Congratulations ILMIreland on timely whitepaper "A manifesto for change". Key takeaway is that more disabled people should have confidence to put themselves forward for leadership positions. At IWA 24 AGM, Board seat left uncontested. Be the change you want to see.

SMA screening in Ireland's heel-prick has not been implemented. Stephen Donnelly committed to newborn screening for #SMA in 2024, but with only 11 weeks left in the year, there’s no time to lose. We need action now—newborn babies can’t afford to wait! #BringSMAtoHeel

SMA screening still hasn’t been added to Ireland's heel-prick test. @DonnellyStephen promised to introduce newborn screening for #SMA in 2024, but with just 9 weeks left in the year, time is running out. Urgent action is needed! #BringSMAtoHeel

SMA screening for newborns is still not in place in Ireland. Stephen Donnelly pledged to implement it in 2024, but with just 8 weeks left this year, urgent action is needed to #BringSMAtoHeel

SMA screening for newborns is still unavailable in Ireland. Despite a commitment to roll out testing in 2024, time is running out. With just 6 weeks left, urgent action is required to fulfil this promise and protect newborns' health. Newborn babies cannot afford to wait any

Despite promises, SMA screening for newborns has not yet been implemented in Ireland. As we approach end of 2024, time is running out to fulfil this vital commitment. Swift action needed to ensure early detection & prevent devastating consequences for newborns and families.

20 adults in Ireland are being denied life-saving treatments for Spinal Muscular Atrophy simply because of their age when the HSE approved them. Please email your local TDs & senators to ask them to support #SMAtreatmentsforall: mdi.ie/smatreatmentsf…

20 adults in Ireland are being denied life-saving treatments for Spinal Muscular Atrophy simply because of their age when the HSE approved them. Please email your local TDs & senators to ask them to support #SMAtreatmentsforall: mdi.ie/smatreatmentsf… Neurological Alliance of Ireland SMA Ireland

Please support our campaign to allow adults with SMA access to treatment. Please, visit: bit.ly/4mpYWnk and email your TD asking for them to support access to SMA treatments in Ireland for all, regardless of their age. #SMATreatmentsforall Neurological Alliance of Ireland

Please support our campaign to allow adults with SMA access to treatment. Please, visit: bit.ly/4mpYWnk and email your TD asking for them to support access to SMA treatments in Ireland for all, regardless of their age. #SMATreatmentsforall Neurological Alliance of Ireland

SMA Ireland and MDI are campaigning to end inequity and discrimination against adults living with SMA in Ireland. Those who were over 18 at the time that the HSE approved three life-changing treatments have no access to medication they need. This restriction is arbitrary and not

Conor O’Kane, 37, is an adult with type 2 SMA, living in Co Antrim. Because, he lives in Northern Ireland, he has access to treatments that peers his age in the ROI do not. Help advocate for the same standard of healthcare for everyone #SMATreatmentsForAll bit.ly/4mpYWnk

In Australia, Chantel has access to Risdiplam and Spinraza, two life-changing SMA treatments for the last two years, slowing the progression of her condition. For those living with SMA in Ireland, there is no time to waste. Adults with SMA in Ireland need access to these

MuscularDystrophyIRE are launching their campaign for equal access to life-saving treatments for 20 people with Spinal Muscularity Atrophy currently precluded under HSE rules. #SMAtreatmentsForAll

MuscularDystrophyIRE SMA Ireland At the AV room briefing in Leinster House, there is support from government and non-government elected representatives.

Thank you Dr Tom Clonan

The life-changing impact of including SMA in Ireland’s newborn screening... youtu.be/BKy4vxysJHc?si… via YouTube