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RESEARCH PARTICIPATION OPPORTUNITY! Have you got #LongCOVID and do you experience #fatigue? Do you live in the UK? Would you like to take part in a research project? For more information click here: tlc-feasibility.atom5.co.uk Long Covid Support Long Covid SOS @longcovidsos.bsky.social Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Our inaugural BMJ Research programme. In image form here or on bmjresearchforum.bmj.com DMs are open or email me if you are interested in coming and I might be able to help with a discount code✔️. @PaulWicks Dr Sarah Hughes Theodora Bloom Professor Chris Whitty and many more

Wondering why my clock face is purple? As today is World Pancreatic Cancer Day I'm shining a light on this disease which often gets little attention and funding 💜pancreaticcancer.org.uk/get-involved/m…

I was honoured to present at the Global PROMS Initiative on equity, diversity and inclusion and PRO data collection. It was a great opportunity to meet academics, funders, industry partners and patients passionate about multiple sclerosis and PRO research. CPROR

Brilliant line up featuring #Covid research HEAL-COVID Charlotte Summers and @TLCstudy Dr Sarah Hughes alongside Professor Chris Whitty and our UniBirmingham News VC Adam Tickell National Institute for Health and Care Research UK Research and Innovation

📢Calling all children with LongCOVID, their family/carers & clinicians/researchers with expertise in LongCOVID An important study on how to measure LongCOVID needs your help! Info here:pc-cos.org/children Long Covid Kids / [email protected] Long Covid Support Frances Simpson Long Covid SOS @longcovidsos.bsky.social Patient-Led Research Collaborative

Validated Symptom Burden Questionnaire™ to help develop or test new treatments for Long COVID is now available for translation into hundreds of languages, and inclusion on digital platforms bit.ly/3VZX9HH UniBirmingham News @Mapi_Trust CPROR Mel Calvert Dr Sarah Hughes

Our Symptom Burden Questionnaire can now be translated in hundreds of languages!! #longcovid Dr Sarah Hughes Mel Calvert Shamil Haroon @Mapi_Trust @UoB_IAHR birmingham.ac.uk/news/2022/univ… via Uni of Birmingham

🗣️ Ken Gabriel COO Wellcome Leap takes to the stage to open our first keynote ‘Changing the business of breakthroughs’ and highlights the part strong partnerships, humility & respect have in removing obstacles and building collaborative networks to enable research impact #BMJRF

new banksy - needs no words

Time for a new approach to outpatient management in the #NHS? Is digital #symptom monitoring a solution? Check out latest paper👇Lee Aiyegbusi Dr Sarah Hughes Devin Peipert Liv Schougaard Roger Wilson CBE NHS England @NIHRBhamBRC CPROR Steve Barclay

Are you interested in the potential use of #PROs in #AI? Have a look at our most recent publications discussing the use of PROs in trials and how PROs can be embedded in AI systems. Links below 👇 CPROR Mel Calvert Xiao Liu Dr Sarah Hughes Alastair Denniston

#Digitally enabled decentralised research: opportunities to improve the efficiency of clinical trials and observatio… pubmed.ncbi.nlm.nih.gov/36810190/ Lee Aiyegbusi Dr Elin Haf Davies Puja MHRAgovuk Dr Sarah Hughes Roger Wilson CBE Aparito Health Anuradhaa Subramanian Nirantharakumar

For anyone interested in #LongCovid please check out this excellent review by Hannah Davis Julia MV Lisa McCorkell Eric Topol 👇They call for robust clinical trials as a priority #PROs are important endpoints to consider in such trials birmingham.ac.uk/research/appli…

Today is #InternationalLongCovidAwarenessDay. We are thankful to our patient partners in @TLCstudy for sharing their experience of living with #longcovid & to participants for testing feasibility of using #pacing interventions electronically ⬇ ⬇ ⬇ Mel Calvert Shamil Haroon

***New publication*** Patient & Public Involvement in 9 #longcovid studies, inc. our @TLCstudy Nature Medicine publication! #patientandpublicinvolvement nature.com/articles/s4159… Mel Calvert Shamil Haroon Dr Christel McMullan 🎾 🇨🇵 🇮🇪 🇪🇺 Dr Sarah Hughes Lee Aiyegbusi CPROR ⬇️⬇️⬇️⬇️

Pleased to say that our team presented their #PPIE work in front of a @unibirm_MDS panel... We were runner-up and received huge praise for our work! All done thanks to our PPIE group!! #LongCovid #patientpublicinvolvement Long Covid Support Long Covid SOS @longcovidsos.bsky.social @UoB_IAHR

Pleased to have the opportunity to do this important project to deliver a new tool to help improve the treatment and care of young people living with #LongCovid. Long Covid Support Long Covid SOS @longcovidsos.bsky.social Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Long Covid Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 Long Covid Kids / [email protected]

Our team is working with young people living with #longcovid to develop a clinical tool to support care and research. Can you help? Email us: [email protected] Mel Calvert Long Covid SOS @longcovidsos.bsky.social @LongCOVIDkids @UoB_IAHR Shamil Haroon Long COVID Physio Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Long Covid Support