharmacy Group Association of Nephrology Nurses UK BAPN Renal SpR Club @bda_renal When submitting proposals please consider session proposals that include adults and CYP to encourage a joined-up focus and facilitate greater participation of paediatric nephrology teams at the meeting! BAPN The UK Kidney Association Kidney Research UK

Very happy to have hosted Autumn 2024 GenethicsForum . Our lead PI Ramona Moldovan gave a great overview of the ELSI Node. Thank you to everyone who attended and joined in the discussions, especially our plenary speaker FOP Friends

📢 New post 📢 Research Associate: ELSI in Genomics 📝Opportunity to join our team in Manchester. Role focused on understanding needs of families taking part in clinical trials for rare conditions Rare Disease Research UK ELSI - Rare Disease Research UK Medical Research Council National Institute for Health and Care Research UoM Biology, Medicine and Health bit.ly/4dwnw0o

🚨Job alert We are hiring! jobs.manchester.ac.uk/Job/JobDetail?… #ResearchAssociate #RareDisease #ELSI #Genomics Manchester Rare Conditions Centre Rare Disease Research UK Evolution, Infection and Genomics (EIG) UoM UoM Biology, Medicine and Health

Great resource for #PrimaryCare on #CKD from Imperial NHS 💙 #kidney giants Jeremy Levy Andrew Frankel

📅 Save the Date! 📢Our 2nd Annual Conference is happening on 26 March 2025 at the Hyatt Regency, Manchester (same day as ELSI - Rare Disease Research UK and EpiGenRare - Rare Disease Research UK Conferences & following the RDRUK Node Annual Conference on 25 March 2025). 📷Stay tuned for registration and more information!

A warm welcome from the new president of the #societyforhumangenetics Bill Newman! As the website is already live, check out the first information about #eshg2025 such as preliminary programme, confirmed speakers and plan your visit to Milan already now: 2025.eshg.org

📢REGISTRATION NOW OPEN📢 🚨2nd REOLUT Conference 🗓️26 March 2025 🏢Hyatt Regency, Manchester Please register your attendance using the link or QR code below buytickets.at/rdrukepigenrar… Bill Newman Melanie Chan Rare Disease Research UK #RareDisease #PPIE

📢REGISTRATION NOW OPEN📢 🚨1st ELSI Conference 🗓️26 March 2025 🏢Hyatt Regency, Manchester Please register your attendance for free using the link or QR code below buytickets.at/rdrukepigenrar… Ramona Moldovan Rare Disease Research UK Anneke Lucassen #RareDisease #ELSI #rareconditions

📢AGENDA ANNOUNCED 📢 🚨2nd REOLUT Conference 🗓️26 March 2025 📷Hyatt Regency, Manchester Registration - buytickets.at/rdrukepigenrar… Poster submission - forms.office.com/e/Y6SiDDBZmj Bill Newman Melanie Chan Rare Disease Research UK #RareDisease #PPIE

🚨Keynote Speaker Announcement 🚨 🎙️Prof. Jenny Rohn - UCL 📢"How to model the lining of the human urinary tract in the laboratory." ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Tickets: buytickets.at/rdrukepigenrar… Prof Jennifer L. Rohn Rare Disease Research UK

📢FINAL CALL FOR ABSTRACTS 📢 🚨2nd REOLUT Conference 🏨Hyatt Regency Manchester 1 week to go until the submission deadline! Don't forget to.. ✨Register: buytickets.at/rdrukepigenrar… ✨Submit your abstract: forms.office.com/e/Y6SiDDBZmj Bill Newman Melanie Chan Rare Disease Research UK

🚨Keynote Speaker Announcement 🚨 🎙️Dr. Sean Gavan - University of Manchester 📢“Health economics of gene therapy for a rare urinary tract disease" ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Tickets: buytickets.at/rdrukepigenrar… Sean Gavan Rare Disease Research UK

🚨1 WEEK LEFT TO REGISTER IN-PERSON 🚨 ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Registration: buytickets.at/rdrukepigenrar… Bill Newman Melanie Chan Rare Disease Research UK

🚨1 WEEK TO GO & SPEAKER ANNOUNCEMENT🚨 🎙️Mr. Sebastian Osorio Rico - University of Antioquia 📢“Living with a REOLUT condition" ✨2nd REOLUT Conference 🗓️26th March 2025 🏨 Hyatt Regency, Manchester 🎟️Online registration: buytickets.at/rdrukepigenrar… Sebastian Osorio-Rico Rare Disease Research UK

The REOLUT node is delighted to attend the Rare Disease Research UK 2nd Annual Conference at the Hyatt Regency, Manchester. Our Node Lead, Bill Newman, opened the event with a speech introducing the Manchester nodes and welcoming attendees. Looking forward to an insightful conference! #RDRUK