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Significant individual change should be used as a lower bound for anchor based estimates of meaningful change on patient-reported outcome scores pubmed.ncbi.nlm.nih.gov/39340723/

Crosswalking Four Pain Impact Measures in a Nationally Representative Sample of Adults with Back Pain pubmed.ncbi.nlm.nih.gov/39341440/

Associations of the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Clinician and Group Survey Scores with Interventions and Site, Provider, and Patient Factors: #CAHPS #QI pubmed.ncbi.nlm.nih.gov/39403289/

Patients mailed the HIPAA form were less likely to enroll (10.2% vs. 14.8%, p < 0.001). The standard HIPAA form scored at the 12th grade reading level, ..., and only met 50% of Federal Plain Language Guideline Checklist items. pubmed.ncbi.nlm.nih.gov/39438380/

Results provide between-level support for the longitudinal and predictive validity of the PROMIS-16. Similar average baseline scores and changes over time were observed between PROMIS-16 and PROMIS-29 + 2. #PROMIS #HRQOL pubmed.ncbi.nlm.nih.gov/39505759/

At both time points, the correlations of PROPr scores with physical and mental health summary scores from the PROMIS-29 and 4 pain scales were within 0.01 between profiles. #PROMIS #PROPr pubmed.ncbi.nlm.nih.gov/39508976/

Our suggestion is to separate the measurement of whole person health (WPH)-the end goal or ultimate outcome we want to improve and/or maintain-from the measurement of WPH determinants-... things that can be intervened upon to maximize WPH.#PROMIS pubmed.ncbi.nlm.nih.gov/39514490/

Randomized adult patients at an urban safety net provider to the CAHPS® Clinician and Group Survey 3.1 or an “EZ” survey created using plain language principles. #CAHPS #survey #methods journals.sagepub.com/doi/10.1177/23…

Evaluation of the Reliability and Validity of the Retirement Knowledge Scale (RKS) #retirement #knowledge #finances pubmed.ncbi.nlm.nih.gov/39545150/

Comparing Health Survey Data Cost and Quality Between Amazon's Mechanical Turk and Ipsos' KnowledgePanel Journal of Medical Internet Research #KnowledgePanel pubmed.ncbi.nlm.nih.gov/39612505/ jmir.org/2024/1/e63032

The current issue of Quality of Life Research has an egregious example of ignoring overlap between right-hand and left-hand variables.ISOQOL x.com/RonDHays/statu… link.springer.com/article/10.100…

hal-health.org/awards Nominations Solicited for 2024-25 Alvin R. Tarlov & John E. Ware Jr. Doctoral Dissertation and Post-Doctoral Awards in Patient-Reported Outcomes #25k #dissertion #postdoc #PROM #ISOQOL

A perspective on the use of patient-reported experience and patient-reported outcome measures in ambulatory healthcare #PROMIS #CAHPS AHRQ PROMIS Health Organization PROMISHealthOrg tandfonline.com/eprint/8Y7IYTJ…

Edelen MO, Hays RD, Herman PM. Introducing the PROMIS-16 profile 1.0. Qual Life Res. 2025 Jan 20. doi: 10.1007/s11136-024-03885-9 #PROMIS pubmed.ncbi.nlm.nih.gov/39831935/

Op4G and Slice justice.gov/usao-nh/pr/eig…

Feasibility of frequent monitoring of symptoms using the PRO-CTCAE in the NRG-BR004 clinical trial pubmed.ncbi.nlm.nih.gov/40170372/

Measuring Whole Person Health: A Scoping Review pubmed.ncbi.nlm.nih.gov/4018056

Clinician and Patient Perspectives on a Patient-Facing Online Breast Cancer Symptom Visualization Tool pubmed.ncbi.nlm.nih.gov/40184560/