Sarita Edwards (@saritaedwards) 's Twitter Profile
Sarita Edwards

@saritaedwards

Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth

ID: 318600298

linkhttp://linktr.ee/ewefoundation calendar_today16-06-2011 18:58:22

4,4K Tweet

1,1K Followers

800 Following

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The fear of being judged can silence people, making them hesitant to open up about their journey. But when you’re in a space where others truly understand, you gain strength in your story. Check out the full episode on our YouTube channel or wherever you stream your podcasts!

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Many patients choose to hide their diagnosis and for many different reasons. But one negative experience can change everything. Speaking up isn’t just about one voice; it’s about creating change for an entire community. Watch the full episode! buff.ly/b9WzCtE

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There can be differences in treatment urgency, attention, and overall approaches to care. Every patient deserves the same level of care, compassion, and urgency—no matter the diagnosis. Check out the full episode on YouTube or wherever you stream your podcasts!

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We want to extend a huge thank you to the Bledsoe Family Community Center, the Knight Riders (The Rebirth), and Buffalo Soldiers of Central Alabama for a fun Western weekend benefiting the E.WE Foundation! Thank you for choosing the E.WE Foundation to support! We're grateful!

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We want to extend a huge thank you to the Bledsoe Family Community Center, the Knight Riders (The Rebirth), and Buffalo Soldiers of Central Alabama for a fun Western weekend benefiting the E.WE Foundation! Thank you for choosing the E.WE Foundation to support! We're grateful!

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March is Trisomy Awareness Month, so we're highlighting some of our more popular conversations about Trisomy 18 and its impact on the family dynamic. Check out this BRP episode with genetic counselor and DNA Today Podcast host Kira Dineen. Listen here: youtu.be/sEkcoI7WRxU?si…

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Today is Trisomy 18 Awareness Day, a time to raise awareness about Trisomy 18, celebrate the strength of children living with this condition, and honor the beautiful lives of those who are no longer with us. Learn more about who we are and what we do at theewefoundation.org

Today is Trisomy 18 Awareness Day, a time to raise awareness about Trisomy 18, celebrate the strength of children living with this condition, and honor the beautiful lives of those who are no longer with us. Learn more about who we are and what we do at theewefoundation.org
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Today, on Trisomy 18 Awareness Day, we are excited to introduce our Care Planning Guide for Families Expecting a Baby with Trisomy 18! This guide is designed to bridge the gap between diagnosis delivery and care coordination. Download the free guide now theewefoundation.org/resources

Today, on Trisomy 18 Awareness Day, we are excited to introduce our Care Planning Guide for Families Expecting a Baby with Trisomy 18! This guide is designed to bridge the gap between diagnosis delivery and care coordination. Download the free guide now theewefoundation.org/resources
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Our Trisomy 18 Newborn Screening Research findings are now being shared through presentations & scientific poster: "Parental Awareness & the Impact of High Mortality Diagnoses on NBS Education." Special thanks to Harlie Williams and Michael Yun for their dedication to this work!

Our Trisomy 18 Newborn Screening Research findings are now being shared through presentations & scientific poster: "Parental Awareness & the Impact of High Mortality Diagnoses on NBS Education." Special thanks to Harlie Williams and Michael Yun for their dedication to this work!
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We are grateful to be one of nine organizations to receive the MVP Madison Visionary Partners Community Impact Grant! This grant will support our Coffee Chats Respite Programs for parents and caregivers of children with medically complex diagnoses. More details coming soon!

We are grateful to be one of nine organizations to receive the MVP Madison Visionary Partners Community Impact Grant!

This grant will support our Coffee Chats Respite Programs for parents and caregivers of children with medically complex diagnoses.

More details coming soon!
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April is National Minority Health Month! Did you know that racial and ethnic minorities face significant health disparities, including in rare disease care? Tune in to the Being Rare Podcast, April 24, 2:00pm CST- we’re sitting down with Jenifer Waldrop, Executive Director, RDDC.

April is National Minority Health Month! Did you know that racial and ethnic minorities face significant health disparities, including in rare disease care? Tune in to the Being Rare Podcast, April 24, 2:00pm CST- we’re sitting down with Jenifer Waldrop, Executive Director, RDDC.
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Tonight, we joined the UAH College of Nursing in celebrating 50 years of nursing excellence and education at their Golden Gala.The E.WE Foundation is proud to partner with UAH College of Nursing on fostering advancing patient care and advocacy.

Tonight, we joined the UAH College of Nursing in celebrating 50 years of nursing excellence and education at their Golden Gala.The E.WE Foundation is proud to partner with UAH College of Nursing on fostering advancing patient care and advocacy.
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Today’s One Minute Monday is about invisible illness—the kind of struggle that doesn’t always show up on the outside. If you’ve ever been told “But you don’t look sick,” this one’s for you. Tune in for a 60-second reminder that compassion matters—every day. #BeRare

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Tune in the next episode of the Being Rare Podcast with Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition, RDDC to discuss the Inequities in the Rare Disease Community Report. The episode airs Thursday, April 24, 2:00pm CST. theewefoundation.org/podcast

Tune in the next episode of the Being Rare Podcast with Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition, RDDC to discuss the Inequities in the Rare Disease Community Report. The episode airs Thursday, April 24, 2:00pm CST. 

theewefoundation.org/podcast
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Elijah is an official Make-A-Wish kid! We've been working with Make-A-Wish Alabama since 2024. On Saturday, we enjoyed Disney On Ice at the Von Braun Center! It was absolutely amazing! We hope you're ready because we're taking you with us on this whirlwind adventure! Stay tuned!

Elijah is an official Make-A-Wish kid! We've been working with <a href="/MakeAWishAL/">Make-A-Wish Alabama</a> since 2024. On Saturday, we enjoyed Disney On Ice at the Von Braun Center! It was absolutely amazing! We hope you're ready because we're taking you with us on this whirlwind adventure! Stay tuned!
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Elijah was selected for Make-A-Wish, and the joy in that moment was indescribable. Some calls bring stress. Some bring joy. Either way, let's breathe, hold on, and keep going. Because one moment of unexpected joy can carry us through a thousand moments of expected stress. #BeRare

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Tune in to the Being Rare Podcast today at 2:00pm CST. We're joined by Jenifer Waldrop, Executive Director of the RDDC to discuss the Inequities in the Rare Disease Community Report. Watch the premier on YouTube or listen wherever you stream your podcasts! theewefoundation.org/podcast

Tune in to the Being Rare Podcast today at 2:00pm CST. We're joined by Jenifer Waldrop, Executive Director of the RDDC to discuss the Inequities in the Rare Disease Community Report. Watch the premier on YouTube or listen wherever you stream your podcasts!
theewefoundation.org/podcast
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New Episode! Tune in NOW to the Being Rare Podcast as we discuss the groundbreaking health equity report with Jenifer Waldrop, Executive Director at RDDC™. Watch the live recording on YouTube youtu.be/M_grFJvCLfw, or listen wherever you stream your podcasts! RareDiseaseDiversityCoaltion

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Just show up. A few weeks ago, I had lunch with a friend who’s navigating a medically complex child and situation. They didn’t need advice. They just needed presence. The difference between someone breaking or breathing could be you! Presence is powerful. Be there! #BeRare

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I am honored to receive the Morgan's Heart of Gold 2025 Excellence in Caregiving Award! To my friend and colleague, Luisa Leal, thank you for nominating me! I appreciate you sharing our story and work! Learn more: morgans.org/hearts-of-gold… @morgansinclusion youtu.be/SVAvMzLgZBg?si…