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🌟 The Rare Disease Foundation Journey 🌟 Sarah Shaffer shares her advocacy journey with the Mason Shaffer Foundation, turning challenges into hope. 💪💙 Read more: #RareDisease #Advocacy #Hope #Resilience rarerevolutionmagazine.com/the-rare-disea…

Real-world data is revolutionizing healthcare! Capturing the right data can drive better outcomes and accelerate breakthroughs. Learn more here: rarerevolutionmagazine.com/capturing-real… #RealWorldData #HealthcareInnovation #DataDrivenCare

Dr. Sara ten Have discusses the environmental impact of peptides in drug development. Origin Peptides aims to revolutionise the market with a "greener, cheaper, and faster" approach. Read her full article here: rarerevolutionmagazine.com/a-new-method-o…

After her son Jackson's Angelman syndrome diagnosis, Amanda Moore now leads the Angelman Syndrome Foundation, inspiring change! 💪💙 #AngelmanSyndrome #RareDisease #Advocacy #Inspiration #Community rarerevolutionmagazine.com/fighting-for-j… AngelmanSyndromeFdn

Dr. Sara ten Have is revolutionizing drug development with greener peptide synthesis! Read more: rarerevolutionmagazine.com/dr-sara-ten-ha… #SustainablePharma #PeptideInnovation #DrugDevelopment #RareDiseaseAdvocacy #GreenScience

Meet Jenny Ousbey, founder of OVID Health and a true Health Change Maker. Discover her inspiring journey in RARE Revolution insider: rarerevolutionmagazine.com/jenny-ousbey-o… #WomenInRare #HealthChangeMakers #PatientAdvocacy #OVIDHealth #RareRevolution

Last week, the RARE Revolution team had our annual strategy week! It's the perfect time to look at what's next, including our newly-launched title, RARE Revolution insider! If you're not subscribed yet, head to bit.ly/RARE-Revolutio… to find out more.

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There are less than two weeks to get your entries in for the Keep Me Breathing (Keep Me Breathing) sweepstake! With #Wimbledon fever building, the countdown is on for the player draw on 27 June. Please support children with #CCHS while also having fun at keepmebreathing.com/product/the-wi…

Dive into healthcare communications! This RARE feature shares a CEO's journey in high-stakes messaging. A must-read! rarerevolutionmagazine.com/incognito-the-… #LeadershipInHealthcare #HealthCommunications #RareDisease #ExecutiveInsights #IncognitoSeries

🌟 A Mother's Journey to Change the Medical Landscape for Her Son's Rare Disease! 💙 Join Camille Fortunato's fight for Anthony with Williams syndrome! rarerevolutionmagazine.com/a-mothers-jour… #WilliamsSyndrome #MedicalResearch #Inspiration #ChangeMakers

New research from Dravet Syndrome UK reveals the profound psychological impact on families caring for children and young adults living with #DravetSyndrome, a complex form of epilepsy that occurs in around 1 in 15,000 births. Read more at bit.ly/3HNS4R5

Casey McPherson is transforming rare disease drug development for his daughter, Rose. Watch his interview here: rarerevolutionmagazine.com/casey-mcpherso… #RareDisease #PatientDrivenInnovation #AlphaRoseTherapeutics #DrugDevelopmentWithHeart

Meet a resilient vEDS advocate who turned struggles into hope. Her journey shows the power of compassion! 💪💖 #vEDS #Hope #Resilience #Empowerment #Advocate #Inspiration #Strength rarerevolutionmagazine.com/climbing-in-he…

Charity @PSPASSOCIATION has produced an animation to help support healthcare professionals diagnose corticobasal Degeneration. Read more at bit.ly/43NYicd

The Koolen-de Vries Syndrome Foundation is uniting families and accelerating research for KdVS. First clinical trial in 2026! Learn more: rarerevolutionmagazine.com/putting-you-in… #KdVS #RareDisease #PatientAdvocacy #RareRevolution #GeneticResearch

Ari Moretz, a disabled artist, transforms pain into beauty. Her documentary "Life in the Bubble" showcases her resilience. rarerevolutionmagazine.com/art-in-isolati… #ArtInIsolation #HealingThroughArt #LifeInTheBubble #ChronicIllness #CreativeExpression

Dravet Syndrome UK (Dravet Syndrome UK has launched the #LittleMomentsMatter Awards today, a new initiative designed to celebrate outstanding health, social care, and education professionals who provide support to families affected by #DravetSyndrome. Read more at bit.ly/3FM9AVl

Exciting news! The Undiagnosed Hackathon is transforming rare disease diagnosis. Watch Helene Cederroth's interview: rarerevolutionmagazine.com/rare-insider/h… #RareDiseases #MedicalInnovation #UndiagnosedHackathon #GlobalCollaboration #Hope

Casey McPherson's journey from music to rare disease treatments inspires us! Join AlphaRose in making a difference! #RareDiseases #Biotechnology #Innovation #Healthcare #AlphaRoseTherapeutics #GeneticMedicine rarerevolutionmagazine.com/rare-insider/a…