Some days are just so hard i am sitting on a train opposite a couple in their sixties they are just talking nagging each other moaning and the wife is interfering in the game he playing on the phone oh God how much do I miss Seth 💔

1/3 Feedback from medical students after the presentation on Friday sharing Seth’s Story and Educational Resources “It was a moment for all of us to reflect on our experiences in medicine thus far and remember how essential empathy and compassion truly are.” #sethslegacy

2/3   “The atmosphere in the auditorium definitely shifted after your presentation. I personally will not forget the many lessons I learned on Friday and I am confident everyone who attended will carry something from the stories you shared.” #sethslegacy

3/3 what is even better they are planning action 1Tutorials on Goals of Care/End of Life/Breaking Bad News 2Volunteer “play” buddies for children and “companions” for adult patients who would welcome a medical student’s time 3 Palliative care attachments for all students

If you or someone you know is affected by cancer, our 39 personal Stories of Cancer and Hope may help. All royalties go to Maggie's Centres storiesofcancerandhope.co.uk/#nav_about

it was great to meet up with the commissioners from UK Commission on Bereavement this week to talk about the progress made on the recommendations lots of progress but still more to do #sethslegacy

Late last year I recorded a podcast as a member of the service user group at University of Staffordshire to share @sethsstory99 and my work across healthcare mentions of the fab Sara Turle 💙 Sophie's Legacy and Claire and Bradley listen here as part of #sethslegacy open.spotify.com/episode/6vy5Q9…

8 years ago Seth’s Story and Educational Resources was launched supported by Hospice UK Pancreatic Cancer UK St Giles Hospice Leeds Teaching Hospitals its still influencing end of life care psycho social support and raising awareness of pancreatic cancer thank you Claire Henry MBE Anita Hayes Sarah Bell #sethslegacy

Great to share Seth’s Story and Educational Resources today at north London palliative care conference along with Sophie's Legacy and Bradley and Claire’s story #sethslegacy

It was so wonderful yesterday to meet in person someone I met online in 2020 and have worked with since then Elizabeth from Grief Dialogues who I met synchronously through Seth’s Story and Educational Resources and also Darren from After Cloud great to meet for real face to face #sethslegacy

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data doi.org/10.1186/s12904… Congratulations to Maja!

Hugest thanks to Sue Bournemouth Uni and Lesley Goodburn for the opportunity to speak to students and share 2 of my stories this morning. A privilege to share this space with Shabiha and all the other voices heard through Lesley today. Emotional scaffolding conveying authenticity.

So great to give a lecture to 300 final year nursing students today at Bournemouth Uni at the invitation of Sue Baron sharing Seth’s Story and Educational Resources and how personal experience shapes my approach to digital storytelling #sethslegacy loving my spring colours too

If you want to watch Seth’s Story and Educational Resources yiu can find the link here on the Hospice UK website hospiceuk.org/innovation-hub… #sethslegacy

Seth’s Story and Educational Resources Hospice UK The lecture today also featured the WilfWardFamilyTrust story Who cares we do as well as Sophie's Legacy thank you both for freely sharing your experiences the students learned from the stories

Seth’s Story and Educational Resources Hospice UK WilfWardFamilyTrust Sophie's Legacy I was also joined in the lecture by Sara Turle 💙 sharing her experiences of patient partnership and cancer and also Shabiha Azam with Mohammed Azam a legacy for today thank you both for your generosity in sharing

Seth’s Story and Educational Resources Hospice UK WilfWardFamilyTrust Sophie's Legacy Sara Turle 💙 Shabiha Azam Finally was Claire and Bradley’s story of incurable pancreatic cancer and how hope changes over time esp when getting hospice care and unexpectedly surviving imminent death #sethslegacy

Play a role in shaping the national cancer plan. What are the most important priorities that the national cancer plan should address? gov.uk/government/cal… This call for evidence closes at 11:59pm on 29 April 2025.

Have you or a loved one experienced time in an Intensive Care Unit? Join our upcoming free webinar to learn more about the BACCN Patient and Carer Group and how you can get involved. Wed 18 June 2025 19:00 – 19:45 (via Zoom) To register please click us02web.zoom.us/webinar/regist…

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