
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
ID: 510484741
http://www.rarebeacon.org 01-03-2012 16:28:52
22,22K Tweet
11,11K Followers
10,10K Following




📢 Check out our recent blog! Read a summary of what the World Health Assembly (WHA) Resolution on Rare Diseases calls for, and when it could be sanctioned by the World Health Organization, World Health Organization (WHO). Read more: 👇 ow.ly/5w9L50VPPbR



🧬 Behind the Gene shares powerful, personal stories from those affected by Huntington’s disease. It’s time to raise awareness and challenge stigma in support of the Huntington's disease community. 👉 Find out more: ow.ly/s58t50VPY01 #BehindTheGene Huntington's Disease Association



Join Wales Gene Park for their next Virtual Public Genomics Café! 💻 A chance to hear exciting talks on genetics and genomics from leading experts and those with lived experience of genetic conditions. Register here: 👇 ticketsource.co.uk/wales-gene-par…





Whether you live with a rare condition, support someone who does, or work in the field – your voice has the power to raise awareness and spark action. Interested in sharing your rare journey on our blog? We’d love to hear from you! 💙 📩 Get in touch: [email protected]



Today is World NF2 Awareness Day! Despite its profound impact on those with NF2 and their families, NF2 remains largely unknown. NF2 BioSolutions UK & Europe need your support to amplify their voice, and raise awareness for NF2 research. Find out more: 👇 nf2biosolutions.org/nf2-biosolutio…


🧬 Behind the Gene shares powerful, personal stories from those affected by Huntington’s disease. It’s time to raise awareness and challenge stigma in support of the Huntington's disease community. 👉 Find out more: ow.ly/s58t50VPY01 #BehindTheGene Huntington's Disease Association




