"..I get very embarrassed in social environments having to apply my treatments. As applying creams is not seen as a manly thing by society." Having a #RareDisease can impact all areas of life, especially self esteem. #MensHealthMonth #MensMentalHealthMonth #MentalHealth

So excited for this launch today - keep your eyes peeled for the first module coming later today! #RareMindsMatter #MentalHealth #RareDiseases

Such a privilege to work with the @M4RareDiseases team on these resources. Health care professionals play a key role in supporting the #MentalWellbeing of people impacted by #RareDiseases. #MentalHealth support must become a standard part of rare disease care. #RareMindsMatter

This is a fantastic resource! Thank you Rareminds and @M4RareDiseases for creating this course, it's wonderful! Cerebra Network Patrick Wild Centre @rarediseasesint EURORDIS-Rare Diseases Europe

Effectively supporting the #MentalHealth & #Wellbeing of #RareDisease patients requires appreciation of their lived experience & the complex challenges they face in relation to their particular condition. New online course by @m4rd & Rareminds dropping weekly - pls share.

#MeetTheTeam! David is our counsellor working with @AmendInfo & @ChildhoodTT. He's also a qualified clinical supervisor & takes a lead role in overseeing our background clinical processes & procedures. #RareMindsMatter #MentalHealth #RareDisease

#MentalHealth support must become a standard part of #RareDisease care. Final chance to register for the EURORDIS-Rare Diseases Europe webinar exploring this issue featuring our CEO Kym Winter. #RareMindsMatter

Too often #MentalHealth is treated as secondary to physical health. In #RareDisease however there are often complex interacting emotional & physical symptoms - both need to be addressed & supported. #RareMindsMatter x.com/samhsagov/stat…

Our CEO Kym Winter is currently talking at the EURORDIS-Rare Diseases Europe workshop about the work of @Rareminds, and how #mentalhealth is the missing puzzle piece for #raredisease care. #RareMindsMatter

We're so excited to be working with Rare Disease Research Partners on this project to pilot provide specialist counselling to #RareDisease clinical trial participants! #MentalHealth #RareMindsMatter #ClinicalTrials

Lesson 2 of our partnership with @M4RareDiseases is now out. Sign up for your free account to find out more about how the #raredisease journey can impact mental wellbeing - pls share. #MentalHealth #RareMindsMatter x.com/M4RareDiseases…

Managing the complex emotions & family dynamics associated with inherited #genetic conditions can be difficult and adversely affect mental health. Explore these risks & how to support in lesson 3 of '#MentalHealth & #RareDisease. x.com/M4RareDiseases…

Our service in collaboration with Rareminds offers study sponsors the opportunity to provide counselling to patients. For more information, contact our team. View our full research poster here buff.ly/3Z2HSb7 #clinicaltrials #research #counselling #rareminds

Listen to our CEO & Founder KymPitts discussing the impact of rare diseases on mental health & wellbeing at the recent @EURORDIS webinar (27 mins in). #raredisease #mentalhealth #raremindsmatter youtube.com/watch?v=9rUvHG…

RECAP! ✋Available lessons!! 🧠 Lesson 1: Introduction to Mental Health and Rare Disease 👩‍⚕️ Lesson 2: The Rare Disease Journey 🧬 Lesson 3: Mental Health and Inherited Genetic Conditions 🔍 Lesson 4: Assessing Mental Wellbeing Begin now! Rareminds learn.m4rd.org

Do you want to be part of the official #RareDiseaseDay 2024 video? 📽️ Now is your chance! To send in your contributions or get more information on how you can get involved, DM us or contact us at [email protected]! #LightUpForRare #ShareYourColours #video

So pleased to be working with Timothy Syndrome Alliance (TSA) on supporting the #CACNA1C community. #RareDisease #RareMindsMatter #MentalHealth

Lesson 5 of our collaboration with @M4RareDiseases is now out - sign up now for free at learn.m4rd.org. #MentalHealth #RareDisease #RareMindsMatterhttps://twitter.com/M4RareDiseases/status/1689598992517050368?s=20