Fondazione Paola Gonzato ETS (@rete_sarcoma_it) 's Twitter Profile
Fondazione Paola Gonzato ETS

@rete_sarcoma_it

The Paola Gonzato Foundation was founded to support sarcoma patients and develop a network among all those who operate in the sarcoma field. Ornella Gonzato

ID: 2339958626

linkhttps://www.retesarcoma.it calendar_today12-02-2014 08:07:04

878 Tweet

365 Followers

327 Following

Yian Yin (@yian_yin) 's Twitter Profile Photo

🚨New paper🚨 Excited to share our latest on nature today: The PIVOT PENALTY in research. nature.com/articles/s4158… More than five years in the making. Key finding: The impact of new research steeply declines the further a researcher moves from their previous work.

🚨New paper🚨 Excited to share our latest on <a href="/Nature/">nature</a> today: The PIVOT PENALTY in research. nature.com/articles/s4158…

More than five years in the making. Key finding: The impact of new research steeply declines the further a researcher moves from their previous work.
CTOS (@ctosociety) 's Twitter Profile Photo

After the inspiring ASCO meeting we are looking forward to meeting all the sarcoma family again at #CTOS2025! Patient advocacy groups are valuable members of our community! ⬇️Check the invitation from Kathrin Schuster from SPAGN and CTOS Outreach Committee

Dutch Phyllodes Group /Contactgroep Phyllodes (@phyllodestumor) 's Twitter Profile Photo

A phyllodes tumor develops in the connective tissue of the breast. This type of tumor is usually fast-growing but hardly ever spreads beyond the breast.    youtu.be/jwq3oedEvYA?si…

ESMO Open (@esmo_open) 's Twitter Profile Photo

Financial toxicity and socioeconomic impact of cancer in Europe in ESMO Open. 66% of pts suffered from income loss (86% with additional treatment-related expenses), 16% delayed or avoided health services (medical visits, medications, surgery…). esmoopen.com/article/S2059-…

Financial toxicity and socioeconomic impact of cancer in Europe in <a href="/ESMO_Open/">ESMO Open</a>. 66% of pts suffered from income loss (86% with additional treatment-related expenses), 16% delayed or avoided health services (medical visits, medications, surgery…). esmoopen.com/article/S2059-…
Fondazione Paola Gonzato ETS (@rete_sarcoma_it) 's Twitter Profile Photo

Il #senso delle #parole. Un magnifico progetto, il privilegio di esserne parte. “Le #metafore sono strumento di amplificazione delle nostre parole…Nella #malattiaoncologica, permettono di esprimere dimensioni dell’esperienza intangibili e complesse diversamente non accessibili”

Il #senso delle #parole. Un magnifico progetto, il privilegio di esserne parte. “Le #metafore sono strumento di amplificazione delle nostre parole…Nella #malattiaoncologica, permettono di esprimere dimensioni dell’esperienza  intangibili e complesse diversamente non accessibili”
Fondazione Paola Gonzato ETS (@rete_sarcoma_it) 's Twitter Profile Photo

La Campagna Italiana sui #Sarcomi, progettata e realizzata dalla Fondazione Paola Gonzato, con il patrocinio del Ministero della Salute Un video per informare e sensibilizzare sui #sarcomi. #SarcomaAwarenessMonth #personenonsarcomi SPAGN Sarcoma UK Asociación Sarcomas Grupo Asistencial 🎗

SPAGN (@sarcomapatients) 's Twitter Profile Photo

Doctor‑day questions—screenshot these: 1️⃣ Could this be something serious? 2️⃣ Which tests should I get? 3️⃣ What if the symptoms are getting worse? 4️⃣ Should I see a specialist? Having questions ready keeps you in the driver’s seat. #SarcomaAwarenessMonth2025 #KnowYourNormal

Doctor‑day questions—screenshot these:
1️⃣ Could this be something serious?
2️⃣ Which tests should I get?
3️⃣ What if the symptoms are getting worse?
4️⃣ Should I see a specialist?

Having questions ready keeps you in the driver’s seat.

#SarcomaAwarenessMonth2025 #KnowYourNormal
SPAGN (@sarcomapatients) 's Twitter Profile Photo

Sarcomas are easy to overlook. GPs often miss the signs. Many patients require a 2nd, 3rd, 4th consultation (or more!) to get the right diagnosis. Delays cost patients months or even years of critical time. Don’t settle for non-answers. #SarcomaAwarenessMonth2025 #KnowYourNormal

Sarcomas are easy to overlook. GPs often miss the signs. Many patients require a 2nd, 3rd, 4th consultation (or more!) to get the right diagnosis. Delays cost patients months or even years of critical time. Don’t settle for non-answers.

#SarcomaAwarenessMonth2025 #KnowYourNormal
Fondazione Paola Gonzato ETS (@rete_sarcoma_it) 's Twitter Profile Photo

E’ trascorso un anno dalla presentazione aRoma,Camera dei Deputati, del primo #LibroBianco #Sarcomi in Italia della Fondazione Paola Gonzato. Per sensibilizzare la politica sulle criticità -dall’organizzazione delle #cure alla #ricerca- e suggerire raccomandazioni. Faride Georges Farah

E’ trascorso un anno dalla presentazione aRoma,Camera dei Deputati, del primo #LibroBianco #Sarcomi in Italia della Fondazione Paola Gonzato. Per sensibilizzare la politica sulle criticità -dall’organizzazione delle #cure alla #ricerca- e suggerire raccomandazioni. <a href="/Spagn/">Faride Georges Farah</a>
SPAGN (@sarcomapatients) 's Twitter Profile Photo

We #wearyellow to show our solidarity with everyone impacted by #sarcoma. Whether you are a patient or a caregiver, know that you are not alone in your journey. #SarcomaAwarenessMonth2025 #PatientAdvocacy

We #wearyellow to show our solidarity with everyone impacted by #sarcoma. Whether you are a patient or a caregiver, know that you are not alone in your journey.

#SarcomaAwarenessMonth2025 #PatientAdvocacy
SPAGN (@sarcomapatients) 's Twitter Profile Photo

Ever had a doctor tell you “It’s nothing”? What did you do? Seek a second opinion; keep a diary of symptoms; or bring a partner to your next appointment? Share how you made yourself heard. #SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal

Ever had a doctor tell you “It’s nothing”? What did you do? Seek a second opinion; keep a diary of symptoms; or bring a partner to your next appointment? Share how you made yourself heard.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms #KnowYourNormal
SPAGN (@sarcomapatients) 's Twitter Profile Photo

The golf‑ball rule: any lump 4-5 cm or larger—especially if deep and growing—deserves imaging. If you find a lump like this, or you’re experiencing night bone pain, insist on scans and a sarcoma‑specialist referral. #SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms

The golf‑ball rule: any lump 4-5 cm or larger—especially if deep and growing—deserves imaging. If you find a lump like this, or you’re experiencing night bone pain, insist on scans and a sarcoma‑specialist referral.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
César Serrano García (@drcesarcoma) 's Twitter Profile Photo

🚨New #sarcoma review series! Recently out in Hematology/Oncology Clinics of North America ➡️ a comprehensive number of reviews on specific sarcoma subtypes and timely topics in the field. 🖱️Please click in the link below and get updated! 🔗sciencedirect.com/journal/hemato…

🚨New #sarcoma review series!

Recently out in Hematology/Oncology Clinics of North America ➡️ a comprehensive number of reviews on specific sarcoma subtypes and timely topics in the field.

🖱️Please click in the link below and get updated!

🔗sciencedirect.com/journal/hemato…
SPAGN (@sarcomapatients) 's Twitter Profile Photo

Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛 #SarcomaAwarenessMonth2025 #RareButNotAlone

Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛

#SarcomaAwarenessMonth2025 #RareButNotAlone
ESMO Open (@esmo_open) 's Twitter Profile Photo

A comparison of the risk prediction models PERSARC and Sarculator in patients with localized soft tissue sarcoma of the extremities and trunk wall in ESMO Open. High degree of agreement, high-risk pts by either tool had improved outcomes with (N)A chemo. esmoopen.com/article/S2059-…

A comparison of the risk prediction models PERSARC and Sarculator in patients with localized soft tissue sarcoma of the extremities and trunk wall in <a href="/ESMO_Open/">ESMO Open</a>. High degree of agreement, high-risk pts by either tool had improved outcomes with (N)A chemo. esmoopen.com/article/S2059-…
SPAGN (@sarcomapatients) 's Twitter Profile Photo

Sarcomas can be isolating, but you are not alone. Three tips: 1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers 2️⃣ Join patient support groups on social media 3️⃣ Share your story, what questions to ask, and what worked for you. #SarcomaAwarenessMonth2025

Sarcomas can be isolating, but you are not alone. Three tips:
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers

2️⃣ Join patient support groups on social media

3️⃣ Share your story, what questions to ask, and what worked for you.

#SarcomaAwarenessMonth2025
SPAGN (@sarcomapatients) 's Twitter Profile Photo

We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit bit.ly/SPAGNmembers to learn more about membership. #SarcomaAwarenessMonth2025

We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit bit.ly/SPAGNmembers to learn more about membership.

#SarcomaAwarenessMonth2025
Jean-Yves Blay (@jeanyvesblay) 's Twitter Profile Photo

Clinical presentation, management and outcome of 11,132 patients with liposarcoma patients: a population-based study from the NETSARC+ registry - The Lancet Regional Health – Europe thelancet.com/journals/lanep…