We are very excited to announce our conference is going ahead again this year #SaveTheDate, registration opens next week. Stand by to hear our line of of guest speakers!

This is a win for MSD and all of the dedicated people around the world that make a difference 💙

Our call for research proposals for the HRCI-HRB Joint Funding Scheme is live on our website: savingdylan.com/research-2023-… Health Research Charities Ireland - HRCI HealthResearchBoard

A superb new paper published on Biochemical signatures of disease severity in Multiple Sulfatase Deficiency doi.org/10.1002/jimd.1… Very important work that will greatly help clinical trials. Thanks to the authors, all that helped & the patient families that gave samples 💙💙💙

A brilliant visual abstract of a new publication on biomarkers for Multiple Sulfatase Deficiency. Their reproducibility & our confidence that this informs us on the worst affected biomarkers to look at gives great confidence that they will help clinical trials #TreatCureMSD

Amazing results so far. We were delighted to see this WORLDSymposia in San Diego. Thanks to HealthResearchBoard Health Research Charities Ireland - HRCI for helping to support this superb research project

A very important iPSC neuron poster presented WORLDSymposia by Maggie Cassidy of CHOP Research. Thank you Margaret & the co-authors for this work including Rebecca Ahrens-Nicklas for being a wonderful mentor. This excellent work is really important for translational research on MSD.

Thank you Livia Finoti from Children's Hospital of Philadelphia for this important iPSC work on MSD. This will enable further MSD research. It was wonderul to see this important poster presented at WORLDSymposia in San Diego. Thank you Rebecca Ahrens-Nicklas #TreatCureMSD

We are extremely grateful to be working with Xinying Hong. Thank you to you, your co-authors, all those that supported this important work & the patient families that gave samples for research purposes #TreatCureMSD

Can we please ask you to nominate us '20100957- Multiple Sulfatase Deficiency' for £5k in the health section. One nomination per person. Today is the last day, thank you in advance movementforgood.com

Good news from a research project that we co-funded via the Health Research Charities Ireland - HRCI/HealthResearchBoard Joint Funding Scheme. This makes donations to MSD research go much further than you might imagine! More to come on this wonder piece of research prnewswire.com/news-releases/…

We are delighted to see some world class MSD research co-funded by HRB & MSD Action Foundation. Its an excellent collaboration between Baud Group & Lars Schlotawa of Universitätsmedizin Göttingen (UMG) & Prof. Hartmut Niemann of University of Bielefeld

We are so sad to be sharing this news 💔 Our sunshine has passed. rip.ie/death-notice/d…