
SNAC
@snac_jia
Parent led charity, aims to improve experiences for children & families affected by Juvenile Idiopathic Arthritis by information,contact and events.
ID: 815115889
http://www.snac.uk.com 10-09-2012 12:20:23
1,1K Tweet
914 Followers
807 Following

It's Adolescent Health Week 2022-the theme is "Transitions": from childhood to adulthood, physically & mentally, a life shaped through a pandemic, dependence to independence & the progression from paediatric to adult clinics #iahw2022 #msk #youngpeople internationaladolescenthealthweek.org




Looking forward to this stellar line up of parents and genetics clinical researcher talking about genetics and childhood rheumatic disease! Cassie + Friends Society

Join us Feb 28 to explore the role of genetics in childhood rheumatic diseases with Ashish Marwaha BMBCh, MA, PhD, FABMGG,FCCMG, FRCPC, Clinical Medical Geneticist at #AlbertaChildrensHospital with a special interest in pediatric rheumatology. Register: bit.ly/3I7ANQD #Genetics #RareDiseaseDay #JA #RareDisease


#WORDDay2023 .maria olsson is hosting an informative webinar for difficult to treat JIA on 18 March Registration is free! For registration, scan the QR code below #WORDDay #paedsrheum




Eve will close the session sharing her perspective as a doctor and also telling us all about World Young Rheumatic Diseases Day (WORD Day)



Our #ArtWriteUs exhibition welcomed #Edinburgh MSP Sue Webber MSP 💜💙 to explore the thought-provoking #JointCreativity work created by young people living with #arthritis. Sue tested our Giant Self-Care Decision Maker with the help of @versusarthritis Head of Scotland Lauren Bennie.


Come and see our TWO #exhibitions, #UnProcessed by Out of the Blueprint artist-in-residence Celeste John-Wood, and #ArtWriteUs, part of the Scotland Versus Arthritis #JointCreativity programme. Free entry. Open daily 10am-5pm until Sat 18th March. bit.ly/3asgiQk


Pam Duncan-Glancy MSP, Convener of Scottish Parliament #Arthritis and Musculoskeletal Conditions CPG stopped in at our #ArtWriteUs exhibition today in #Edinburgh. Thank you for supporting our work Pam Duncan-Glancy MSP and advocating for children, young people & adults with #arthritis in #Scotland.




🔎We are looking for children/young people with diagnosed chronic musculoskeletal conditions to participate in a study exploring lived experiences of #ChronicPain 📱Interested? More info can be found here tinyurl.com/RIPPLE-PIS ✉️Or email [email protected]


We have been overwhelmed by the interest in the #TeapotTrustElsewhereGarden. Project Giving Back & the RHS #ChelseaFlowerShow have enabled us to raise awareness of the transformative benefits of #arttherapy for children living with chronic conditions on a national scale.
