Retrouvez la 📆 journée nationale du centre de référence des #déficits #immunitaires #héréditaires #ceredih 👩‍🔬le 13/12 à l'Institut Imagine, à Paris. ➡️ Pour vous inscrire : doodle.com/poll/2rzr4q2s8… CEREDIH Institut Imagine Hôpital Necker AP-HP

⁦Hôpital Necker AP-HP⁩ #LaSuite programme gets #PrixGalien2019. Thank you ⁦IPOPI⁩ #eNEWS for your support. Proud to be #Chairperson of your Medical Advisory Panel. Congratulations on your hard work + dedication for #PID patients around the 🌍 e-news.ipopi.org/hospital-necke…

IPOPI's 13th IPOPI EU PID Forum was a success and the report is now online! Full details on the Winter e-News article e-news.ipopi.org/ipopi-13th-pid…

IPOPI has issued a statement on the current epidemic of the new #Coronavirus. #primaryimmunodeficiency patients should be cautious by keeping track of developments in their region and reduce exposure and transmission. bit.ly/PID_Coronavirus

La greffe de moelle osseuse peut être un #traitement curatif pour certains patients atteints de #DIP. Plus y aura d'inscrits sur la liste, plus ils ont de chance de trouver un #donneur compatible ! #Don #déficitimmunitaireprimitif #maladiesrares

Thank you ⁦AssoPetitsPrinces⁩ for their article on our #Transition #Care #program for #AYA #RareDiseases #ChronicDiseases from #Pediatrics to #AdultCare @LaSuiteNecker ⁦Hôpital Necker AP-HP⁩ ⁦Assistance Publique – Hôpitaux de Paris (AP-HP)⁩ ⁦Pièces Jaunes⁩ ⁦@FondationHPHF⁩ ⁦Institut Imagine⁩

Transition from paediatric to adult medical care is a special period of adjustment. Thank you all that help #PID patients and #RareDiseases patients through this fase. @LaSuiteNecker @symesandrew Nizar Mahlaoui M.D., M.P.H., Ph.D.

🚩#URGENT #Coronavirus : Mise à jour de la note d' #Informations + #recommandations à destination des #soignants CEREDIH + patients #DIP #DéficitsImmunitairesPrimitifs Association IRIS 👉frama.link/AJgCqkdf Hôpital Necker AP-HP Assistance Publique – Hôpitaux de Paris (AP-HP) @Univ_Paris Institut Imagine MaRIH

Pour les patients atteints de déficits immunitaires, lettre d’information du CEREDIH et Association IRIS : ceredih.fr/uploads/COVID1… Pour tout autre information : • Ministère de la Santé et des Solidarités solidarites-sante.gouv.fr/soins-et-malad…

IPOPI is excited to anounce that the 3rd Asian PID Meeting is taking place online on September 18-19! We will have a medical education day and a patients meeting day to address the region's #PID priorities. If you'd like to register give us a shout!

IPOPI's next Clinical Care Webinar is in 2 weeks and will explore a hot topic - PID and Vaccines. The guest speaker is Prof Cunningham-Rundles from Mount Sinai Health System Register now to guarantee your attendance ipopi.org/ipopi-clinical… See you on Sep 9th at 15:00h UK time!

Looking forward to this discussion on 'Transition Care-Exploring the Journey' starting in 2h! You can still register: ipopi.org/webinar-reg/ Nizar Mahlaoui M.D., M.P.H., Ph.D. from laSuite and Dr Dalm from Erasmus MC will take on this journey and share best practices #PID #AdultCare #AYA

This is a great meeting to attend to if you are interested in #PrimaryImmunoDeficiencies #PID #InbornErrorsImmunity #IEI

Le projet « Imagine La Suite » a pour but de faciliter l’#insertion socio-professionnelle des jeunes adultes touchés par une #maladie #génétique rare et vivant avec un #handicap. Un grand merci à la Fondation Sycomore pour son implication dans ce projet ! bit.ly/3BUepEO

New article😃in #BMT Nature Portfolio on Curative allogeneic #HSCT following #ReducedToxicityConditioning in #YoungAdults with #PrimaryImmunodeficiency #PID #IEI reporting our experience of Hôpital Necker AP-HP Assistance Publique – Hôpitaux de Paris (AP-HP) Institut Imagine CEREDIH SCETIDE EBMT ESID #Frontiers

Journée DÉFICITS IMMUNITAIRES PRIMITIFS et HÉMOPATHIES INDUITES PAR LES INFECTIONS VIRALES CHRONIQUES de la Société Médicale des Hôpitaux de Paris #SMHP - Gratuite pour les internes - Vendredi 23 septembre 2022

Immunoglobulins are #EssentialMedicines for patients with primary immunodeficiencies recognised by the World Health Organization (WHO). Collecting plasma is more important than ever to make sure plasma-derived medicines are available for patients in need. #Plasmasaveslives #IPAW2022

Allogeneic stem cell transplantation compared to conservative management in adults with inborn errors of immunity ashpublications.org/blood/article-… Fab 🙌🇬🇧 🇫🇷 collab - case matched retrospective study - HSCT significantly reduces PID related events. Longer FU required to show OS benefit.

New CEREDIH article! Impact of graft function on #healthstatus & #HealthQualityOfLife in 112 very long-term #survivors who received an #HSCT for #PID #IEI pubmed.ncbi.nlm.nih.gov/37321401/ #PrimaryImmunoDeficiency #RareDiseases SCETIDE ESID MaRIH Assistance Publique – Hôpitaux de Paris (AP-HP) Hôpital Necker AP-HP

Last chance to register! 👇 We are starting this afternoon at 15h CEST.