I'm so, so grateful that I had the privilege of knowing this wonderful human. There will never be anyone else quite like Brett and that makes my heart hurt more than I can say.

Heartbroken to share this news about my indomitable friend Brett. King of fun, chief stirrer of trouble & the most relentless agitator wanting to change the kidney world for the better.He wouldn’t approve of too much sadness but please raise a glass or build some Lego for him ❤️

Sending our deepest condolences to our colleagues Young Adult Kidney Group our thoughts are with you all and his family at this time. We had the pleasure of working with Brett improving cannulation @HaemodialysisVA with Kidney Wales bringing his cheeky humour 💔

Love this quote from the Don of Improvement 👇 #PatientInvolvement is necessary in quality improvement The UK Kidney Association

Worked with a great team at the kidney kitchen today. Made some tasty African Caribbean dishes which patients can enjoy cooking with friends and family. Thank you Deborah and the team Kidney Care UK @kidneycareuk.bsky.social

So very sad to hear about Brett. I met him a few times and worked with him on a shared care course in Wales. A great role model for other young people living his life despite being on dialysis. He made a difference and changed attitudes, a legacy to be extremely proud of.

Our thoughts are with Brett’s loved ones, with those touched by his work and his positive impact. Thank you to everyone for their kindness at this heartbreaking time. kidneywales.cymru/news/2022/05/1…

A really important comment about balancing the risk of Covid against the benefits of going out and about and doing things that support your mental health. #CovidQuestionTime

Great day Friday all consensus minimum standards of care agreed, everyone recognised the need to reduce inequality and increase access to psychosocial services for kidney patient…so let’s implement# in practice Fiona Loud 💙 Kidney Care UK @kidneycareuk.bsky.social Emma Coyne Association of Nephrology Nurses UK Rachel Gair

.Nick Inston’s talk on the current #ESKD landscape on patient centric treatment examined the big questions on life, quality of life, and death. ‘Patients are individuals with the common theme of #renal replacement therapy. Clinical priorities DO NOT equal personal priorities.’

Proactive and thoughtful discussions with the Peadiatric team championing child and young person services. Enjoying our trip back over the bridge University Hospitals Bristol and Weston NHS FT UHB Renal Transplantation Team

Topics discussed today at Midlands Operational Delivery Renal Network peritonitis #QI project meeting: *How can teams create space locally to organise projects? *Documenting changes & learning as we go is imperative *Learning from the ANZDATA Registry peritonitis QI programme * Int. Soc. for Peritoneal Dialysis guidelines TY all🤩

Good to have this debated....I hope there is a positive outcome shared very soon. #patientvoice

It is critical that the escalating utility bill situation for people on #homedialysis is addressed immediately by the gov’t. It would be devastating to QoL and even more expensive to the NHS for people to return to in-centre dialysis against their wishes due to their bills

I am v proud that my work with Quanta Dialysis Technologies to promote #patientchoice & improve equity of access to #homedialysis plus the Kidney Care UK @kidneycareuk.bsky.social "Priced Out of Existence" campaign, have led to a Westminster Hall debate on Improving Dialysis Outcomes tomorrow at 3pm, please do watch & share

We are really excited that the NWKN have established a funded role for a patient voice coordinator. Thank you to all who have helped us secure this. It will be advertised in the next couple of weeks please watch this space…

#dialysis outcomes debate ongoing. Acute Kidney Injury can lead to kidney failure and is preventable in some cases - avoiding the need for dialysis is 🔑

Thank you Jim Shannon MP for your fantastic advocacy on behalf of #dialysis patients at Westminster Hall today, raising really important issues to government we are very grateful #homedialysis #CostOfLivingCrisis

#UKKW2022 registration is now being held open until the 29th of May 🙌 ukkw.org/registration/ The UK Kidney Association

Our programme lead Rachel Gair is supporting the South West KQuIP Transplant Workstream at the annual Transplant day.