SNAC (@snac_jia) 's Twitter Profile
SNAC

@snac_jia

Parent led charity, aims to improve experiences for children & families affected by Juvenile Idiopathic Arthritis by information,contact and events.

ID: 815115889

linkhttp://www.snac.uk.com calendar_today10-09-2012 12:20:23

1,1K Tweet

914 Followers

807 Following

BANNAR (@bannargroup) 's Twitter Profile Photo

It's Adolescent Health Week 2022-the theme is "Transitions": from childhood to adulthood, physically & mentally, a life shaped through a pandemic, dependence to independence & the progression from paediatric to adult clinics #iahw2022 #msk #youngpeople internationaladolescenthealthweek.org

Children's Health Scotland (@childhealthscot) 's Twitter Profile Photo

SPACES STILL AVAILABLE FOR OUR NEXT IN-PERSON SMS: F2F PROGRAMME IN APRIL AT DYNAMIC EARTH, EDINBURGH! SMS supports Scotland's children and young people with health conditions. Referrals can be made easily online - and you don't need a diagnosis! ow.ly/uW7R50Iu2ES 🧸🏴󠁧󠁢󠁳󠁣󠁴󠁿💜

drloritucker (@loribtucker1) 's Twitter Profile Photo

Looking forward to this stellar line up of parents and genetics clinical researcher talking about genetics and childhood rheumatic disease! Cassie + Friends Society

Cassie + Friends Society (@cafsociety) 's Twitter Profile Photo

Join us Feb 28 to explore the role of genetics in childhood rheumatic diseases with Ashish Marwaha BMBCh, MA, PhD, FABMGG,FCCMG, FRCPC, Clinical Medical Geneticist at #AlbertaChildrensHospital with a special interest in pediatric rheumatology. Register: bit.ly/3I7ANQD #Genetics #RareDiseaseDay #JA #RareDisease

Scotland Versus Arthritis (@scotvarthritis) 's Twitter Profile Photo

Our Young People and Families Service are hosting an exhibition called Art Write Us as part of their Joint Creativity Programme. The exhibition is open to the public from Tuesday 14 until Saturday 18 March from 10am – 5pm daily at the Out of the Blue Drill Hall in Edinburgh.

Our Young People and Families Service are hosting an exhibition called Art Write Us as part of their Joint Creativity Programme. 

The exhibition is open to the public from Tuesday 14 until Saturday 18 March from 10am – 5pm daily at the Out of the Blue Drill Hall in Edinburgh.
Paediatric Task Force Global MSK Health (@paedmskglobal) 's Twitter Profile Photo

#WORDDay2023 .maria olsson is hosting an informative webinar for difficult to treat JIA on 18 March Registration is free! For registration, scan the QR code below #WORDDay #paedsrheum

#WORDDay2023
.<a href="/aplar/">maria olsson</a> is hosting an informative webinar for difficult to treat JIA on 18 March
Registration is free!
For registration, scan the QR code below
#WORDDay #paedsrheum
JAR Project (now on B___sky) (@jarproject) 's Twitter Profile Photo

“My classmates say I’m faking it”. This is one of the most heart-breaking things we hear from those with #JIA, caused by a lack of awareness and understanding. Please be aware that conditions like JIA can be invisible & variable. Above all, be kind always. #ThinkJIA #WordDay2023

“My classmates say I’m faking it”. This is one of the most heart-breaking things we hear from those with #JIA, caused by a lack of awareness and understanding. 
Please be aware that conditions like JIA can be invisible &amp; variable. Above all, be kind always.
#ThinkJIA
#WordDay2023
Teapot Trust (@teapottrust) 's Twitter Profile Photo

Talking to children about the artwork they make in #ArtTherapy session gives art therapists the opening they need to get to the heart of a young person's issues. This in turn, can make it easier for a child with a #ChronicCondition to discuss it with their parents and carers.

Talking to children about the artwork they make in #ArtTherapy session gives art therapists the opening they need to get to the heart of a young person's issues.  
This in turn, can make it easier for a child with a #ChronicCondition to discuss it with their parents and carers.
Scotland Versus Arthritis (@scotvarthritis) 's Twitter Profile Photo

Our Joint Creativity #ArtWriteUs Exhibition is now open at the Out of the Blue Drill Hall in Edinburgh. Come along and see the artwork and creative writing by our young artists with arthritis and related conditions. The exhibition is open from 10am- 5pm until Saturday

Our Joint Creativity #ArtWriteUs Exhibition is now open at the Out of the Blue Drill Hall in Edinburgh. 

Come along and see the artwork and creative writing by our young artists with arthritis and related conditions.

The exhibition is open from 10am- 5pm until Saturday
Scotland Versus Arthritis (@scotvarthritis) 's Twitter Profile Photo

Our #ArtWriteUs exhibition welcomed #Edinburgh MSP Sue Webber MSP 💜💙 to explore the thought-provoking #JointCreativity work created by young people living with #arthritis. Sue tested our Giant Self-Care Decision Maker with the help of @versusarthritis Head of Scotland Lauren Bennie.

Our #ArtWriteUs exhibition welcomed #Edinburgh MSP <a href="/SueJWebber/">Sue Webber MSP 💜💙</a> to explore the thought-provoking #JointCreativity work created by young people living with #arthritis. Sue tested our Giant Self-Care Decision Maker with the help of @versusarthritis Head of Scotland <a href="/Lauren_BennieUK/">Lauren Bennie</a>.
Out of the Blue (@ootbdrillhall) 's Twitter Profile Photo

Come and see our TWO #exhibitions, #UnProcessed by Out of the Blueprint artist-in-residence Celeste John-Wood, and #ArtWriteUs, part of the Scotland Versus Arthritis #JointCreativity programme. Free entry. Open daily 10am-5pm until Sat 18th March. bit.ly/3asgiQk

Come and see our TWO #exhibitions, #UnProcessed by <a href="/ootblueprint/">Out of the Blueprint</a> artist-in-residence Celeste John-Wood, and #ArtWriteUs, part of the <a href="/ScotVArthritis/">Scotland Versus Arthritis</a> #JointCreativity programme. 
Free entry. Open daily 10am-5pm until Sat 18th March.
bit.ly/3asgiQk
Scotland Versus Arthritis (@scotvarthritis) 's Twitter Profile Photo

Pam Duncan-Glancy MSP, Convener of Scottish Parliament #Arthritis and Musculoskeletal Conditions CPG stopped in at our #ArtWriteUs exhibition today in #Edinburgh. Thank you for supporting our work Pam Duncan-Glancy MSP and advocating for children, young people & adults with #arthritis in #Scotland.

Pam Duncan-Glancy MSP, Convener of <a href="/ScotParl/">Scottish Parliament</a> #Arthritis and Musculoskeletal Conditions CPG stopped in at our #ArtWriteUs exhibition today in #Edinburgh.

Thank you for supporting our work <a href="/GlasgowPam/">Pam Duncan-Glancy MSP</a> and advocating for children, young people &amp; adults with #arthritis in #Scotland.
Teapot Trust (@teapottrust) 's Twitter Profile Photo

Join in this research to help build awareness of how we can support young people with juvenile idiopathic arthritis. #JuvenileArthritis

Eve smith (@evemdsmith_eve) 's Twitter Profile Photo

Still time to register for the-#WORDDay2023 webinars! 👇first one is tonight 17th March at 19.00 CET, then also tomorrow 18th which is WORD Day One God.00 CET. Great line up of speakers and look forward to seeing you there!!

RIPPLEStudy (@ripple_study) 's Twitter Profile Photo

🔎We are looking for children/young people with diagnosed chronic musculoskeletal conditions to participate in a study exploring lived experiences of #ChronicPain 📱Interested? More info can be found here tinyurl.com/RIPPLE-PIS ✉️Or email [email protected]

🔎We are looking for children/young people with diagnosed chronic musculoskeletal conditions to participate in a study exploring lived experiences of #ChronicPain

📱Interested? More info can be found here tinyurl.com/RIPPLE-PIS

✉️Or email Danielle.mountain@manchester.ac.uk
Teapot Trust (@teapottrust) 's Twitter Profile Photo

We have been overwhelmed by the interest in the #TeapotTrustElsewhereGarden. Project Giving Back & the RHS #ChelseaFlowerShow have enabled us to raise awareness of the transformative benefits of #arttherapy for children living with chronic conditions on a national scale.

Klaire Connor (@klaireconnor) 's Twitter Profile Photo

Please share with young people in Scotland who are seen by rheumatology! 🦴The more we know the better we can make the transition experience! #Rheumatology #Arthritis #JIA #Scotland Scotland Versus Arthritis SNAC