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Perfect conditions for #londonlandmarkshalfmarathon Fantastic achievement by son in law Julian 🙌🏻 over £900 raised for The National Brain Appeal RareDementiaSupport Thanks for all the support !

What a beautiful day for a London Landmarks half marathon London Landmarks Half Marathon #LLHM2025 - thank you to all those who sponsored me for RareDementiaSupport The National Brain Appeal - seems fitting that it’s only 2 days after Primary Progressive Awareness day!

🏃‍♂️ 19 DAYS TO GO until the TCS London Marathon! Over £4,000 raised for The National Brain Appeal & RareDementiaSupport! Would love to hit £5k by month’s end. Still time to donate: justgiving.com/page/james-wat… Follow my plod: bib number 63242. Thank you for your incredible support! 🙏

For Dementia Action Week Natalie Ryan , Honorary Consultant Neurologist and Senior Clinical Research Fellow at UCL Queen Square Institute of Neurology , was interviewed by The Daily Telegraph about the signs of young-onset dementia. telegraph.co.uk/health-fitness… #DementiaActionWeek #DAW UCLH

Thank you to Jess and Ben Illingworth, & Ruth Pollitt, who ran the London Marathon for us in memory of their sister & best friend Gemma Illingworth, raising £20,000. Gemma died at 31 in November from posterior cortical atrophy (PCA) justgiving.com/page/teamjrb #DementiaActionWeek

💜 This #DementiaActionWeek, help us make this centre a beacon of hope. More than 7,500 people already benefit from Rare Dementia Support – but many more need it. Please donate to help us reach them: nationalbrainappeal.org/what-we-do/cur…

The world's first Rare Dementia Support Centre is under construction. Made up of five floors across two adjoining Georgian townhouses, the new space will be changing lives from 2026. Read more and see the virtual guided tour here: raredementiasupport.org/news/rds-centr… #DementiaActionWeek

#EverythingisConnected opens today, a new art exhibition Crafts Council UK celebrating UCL’s ground-breaking neurological research through video, sound, photography & sculpture, many of which will be installed in our centre for neuroscience centre in 2027 bit.ly/43gGV2k

See our Walking in your Footsteps project, exploring familial Alzheimer’s disease experiences, at the Everything is Connected exhibition at the Crafts Council UK Gallery in London, until 3 June - free entry shorturl.at/6MJQH #DementiaActionWeek UCL Queen Square Institute of Neurology UCL Brain Sciences UCL

With 30% of people with rare dementia receiving an incorrect diagnosis, we're on a mission to improve diagnostic accuracy through our research, education and advocacy efforts. We need better understanding, leading to quicker diagnoses and better support. #DementiaActionWeek

Sebastian Crutch, Clinical Lead at Rare Dementia Support, was interviewed by The Mail On Sunday about Posterior Cortical Atrophy (PCA), for Dementia Action Week. This poignant piece highlights the story of Andy Norris, whose wife Kim lives with PCA. dailymail.co.uk/health/article…

Thanks to everyone who visited UCL Public Art's 'Everything is Connected' exhibition over the past few weeks. If you missed it, you can catch a glimpse of the artworks in the link below and will be able to see some of them in the new UCL Queen Square Institute of Neurology and UK Dementia Research Institute at UCL translational

This week is Carers Week. Thank you to all of the carers in the U.K. and all over the world. #CarersWeek #CarersWeek2025 #Carers

💬 "It’s been a long journey, and stressful beyond words. It’s taken a huge toll on my mental health." In his #podcast episode, Chris talks about reaching breaking point, and the importance of looking after yourself as a carer. Does his story resonate with you this #CarersWeek?

This Carers Week, we celebrate and thank the incredible carers we've had the privilege of supporting since 1994. Your strength, compassion and dedication inspires us every day. We will continue advocating for you and standing alongside you. Carers Week #CarersWeek

Need further support? You can contact our Freephone helpline by calling 0808 808 3000. Our helpline is open 24 hours a day for anyone looking for support or information.💜 RareDementiaSupport also offer support for people living with FTD, their families and carers.

This week, our team & RDS members were invited to Castalla, Spain, to collaborate with Actiu and Cast Furniture on designing the future Rare Dementia Support Centre. Together, we’re exploring how thoughtfully designed environments can support people living with rare dementia.

Thanks to Seth Rogen , Lauren Miller Rogen & BBC Breakfast for highlighting rare forms of dementia. “Change will happen when we share our stories and come together as a community, & to get through any of this we have to do it together.” Get support at: raredementiasupport.org/young-onset-al…

A huge thank you to Pat and her community in Hampshire💜Pat, whose husband lives with frontotemporal dementia, hosted a tea and cake afternoon and raised £2,000 for Rare Dementia Support! 120 people came, with an info table to raise awareness too. Join us: raredementiasupport.org/donate/