🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Massive shoutout to Ed for taking SMA UK all the way to the USA! 🇺🇸🏃‍♂️ Last month, he smashed the Milwaukee Marathon and raised over £4,000 🤩 All in honour of his 15-year-old nephew living with SMA and supported by our Charity. Thank you, Ed – you’re incredible! 💙

NICE announced yesterday that the MTA appraisal meeting has been postponed from 9th September to 11th November 2025. This is due to the External Assessment Group (EAG) needing more time to compile their report. Access to treatments will continue during this time.

🚨 Big Weekend Update! Check your inbox — emails have been sent! If you reserved full weekend tickets, please make sure to pay your deposit by Friday, 16th May, or your tickets will go to the waiting list. We can’t wait to see you all!

📢 SMA UK’s Adult Perspectives Report 2025 is out now! It shares powerful insights from adults with SMA who took part in our Adult Perspective workshops in Manchester and London! Read the report, check out the summary, and explore event highlights 👉 bit.ly/3SqKvlc

🎮 The Accessible Games Initiative by the Entertainment Software Association is helping make games more inclusive for everyone! Explore how clear accessibility tags improve the player experience 👉 bit.ly/3H7e74F

Huge shoutout to Leah for smashing her third run this month for SMA UK! 🏃‍♀️🔥 After the Manchester Marathon and Great Birmingham Run, she’s tackling the Great Manchester Run this Sunday! Inspired by Theo 💙 Support her: justgiving.com/page/theodeavi…

💥 Earlier this year, Mark took on the Ultra White Collar Boxing challenge for SMA UK! After 8 weeks of training, he raised over £2,300 👏🥊 Check out his experience and how to get involved with Ultra Events 👉 bit.ly/42Z6aqX

👏 A huge thank you to Elliot, who’s raised nearly £350 for SMA UK as part of his Bronze Duke of Edinburgh Award! “I really enjoyed this experience as it allowed me to not only help Carter, but also give to the local community,” he said. Amazing work, Elliot! 🌟

🚴‍♂️ Today’s the day! Our CEO Giles Lomax starts his 435-mile cycle from Edinburgh to London for SMA UK’s 40th anniversary. Follow his journey and show support at smauk.org.uk/ride-capital 💜 #CapitalToCapital #SMAAwareness #SMAUK40

Huge thanks to everyone who joined "Benidorm or Bust 2025" — they raised an amazing £7,865! 🚗💙 The team even decorated their Volvo with a photo of Theo to raise awareness and make every mile matter. 💫 #SMAAwareness #BenidormOrBust2025

A huge thank you to Cat, who took on the Prague Marathon earlier this month and raised over £11,200 for SMA UK! 🏃‍♀️ Inspired by her son Charlie, who has SMA Type 1, Cat’s incredible effort helps us continue our vital work 🧡 #ThankYou #SMAAwareness #PragueMarathon

The DWP seeks feedback on improving the PIP assessment process through a second consultation. SMA UK will shape its response based on our community's views. Share your thoughts by Monday 23rd June 👉 bit.ly/3YWYJy3

Wishing the best of luck to everyone taking on Ride Scorpion today in support of SMA UK! 🚴‍♂️💪 We hope that you have a fantastic day and we’ll be cheering you on all the way! 🙌 #RideScorpion #SMAUK

#5 in our #40MomentsFrom40Years : The gene responsible for SMA, SMN1, was identified in 1995. The SMA-modifier gene, SMN2, was also identified at the same time! 🧬✨ The discovery of these two genes led to the next stage of SMA research 📣

A big thank you to Kelly and everyone involved in Jump Kent’s ‘West End Comes to Warehorne’ concert! 🎶✨ Thanks to your amazing support, nearly £3,400 was raised for SMA UK. We’re grateful to have be the chosen charity for this fantastic event! 💙

435 miles. 435 babies. One powerful ride from Edinburgh to London to demand change. Read the story of how Giles rode a mile for every baby born with SMA in the UK since the UK rejected SMA to be added to the bloodspot programme in 2018 👉 smauk.org.uk/c2c 🔗

We’re excited to announce that you can now hire the incredible "Limitless" X8 Power Chair! 📣🤩 Read all about Bobby’s experience — from navigating tough terrain to reclaiming everyday freedom, Bobby shares how the X8 boosted his independence 👉 smauk.org.uk/x8blog

On May 29, 2025, we launched our children’s book, Spinal Muscular Atrophy: Our SMArt World! 📖✨ Read all about our book launch event and get your free copy here 👉 smauk.org.uk/launch

Wishing everyone who's attending our Edinburgh Picnic the the Park today a fantastic day! We can't wait to see you all there 🌞📣✨

A huge thank you to everyone who took part in and helped to support Ride Scorpion 2025!🚴‍♀️🎉 Over £7,000 has been raised by our wonderful cyclists and we are very grateful to everyone who cycled, volunteered and donated to make the day a success! 🙌