🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Registration for KTRN 2025 is live! Join us: rosenaufoundation.org/ktrn

Our Letter of Intent (LOI) deadline is January 31st, which means there are 3 WEEKS LEFT to submit your grant for consideration for funding! Learn more and submit your LOI here: rosenaufoundation.org/letter-of-inte…

Our Letter of Intent (LOI) deadline is THIS FRIDAY, January 31st! Learn more and submit your LOI here: rosenaufoundation.org/letter-of-inte… Please email [email protected] with any questions.

Rosenau Family Research Foundation (RFRF) is excited to announce that it has added three new Directors to its board: Anne Rugari, Teri Cannon and Nick Pilger. Learn about the new members here: rosenaufoundation.org/news/rfrf-welc…

Rosenau Family Research Foundation (RFRF) would like to extend its congratulations to its 2024 class of grant recipients! To read the full press release, visit rosenaufoundation.org/news/rosenau-f…

Did you know that zebras are the official symbol of rare diseases? #ShowYourStripes on February 28 for #RareDiseaseDay!

Register for KTRN 2025 by Friday, February 28th: rosenaufoundation.org/ktrn

Today is Rare Disease Day! We proudly stand with the families and friends of those affected by Krabbe disease and Cystic Fibrosis, and with everyone in the rare disease community. Learn more about Rare Disease Day on the National Organization for Rare Disorders (NORD) website: rarediseases.org/rare-disease-d…

KTRN 2025 is underway! We want to extend our sincere thanks to our sponsors, whose support helps to make the KTRN the successful gathering that it is. Gold Sponsor: University of Pittsburgh/UPMC Children's Center of Neurogenomics Silver Sponsor: M6P Therapeutics

Rosenau Family Research Foundation is are now accepting Letters of Intent (LOI) for our 2025 spring grant cycle! An LOI is the first step in the process to apply for grant funding. LOIs for the spring grant cycle are due July 31st, 2025. Learn more: rosenaufoundation.org/letter-of-inte…

The 2024 Annual Report highlights RFRF’s unwavering commitment to advancing research and improving the lives of those impacted by Krabbe disease and Cystic Fibrosis. Learn about last year's grants, partnerships, progress, and more: rosenaufoundation.org/wp-content/upl…

RFRF is looking for individuals for our Investment Committee! Email [email protected] about joining the Investment Committee, or with any questions.

Joanne Kurtzberg, MD, was named the recipient of the 2025 Sue Rosenau Legacy Award at the KTRN Meeting in March!

Congratulations to Dr. Daesung Shin, an assistant professor of biotechnical and clinical laboratory sciences in the Jacobs School, for receiving a $250,000 grant from the Rosenau Family Research Foundation! buffalo.edu/news/releases/…

Congratulations to Mayo Clinic Graduate School of Biomedical Sciences predoctoral candidate Rachel Wurth for receiving a $112,718 grant from Rosenau Family Research Foundation! You can read the entire press release here: newsnetwork.mayoclinic.org/discussion/stu…

Congratulations to Laura Kirkpatrick, MD, assistant professor of pediatrics and of neurology, School of Medicine, for receiving a $375,000 RFRF grant ! You can read the full press release here: health.pitt.edu/news/pitt-heal…

Congratulations to Allison Bradbury, MS, PhD for the award of a three-year, $375,000 Rosenau Family Research Foundation grant for studying in-utero gene therapy as a potential treatment for Krabbe disease and other lysosomal storage diseases! nationwidechildrens.org/newsroom/news-…

Congratulations to Paul Orchard, MD, and the University of Minnesota Medical School for their award of a $360,000 grant from the Rosenau Family Research Foundation to establish a registry for Krabbe disease! med.umn.edu/news/u-m-medic…

Congratulations to Hara Levy, MD, MMSc, on her three-year, $375,000 grant from the Rosenau Family Research Foundation! Read the full press release here: pediatrics.wisc.edu/hara-levy-rece…

Earlier this spring, RFRF’s Executive Director, Gabriel Cohn, chatted with Laura Bonnell of The Bonnell Foundation on her podcast, Living With Cystic Fibrosis. Listen to the episode now: …vingwithcysticfibrosis.simplecast.com/episodes/rosen…