
Shona Cosgrove
@sm_cosgrove
ID: 1052456406274719744
17-10-2018 07:08:55
18 Tweet
37 Followers
84 Following

Many of the barriers to data sharing across Europe are because of differing legal interpretations - one of the findings in a recent report from TEHDAS2 joint action bit.ly/3ANJ2uZ


Today we completed our first TEHDAS country visit in Denmark. We mapped their health data management system, interviewed more than 20 stakeholders and collected many recommendations for the EHDS "We want 1 door to access, not 1 door leading to other doors" @EU_HIS_Unit TEHDAS2 joint action

Today we completed our first live TEHDAS country visit in the Netherlands 🇳🇱. We mapped the #healthdata management system and preparedness to join the #EHDS. 🗣️"Proper registration at source will enable one time registration for multiple use " TEHDAS2 joint action @EU_HIS_Unit EU One Health


Today we've had the pleasure to participate in the 8th European Conference on Health Law in Ghent, for a workshop on the European Health Data Space. Our colleague Shona Cosgrove presented TEHDAS2 joint action and talked about the secondary use of #healthdata. #echl2022 @EAHLaw #EHDS


Last week we completed our 5th #TEHDAS country visit in Estonia 🇪🇪 A small but pioneer country in digitalisation and the use of standards for structured #healthdata. 🗣️ Over 15 stakeholders were interviewed in 3 days! @EU_HIS_Unit TEHDAS2 joint action EU One Health

Had a short but sweet visit to Ghent yesterday for #echl2022 . I presented on the EHDS and barriers to secondary use of health data - thanks for the interesting discussions Tugce Schmitt @felix_gille Vanja Pajić Anne Koppenburger and Kimon Papadopoulos! 🤓 @EAHLaw @EU_HIS_Unit


It was a pleasure to host TEHDAS2 joint action Stakeholder Forum with my lovely co-host Elina Drakvic! Lots of interesting discussions on secondary use of #healthdata and wider context of an #EUHealthUnion. Thanks to the team for great organisation, can't wait for the next one👏@EU_HIS_Unit

This week #TEHDAS gathers European #healthdata projects to discuss European Commission proposal on the European health data space #EHDS. 🗓️ Wednesday 22 June at 14 CEST More information and registration 👇 #TEHDASforum tehdas.eu/event/project-…

Very happy that the findings of our first 6 TEHDAS2 joint action country visits have been published, looking at the readiness to join the EHDS 🙌 Next 6 coming soon, watch this space 🤓Irini Kessissoglou @EU_HIS_Unit Linda Abboud. Thanks to all the colleagues who helped along the way.

It was a pleasure to chair, with my colleague Shona Cosgrove, a session on the preparedness of member states and research infrastructures PHIRI to join the #EHDS at the EPH Conference ! #EPH2022 TEHDAS2 joint action HealthDataEU_pilot EU One Health



The #EHDS rapporteur Tomislav Sokol mentioned the aim to have a political agreement European Parliament by summer 🗣️"We want to preserve the main principles proposed by the European Commission" but challenge with the EU Council as some smaller MSs are not yet aware of the #EHDS.


Our coordinator @markuskalliola highlighting the key deliverables of TEHDAS2 joint action Joint Action, the barriers to #healthdata sharing for #secondaryuse and recommendations that are now in the #EHDS legislative proposal. tehdas.eu/category/resul… 🗣️"The current situation is a nightmare"



The #EHDS legislation is under negotiation at the EU Council and European Parliament but how prepared are EU Member States to join the #EHDS for secondary use? Have a look at our results 👇

12 months well spent 🥳It was fascinating to map the different approaches to health data management across EU countries and how ready they are for the EHDS. Shout out to the dream team 🌟 Irini Kessissoglou Michael Peolsson Neville Calleja Linda Abboud and others! @EU_HIS_Unit