SarcoidosisUK (@sarcoidosisuk) 's Twitter Profile
SarcoidosisUK

@sarcoidosisuk

SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure.

ID: 2966210861

linkhttp://www.sarcoidosisuk.org calendar_today07-01-2015 16:01:25

1,1K Tweet

2,2K Followers

271 Following

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Today is World Health Day and we want to shout about sarcoidosis 📣 Sarcoidosis is a rare disease where lumps called granulomas develop at different sites within the body, and can affect any organ. Click here to find out more: sarcoidosisuk.org/information-hu…

Today is World Health Day and we want to shout about sarcoidosis 📣

Sarcoidosis is a rare disease where lumps called granulomas develop at different sites within the body, and can affect any organ. Click here to find out more: sarcoidosisuk.org/information-hu…
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Join Kemi this World Art Day for a cosy night in of sharing and support on the 15th April! Art and creativity can be an amazing outlet for many of us, so whatever your creative expression is, we’d love to see it! Find out more: store.sarcoidosisuk.org/product/open-m…

Join Kemi this World Art Day for a cosy night in of sharing and support on the 15th April! Art and creativity can be an amazing outlet for many of us, so whatever your creative expression is, we’d love to see it!

Find out more: store.sarcoidosisuk.org/product/open-m…
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We would like to say a huge thank you to Live Like Ralph for their generous grant of £2,500 towards our awareness raising aims! 💙 Live Like Ralph was set up in 2021, after Ralph sadly passed away as a result of his sarcoidosis. Find out more here: livelikeralph.com

We would like to say a huge thank you to Live Like Ralph for their generous grant of £2,500 towards our awareness raising aims! 💙 

Live Like Ralph was set up in 2021, after Ralph sadly passed away as a result of his sarcoidosis. Find out more here: livelikeralph.com
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We're collecting your questions for our 2025 Sarcoidosis Patient Day! This is an excellent opportunity to have your voice heard 📣 You can submit your question(s) for a specific session, or submit a more general question: forms.gle/MLmaSHnRrNAqLZ…

We're collecting your questions for our 2025 Sarcoidosis Patient Day! This is an excellent opportunity to have your voice heard 📣

You can submit your question(s) for a specific session, or submit a more general question: forms.gle/MLmaSHnRrNAqLZ…
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Good luck Joe for the Paris Marathon this weekend! 🏃‍♂️‍➡️ Click the link below to hear about Joe's sarcoidosis story and, if you can, make a donation in support of his run. Every donation we receive in April will go directly into our research fund: justgiving.com/page/averagejo…

Good luck Joe for the Paris Marathon this weekend! 🏃‍♂️‍➡️

Click the link below to hear about Joe's sarcoidosis story and, if you can, make a donation in support of his run. Every donation we receive in April will go directly into our research fund: justgiving.com/page/averagejo…
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Join us for the next Sheffield Support Group meeting taking place on Thursday 24th April at 1:30pm! 📣 This is an in-person event and is open to anyone in Sheffield and the surrounding areas. If you would like to join, please contact [email protected] for more details!

Join us for the next Sheffield Support Group meeting taking place on Thursday 24th April at 1:30pm! 📣

This is an in-person event and is open to anyone in Sheffield and the surrounding areas.

If you would like to join, please contact info@sarcoidosisuk.org for more details!
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We have exciting sarcoidosis research news! 📣🔬 We have launched the SarcoidosisUK Research Innovation Award 2025, offering funding for innovative and novel research proposals that seek to address any of our research priorities. Find out more here: sarcoidosisuk.org/research/sarco…

We have exciting sarcoidosis research news! 📣🔬 

We have launched the SarcoidosisUK Research Innovation Award 2025, offering funding for innovative and novel research proposals that seek to address any of our research priorities. Find out more here: sarcoidosisuk.org/research/sarco…
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Today is World Art Day + we are re-sharing this beautiful poem written by Daniela's Daughter, Sara during our 2023 Sarcoidosis Awareness Month💙 "Next time you blow on a dandelion and make a wish: hope that everyone could be as strong and brave as the Sarcoidosis warriors"

Today is World Art Day + we are re-sharing this beautiful poem written by Daniela's Daughter, Sara during our 2023 Sarcoidosis Awareness Month💙

"Next time you blow on a dandelion and make a wish: hope that everyone could be as strong and brave as the Sarcoidosis warriors"
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Exciting news! SarcoidosisUK is now on Bluesky — the decentralized social platform where conversations thrive. We’d love for you to join us there! Follow us at [@sarcoidosisuk.bsky.social] or click the link here: bsky.app/profile/sarcoi… See you there! ☁️💙

Exciting news! SarcoidosisUK is now on Bluesky — the decentralized social platform where conversations thrive.

We’d love for you to join us there! Follow us at [@sarcoidosisuk.bsky.social] or click the link here: bsky.app/profile/sarcoi…

See you there! ☁️💙
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We need your help! Every pound we raise this month will go towards our research fund, investing in a better sarcoidosis future 🔬 Together, we can deepen our understanding of sarcoidosis and work towards better outcomes for patients. Please donate today: sarcoidosisuk.org/donate/donate-…

We need your help! Every pound we raise this month will go towards our research fund, investing in a better sarcoidosis future 🔬 

Together, we can deepen our understanding of sarcoidosis and work towards better outcomes for patients. Please donate today: sarcoidosisuk.org/donate/donate-…
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Download our 'Get Ready for your Consultation' Guide ahead of your next appointment. This simple guide helps you to think about the topics you would like to discuss with your doctor and keep an accurate record of your medical history. Find out more: sarcoidosisuk.org/support/consul…

Download our 'Get Ready for your Consultation' Guide ahead of your next appointment.

This simple guide helps you to think about the topics you would like to discuss with your doctor and keep an accurate record of your medical history. Find out more: sarcoidosisuk.org/support/consul…
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Join us for the next North West Support Group meeting taking place on Monday 28th April at 6:45pm! This is a virtual event, taking place on Zoom, and is open to anyone in the North West. If you would like to join, please contact [email protected] for more details!

Join us for the next North West Support Group meeting taking place on Monday 28th April at 6:45pm!

This is a virtual event, taking place on Zoom, and is open to anyone in the North West.

If you would like to join, please contact info@sarcoidosisuk.org for more details!
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Have you registered for our Sarcoidosis Patient Day? Next Tuesday 29th April, we'll be hosting our virtual Patient Day, bringing you 5 different sessions from 9.15am-13.30pm! Click here to register: store.sarcoidosisuk.org/product/sarcoi… Submit your questions here: forms.gle/1h9kQQNfwFpv6t…

Have you registered for our Sarcoidosis Patient Day?

Next Tuesday 29th April, we'll be hosting our virtual Patient Day, bringing you 5 different sessions from 9.15am-13.30pm! 

Click here to register: store.sarcoidosisuk.org/product/sarcoi… 

Submit your questions here: forms.gle/1h9kQQNfwFpv6t…
SarcoidosisUK (@sarcoidosisuk) 's Twitter Profile Photo

We are wishing Sue the best of luck as she takes on the London Marathon this weekend! 🎖️ Sue has shared her sarcoidosis journey with us, click here to read more: sarcoidosisuk.org/sue-is-taking-… Please consider making a donation to show your support: 2025tcslondonmarathon.enthuse.com/pf/sue-paz

We are wishing Sue the best of luck as she takes on the London Marathon this weekend! 🎖️ Sue has shared her sarcoidosis journey with us, click here to read more: sarcoidosisuk.org/sue-is-taking-… 

Please consider making a donation to show your support: 2025tcslondonmarathon.enthuse.com/pf/sue-paz
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Exciting news - we are starting a new SarcoidosisUK Support Group in Exeter! Join us for the first Exeter Support Group meeting taking place on Saturday 14th June at 10:30am. This is an in-person event, please contact [email protected] for more details!

Exciting news - we are starting a new SarcoidosisUK Support Group in Exeter! 

Join us for the first Exeter Support Group meeting taking place on Saturday 14th June at 10:30am. 

This is an in-person event, please contact info@sarcoidosisuk.org for more details!
SarcoidosisUK (@sarcoidosisuk) 's Twitter Profile Photo

We are sending Craig lots of luck luck as he takes on the London Marathon this weekend! 🏃‍♂️‍➡️ Craig has shared his journey with sarcoidosis so far: sarcoidosisuk.org/craig-london-m… Please consider making a donation to show your support: 2025tcslondonmarathon.enthuse.com/pf/craig-humph…

We are sending Craig lots of luck luck as he takes on the London Marathon this weekend! 🏃‍♂️‍➡️ Craig has shared his journey with sarcoidosis so far: sarcoidosisuk.org/craig-london-m… 

Please consider making a donation to show your support: 2025tcslondonmarathon.enthuse.com/pf/craig-humph…
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Nicole and James are taking on the Glasgow Kiltwalk this weekend after Nicole was diagnosed with neurosarcoidosis and sarcoidosis in 2015 which affected her brain, lungs and lymph nodes. Thank you! 💙 Find out more here: justgiving.com/team/justkeepw…

Nicole and James are taking on the Glasgow Kiltwalk this weekend after Nicole was diagnosed with neurosarcoidosis and sarcoidosis in 2015 which affected her brain, lungs and lymph nodes. Thank you! 💙

Find out more here: justgiving.com/team/justkeepw…
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Many sarcoidosis patients do not feel supported by the UK public health and social care provision. Our goal is to ensure that anyone affected by sarcoidosis is able to speak to someone who understands you. Find out more about out support services: sarcoidosisuk.org/support/your-s…

Many sarcoidosis patients do not feel supported by the UK public health and social care provision. Our goal is to ensure that anyone affected by sarcoidosis is able to speak to someone who understands you.

Find out more about out support services: sarcoidosisuk.org/support/your-s…
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Last chance to register for our free, virtual Sarcoidosis Patient Day tomorrow! There will be a big focus on questions from all of you, so even if you can't attend the full day we would love to see you drop into a session or two! Register today: store.sarcoidosisuk.org/product/sarcoi…

Last chance to register for our free, virtual Sarcoidosis Patient Day tomorrow!

There will be a big focus on questions from all of you, so even if you can't attend the full day we would love to see you drop into a session or two! Register today: store.sarcoidosisuk.org/product/sarcoi…
SarcoidosisUK (@sarcoidosisuk) 's Twitter Profile Photo

🌟 Thank You 🌟 A huge THANK YOU to our amazing volunteers, donors, fundraisers & everyone who supported us this Sarcoidosis Awareness Month! 💙 Every like, share & donation helped spread the word and make a real impact. We couldn’t do it without you!

🌟 Thank You 🌟

A huge THANK YOU to our amazing volunteers, donors, fundraisers & everyone who supported us this Sarcoidosis Awareness Month! 💙

Every like, share & donation helped spread the word and make a real impact. We couldn’t do it without you!