SToPPS (@stopps_study) 's Twitter Profile
SToPPS

@stopps_study

BDRF and IA funded study to explore communication practices surrounding stoma formation.

ID: 1235292289561481216

calendar_today04-03-2020 19:53:36

44 Tweet

312 Followers

1,1K Following

Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 (@sahara88uk) 's Twitter Profile Photo

I often talk about the positives of living with a #stoma, BUT, life is not all sunshine☀️ & rainbows🌈 & I think that needs to be talked about too🗣️ In this video, I share my recent experience of an intestinal blockage, and how NOT to manage it! youtu.be/520udU8QDac

Louise Hunt (@louisehelenhunt) 's Twitter Profile Photo

✨STORY TIME ✨ Let me take you back to being three months post panprotectomy surgery. It’s mid August and I’m called in to see my surgeon after a pelvic MRI scan not three days prior. My wound had an second infection 🤢… 📸 instagram.com/p/CK59H_YgLtf/ via tweet.photo

✨STORY TIME ✨ Let me take you back to being three months post panprotectomy surgery. It’s mid August and I’m called in to see my surgeon after a pelvic MRI scan not three days prior. My wound had an second infection 🤢…

📸 instagram.com/p/CK59H_YgLtf/ via tweet.photo
SToPPS (@stopps_study) 's Twitter Profile Photo

If you: ✅Have a stoma; ✅Need a stoma; or ✅Live with/care for someone with a stoma; We need you!! Share your experiences with us and help shape research into communication practices around stoma formation. Link to questionnaire: forms.gle/1iAvJP5RGJGX31…

SToPPS (@stopps_study) 's Twitter Profile Photo

Thank you, we've had a fantastic response to our questionnaire so far...! If you: ✅Have previously had a stoma (reversed); ✅Live with someone that has/had a stoma; or ✅Care for someone that has/had a stoma. We want to hear from you too. Link:forms.gle/HbziVR4H89HFEH…

SToPPS (@stopps_study) 's Twitter Profile Photo

Previously had a stoma but had a reversal... we still need to hear from you! Help us shape research into communication practices around stoma formation. Stopps study patient and public involvement questionaire still accepting responses: forms.gle/AE8f2sDu1A5t6N…

NWRC (@nwrcsurgery) 's Twitter Profile Photo

We're thrilled to invite you to join the NWRC New Projects Webinar: Thurs 25th Feb 7pm. Hoping to soon hear a timeline to the end of lockdown, leading to an easier research climate... looking forward to hearing about new projects. Webinar link: zoom.us/j/91405214565

We're thrilled to invite you to join the <a href="/NWRCsurgery/">NWRC</a> New Projects Webinar: Thurs 25th Feb 7pm. 

Hoping to soon hear a timeline to the end of lockdown, leading to an easier research climate... looking forward to hearing about new projects.

Webinar link:
zoom.us/j/91405214565
SToPPS (@stopps_study) 's Twitter Profile Photo

SToPPS questionnaire closing Sunday 28th February. If you: ✅Have a stoma; ✅Have previously had a stoma; ✅Live with or care for someone that has/had a stoma; ✅Have recently been told of the need for a stoma; Last chance to share experiences. Link: forms.gle/iYbWDqvhCVhrPA…

SToPPS (@stopps_study) 's Twitter Profile Photo

Thank you to everyone around the globe who took part in our online patient and public questionnaire. We had a fantastic response!! We will get analysing!! Focus groups to follow. Thank you!

SToPPS (@stopps_study) 's Twitter Profile Photo

Once again, thank you to all who responded to our questionnaire. You have given us a lot to think about. We have almost finished going through your responses. Keep your eyes peeled, more information on the study to follow. SueB Sarah Squire @VBlush Dale Vimalachandran

Phil Tozer (@philtozer1) 's Twitter Profile Photo

Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input 👇🏼

Are you a patient with a non-Crohn’s anal fistula? We are developing a tool to measure quality of life and need your input 👇🏼
Jessicas stoma journey BCyA (@journeystoma) 's Twitter Profile Photo

Let's breakdown the stoma stigma , jessica is loud and proud about her stoma and she has been a advocate for so many other people living or needing a stoma 🍎💗 #WorldOstomyDay #kidswithstomas #viral #stomaawareness

Sarah Squire (@sarahsquire73) 's Twitter Profile Photo

I’d love to see a time when poo is not a taboo & stomas are widely known about. They can save lives & improve QoL. I can’t say I love mine but it is what it is & I’m damned if it will rule my life. Life is good! #AnytimeAnywhere #StomaAware #MakingLifeEasier #WorldOstomyDay

I’d love to see a time when poo is not a taboo &amp; stomas are widely known about. They can save lives &amp; improve QoL. I can’t say I love mine but it is what it is &amp; I’m damned if it will rule my life. Life is good! #AnytimeAnywhere #StomaAware #MakingLifeEasier #WorldOstomyDay
Giles Lawrence (@stampyntfc) 's Twitter Profile Photo

Taken at work 5 minutes ago in the disabled toilet.. Whilst somebody was hammering on the door telling me to "hurry up" I've also been swore at before because "it's for disabled people only" #StomaAware #StomaAwareDay

Taken at work 5 minutes ago in the disabled toilet..
Whilst somebody was hammering on the door telling me to "hurry up"
I've also been swore at before because "it's for disabled people only" 
#StomaAware
#StomaAwareDay
Glen (@ostomyadventure) 's Twitter Profile Photo

Big shout out to all ostomates around the world on #WorldOstomyDay2021 👏🏻 Bottom left I’m smiling & inside the excitement is rising as we are just about to enter the building for search and rescue training 👨‍🚒😁 #worldostomyday #AnytimeAnywhere #stomaaware #staystrong

Big shout out to all ostomates around the world on #WorldOstomyDay2021 👏🏻
Bottom left I’m smiling &amp; inside the excitement is rising as we are just about to enter the building for search and rescue training 👨‍🚒😁
#worldostomyday #AnytimeAnywhere #stomaaware #staystrong
Vikki aka doubletroublestomagirl68 (@vikkipalmer68) 's Twitter Profile Photo

#StomaAwareDay #StomaAware I’ve had so many HCP that have said they would sooner die than be like me to my face comments behind my back they forget I can’t hear them I can challenge this but imagine a new scared stoma patient hearing this

#StomaAwareDay #StomaAware I’ve had so many HCP that have said they would sooner die than be like me to my face comments behind my back they forget I can’t hear them I can challenge this but imagine a new scared stoma patient hearing this
Bowel Research UK (@bowelresearch) 's Twitter Profile Photo

"There’s definitely a stigma around stomas. People think, 'I don’t want to have a stoma, I’d rather die'. But actually, it’s a different quality of life, but it’s still a quality of life." Watch Susan's story for our #auguts campaign. bowelresearchuk.org/auguts-stories… #HaveYouGotTheGuts