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This weekend a 90 strong Team PURA will come together for the Melbourne Marathon Festival event, united in our goals to raise awareness and funds for PURA research in Australia. Researchers from The Florey and The Reid Lab (Florey) will be walking in the team with us, beside us, for us. 💜 🙌 🏃

Wednesday 16th October is #SUDEPActionDay2024 We realise the day can intensify thoughts and feelings of losing a loved one to #epilepsy but please know our team are here for you. Call 01235 772852 or email [email protected] A special thank you to Donna Ashworth #SUDEP

#SUDEP is when a person with #epilepsy dies suddenly and prematurely and no reason for death is found. #SUDEPActionDay encourages every person with epilepsy, their families, and health professionals to be more aware of risks and to take an active role in discussing SUDEP.

Calling all researchers and fellow leaders in neuroscience and mental health: Join us in the 2024 Melbourne Brain Symposium! 💫 📆 Tuesday 26 November 🕘 9:00 am–6:00 pm 📍 30 Royal Parade, Parkville VIC For tickets & more information, visit: events.humanitix.com/the-2024-melbo…

#SUDEP occurs in approximately 1 in 1,000 adults with #epilepsy and 1 in 4,500 children with epilepsy. We need greater awareness of the condition to help address care gaps and ultimately help save lives.

Today is #SUDEPActionDay2024. What is #SUDEP? It stands for “Sudden Unexpected Death in Epilepsy” and is very sadly the most common cause of premature death from #epilepsy particularly in young people with epilepsy. Tips to minimise risks (thread 🧵)

In Australia, 170 people die every year from Sudden Unexpected Death in Epilepsy (#SUDEP). This #SUDEPActionDay, leading experts in #epilepsy are raising awareness about the risks of SUDEP – a condition where 2 out of every 3 (69%) cases could be prevented.

Last night, we paid tribute to Prof Trevor Kilpatrick for his leadership of The Florey (April 2022–July 2024). For over 20 years, he has been at the forefront of MS research at The Florey. We are immensely grateful to Trevor for his passion and advocacy for neuroscience! 🌟

Prof Scott Ayton Prof Scott Ayton, Prof Ashley Bush Professor Ashley Bush, Prof Colin Masters and Prof Chris Rowe have been named in Clarivate's 2024 Highly Cited Researchers list – recognised for their influence in mental health and dementia research. Read ➡️ lnkd.in/gFYZzD6C

Today we had the opportunity to attend the Melbourne Brain Symposium.💜 Inspiring to hear about the work being completed by the Florey Epilepsy Mission. Fern’s story is an inspiring example of how personal experiences can drive forward scientific progress. #epilepsy #florey #pura

Well done Amanda Hu and Chaseley McKenzie from the The Reid Lab (Florey) for presenting their work on epilepsy and SUDEP at the Melbourne Brain Symposium. The Florey

I am incredibly grateful, humbled & honored to have recieved this Cure GABA A award 💜 It is truly a privilege to be part of this amazing community that is working SO hard to improving the lives of people with GABAA- receptor related disorders 🤩 #StrongerTogether 💜#Epilepsy 🧠

Dr Khaing Phyu Aung and Prof Chris Reid presenting their work at the #AES2024. The Florey Cure GABA A The Reid Lab (Florey)

Have you followed The Florey on other channels? Find us on: LinkedIn ➡️ linkedin.com/company/florey… Instagram➡️ instagram.com/theflorey/ YouTube➡️ youtube.com/@theflorey Or subscribe to Neuroscope, our monthly newsletter! 📰 ➡️florey.edu.au/subscribe/

Florey research published today in Nature Neuroscience led by A/Prof Justin Rubio found that neurons located in MS brain lesions have a 2.5x faster mutation rate than normal neurons – providing clues for new treatment avenues for progressive MS. Read here: florey.edu.au/news/2025/03/f…

Join our Epilepsy public lecture this Wednesday March 26th to hear about how we are making a difference in childhood epilepsy research. The Florey, CURE Epilepsy, The Epilepsy Society of Australia, Epilepsy Foundation of Australia, Cure GABA A, American Epilepsy Society events.humanitix.com/public-lecture…?

Despite rare genetic neurodevelopmental disorders such as genetic epilepsies / DEEs being well suited to n of 1 trials there have only been a handful performed. N of 1 trials allow assessment of promising treatments in rare monogenetic epilepsies. #GETA2025

We’re fundraising to support PURA Foundation Australia, and you can help by making a donation. Every contribution helps make a difference for families affected by PURA syndrome. Thank you for your generosity. melbmara2025.grassrootz.com/purafoundation… PURA Foundation Australia The Florey The Epilepsy Society of Australia