
Sandra SmithMND
@sandrasmithmnd
Husband died MND/FTD. Public Adviser MND Dementia Palliative End of Life careHealth Equity ARCNWC was Sandra True Spontaneous coronary heart dissection survivor
ID: 460423672
10-01-2012 19:01:26
34,34K Tweet
3,3K Followers
4,4K Following




I'm fundraising for Motor Neurone Disease Association. Check out my JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/colin-har…


#Myeloma has one of the longest delays to diagnosis. During this years #Myelomaawarenessweek Myeloma UK are raising awareness of the symptoms of #myeloma. Help us improve time to diagnosis by downloading our symptom tracker and take a copy to your GP. It’s as simple as that.



How do you view research and capacity building in UK ambulance services? All staff North West Ambulance Service are invited to take part in an online, anonymous and confidential interview with Julia Wolfe, whether you have experience in research or not! 👉 bit.ly/45wjwfZ







Yesterday, we caught up with lan Byrne MP , chair of the APPG on Motor Neurone Disease, who expressed his frustrations at the lack of access to Tofersen for those living with SOD1 MND. You can help. Sign our petition urging the government to act now and ensure everyone eligible for Tofersen has

🏉 Remembering PAUL DARBYSHIRE, the former Warrington Wolves player/coach and head of strength and conditioning at @MunsterRugby, who lost his life to motor neuron disease #MND fourteen years ago today, at the age of 41.... 😢 #MND #MoreNeedsDoing! #Doddie5LionsChallenge


Tofersen is a transformative treatment for people with SOD1 MND - 2% of the #MND population. It’s currently being provided to the NHS free of charge, yet some still can't access it due to capacity issues. Our Chair, lan Byrne MP has spoken about the frustration this is causing.

We would like to congratulate Chris Maddocks and Dr Joy Watson, who are both living with young onset #dementia, for being awarded British Empire Medals in the King's Birthday Honours List 2025. 👏 We'd also like to congratulate Beth Britton MBE 💚 who was awarded an MBE for services to


Admiral Nurse Consultant Admiral Nurse Children & Young People spoke to @Yahoolifeuk about some of the signs and symptoms of young onset #dementia that Debbie Webster has been experiencing in Coronation Street.👇uk.style.yahoo.com/coronation-str…
