Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile
Rare Cancer Research Foundation + Pattern.org

@rarecancerrf

Dedicated to finding cures for rare cancers. 🔬 We empower patients to donate tumor tissue to research through our platform, Pattern.org.🎗️ Consent today!

ID: 1206225194

linkhttp://linktr.ee/rarecancerrf calendar_today21-02-2013 23:01:19

688 Tweet

799 Followers

832 Following

Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

Several members of the RCRF team are quoted in this Cancer Today feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our Pattern.org program & The Broad Institute's Count Me In: bit.ly/3TPcUT6

Several members of the RCRF team are quoted in this <a href="/CancerTodayMag/">Cancer Today</a> feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our Pattern.org program &amp; The Broad Institute's Count Me In:
bit.ly/3TPcUT6
The EHE Foundation (@ehefoundation) 's Twitter Profile Photo

📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon! #EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients

📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon! 

#EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

Check out this article featuring a few of our team members! Our own Katie Coleman explains how she turned her diagnosis into a mission to help people with #rarecancers.

Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join: eventbrite.com/e/innovations-…

Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join:
eventbrite.com/e/innovations-…
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

We're proud to announce we've been selected as an ARPA-H Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, & investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to investorcatalysthub.org

We're proud to announce we've been selected as an <a href="/ARPA_H/">ARPA-H</a> Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, &amp; investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to investorcatalysthub.org
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

We’re working to accelerate transformative advances in #RareCancer treatment and we need your help. Tomorrow Can’t Wait. Please consider us in your end-of-year giving and join us today! 💙💚 👉 rarecancer.org/donate-2024

We’re working to accelerate transformative advances in #RareCancer treatment and we need your help. Tomorrow Can’t Wait. Please consider us in your end-of-year giving and join us today! 💙💚

👉 rarecancer.org/donate-2024
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

Today is #GivingTuesday2024, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients. Learn more and give today at the link in our bio! 💙💚

Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

RCRF is fiercely patient-centric. Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting! As Jane says, it’s a game changer. 🤝

RCRF is fiercely patient-centric. 

Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting! 

As Jane says, it’s a game changer. 🤝
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬 Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.

According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬

Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.
Rare Cancer Research Foundation + Pattern.org (@rarecancerrf) 's Twitter Profile Photo

Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝 Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.

Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝

Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.