Sickle Cell Society (@sicklecelluk) 's Twitter Profile
Sickle Cell Society

@sicklecelluk

The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.

ID: 249681396

linkhttps://www.sicklecellsociety.org/ calendar_today09-02-2011 15:19:46

15,15K Tweet

10,10K Followers

1,1K Following

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Volunteer with Us – Sickle Cell Family Retreat 2025! πŸ•οΈ We're looking for healthcare pros & non-clinical volunteers to support families through a weekend of learning, adventure & community πŸ’›Apply by 30 May πŸ‘‰ bit.ly/VOLUNTEERS2025 #SickleCell #VolunteerOpportunity

Volunteer with Us – Sickle Cell Family Retreat 2025! πŸ•οΈ We're looking for healthcare pros & non-clinical volunteers to support families through a weekend of learning, adventure & community πŸ’›Apply by 30 May πŸ‘‰ bit.ly/VOLUNTEERS2025 
#SickleCell #VolunteerOpportunity
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πŸ“£ Last chance to register! Join us Sat, May 31 for the Sickle Cell Feedback Session with London Ambulance Service & Sickle Cell Society UK. πŸ• 1–2:30PM πŸ“ Living Space, SE1 7BE πŸ§ƒ Refreshments provided! Share your views & help shape better care. Scan QR to sign up! #SickleCellAwareness

πŸ“£ Last chance to register!
Join us Sat, May 31 for the Sickle Cell Feedback Session with <a href="/Ldn_Ambulance/">London Ambulance Service</a> &amp; Sickle Cell Society UK. 
πŸ• 1–2:30PM
πŸ“ Living Space, SE1 7BE
πŸ§ƒ Refreshments provided!
Share your views &amp; help shape better care. Scan QR to sign up! #SickleCellAwareness
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🚨 We're hiring a Lead Mentor for our Sickle Cell Peer Mentoring Programme in NE London! Support 10–24 y/o with SCD, Lead sessions, run activities, manage mentors. Deadline: 5PM, 20 June 2025. Apply: [email protected]πŸ”— Link in bio Male mentors encouraged to apply!

🚨 We're hiring a Lead Mentor for our Sickle Cell Peer Mentoring Programme in NE London! Support 10–24 y/o with SCD, Lead sessions, run activities, manage mentors. 
Deadline: 5PM, 20 June 2025.  Apply: mentors@sicklecellsociety.orgπŸ”— Link in bio
Male mentors encouraged to apply!
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WORLD SICKLE CELL DAY 2025: TELL IT LOUD Our 2025 theme is here! πŸ—£οΈ We’re asking you to #TellItLoud for sickle cell: πŸ“± Post and share content πŸ§₯ Wear red ✍️ Write to your MP (details on our webpage) πŸ“’ Use the hashtags: #TellItLoud #LoudEnough buff.ly/OHmrqOS

WORLD SICKLE CELL DAY 2025: TELL IT LOUD
Our 2025 theme is here! 
πŸ—£οΈ We’re asking you to #TellItLoud for sickle cell:
πŸ“± Post and share content
πŸ§₯ Wear red
✍️ Write to your MP (details on our webpage)
πŸ“’ Use the hashtags: #TellItLoud #LoudEnough
buff.ly/OHmrqOS
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Throwback to #HackneyHalf 2025! πŸŽ‰ Huge congrats to everyone who finished! Biggest thanks to those who ran for the Sickle Cell Society – your support means everything πŸ’™ Shoutout to Holly Mann, Freya Edwards, Lydia Okoibhole, Olivia Abiwon, Cartier Fraser & Othniel Agyei.

Throwback to #HackneyHalf 2025! πŸŽ‰ Huge congrats to everyone who finished! Biggest thanks to those who ran for the Sickle Cell Society – your support means everything πŸ’™
Shoutout to Holly Mann, Freya Edwards, Lydia Okoibhole, Olivia Abiwon, Cartier Fraser &amp; Othniel Agyei.
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Live with Sickle Cell Disease? Aged 18+ & registered with a haematology team in England? Join the RISE Study! πŸ’¬ Help shape better self-management tools through online group sessions. πŸ”— buff.ly/lRBoomL πŸ“§ [email protected] #SickleCell #RISEStudy

Live with Sickle Cell Disease? Aged 18+ &amp; registered with a haematology team in England?

Join the RISE Study! πŸ’¬ Help shape better self-management tools through online group sessions.

πŸ”— buff.ly/lRBoomL
πŸ“§ rmclough@citystgeorges.ac.uk
#SickleCell #RISEStudy
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#WorldSickleCellDay on 19 June! #TalkItLoud to raise awareness for sickle cell, an inherited condition that causes chronic pain. Learn what we're doing in South London and see how you can make an impact with Sickle Cell Society ! #SickleCellAwareness #NHS #HealthEquity

#WorldSickleCellDay on 19 June! #TalkItLoud to raise awareness for sickle cell, an inherited condition that causes chronic pain. Learn what we're doing in South London and see how you can make an impact with <a href="/SickleCellUK/">Sickle Cell Society</a> ! #SickleCellAwareness #NHS #HealthEquity
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It is #nationalbloodweek ! Yaaayyy πŸ™ŒπŸ™Œ! Calling on 1 million giving types πŸ…°οΈπŸ…±οΈπŸ†ŽπŸ…ΎοΈπŸ©Έ to donate this year, #blooddonors & #firsttimedonor . Save a life by donating blood 🩸! #nationalblooddonorweek #nationalbloodweek #blooddonor ! Repost from @givebloodnhs @sicklecelluk

It is #nationalbloodweek ! Yaaayyy πŸ™ŒπŸ™Œ! Calling on 1 million giving types πŸ…°οΈπŸ…±οΈπŸ†ŽπŸ…ΎοΈπŸ©Έ to donate this year, #blooddonors &amp; #firsttimedonor . Save a life by donating blood 🩸! #nationalblooddonorweek #nationalbloodweek #blooddonor ! Repost from @givebloodnhs @sicklecelluk
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πŸ“’ In the lead-up to #WorldSickleCellDay, we’re calling for change. People with sickle cell deserve stronger workplace rights & better employer education. ✊🏾 Write to your MP today: buff.ly/3gq50iR #TellItLoud #YourVoiceMatters

πŸ“’ In the lead-up to #WorldSickleCellDay, we’re calling for change.

People with sickle cell deserve stronger workplace rights &amp; better employer education.

✊🏾 Write to your MP today: buff.ly/3gq50iR

#TellItLoud #YourVoiceMatters
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🩸 Join Whittington Health & NCL ICS for World Sickle Cell Day on Thurs 19 June! Meet the NCL Red Cell Team & raise awareness across local centres incl. Wood Green, UCLH, North Mid & more. πŸ“§ [email protected] #SickleCell #TogetherForChange

🩸 Join Whittington Health &amp; NCL ICS for World Sickle Cell Day on Thurs 19 June!
Meet the NCL Red Cell Team &amp; raise awareness across local centres incl. Wood Green, UCLH, North Mid &amp; more.

πŸ“§ ncl.redcellteam@nhs.net
#SickleCell #TogetherForChange
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πŸ’™ Happy Father’s Day to all the amazing sickle cell dads. Whether you live with it or care for someone who does, your strength, patience & love inspire us every day. Wishing you rest, recovery & recognition β€” From all at Sickle Cell Society 🩸

πŸ’™ Happy Father’s Day to all the amazing sickle cell dads.

Whether you live with it or care for someone who does, your strength, patience &amp; love inspire us every day.

Wishing you rest, recovery &amp; recognition

β€” From all at <a href="/SickleCellUK/">Sickle Cell Society</a> 🩸
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We’re proud to share that our CEO John James will be speaking at #PPW2025 hosted by Patients Association ! πŸ—£οΈβœ¨Join on Friday 4th July, 9–10am as he champions patient voices in healthcare campaigns.πŸ‘‰ Register now at: buff.ly/x3qJ3uv #SickleCell #PatientVoice

We’re proud to share that our CEO John James will be speaking at #PPW2025 hosted by <a href="/PatientsAssoc/">Patients Association</a> ! πŸ—£οΈβœ¨Join on Friday 4th July, 9–10am as he champions patient voices in healthcare campaigns.πŸ‘‰ Register now at: buff.ly/x3qJ3uv #SickleCell #PatientVoice
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🧠 Leading up to #WorldSickleCellDay, let’s get the mind working! πŸ” What’s the first word you see? Download our word search + 2 fun activity pages for all ages: πŸ‘‰ buff.ly/WDpczGm Tag us when you complete them! #WSCD2025 #TellItLoud

🧠 Leading up to #WorldSickleCellDay, let’s get the mind working!

πŸ” What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
πŸ‘‰ buff.ly/WDpczGm

Tag us when you complete them! #WSCD2025 #TellItLoud
Sickle Cell Society (@sicklecelluk) 's Twitter Profile Photo

🩸 SHOUT: Tell It Loud This #WorldSickleCellDay we’re amplifying voices too often ignored. The pain is real. The silence is loud. Let’s listen. Let’s care. Let’s act. #SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose

🩸 SHOUT: Tell It Loud
This #WorldSickleCellDay we’re amplifying voices too often ignored.
The pain is real. The silence is loud.
Let’s listen. Let’s care. Let’s act.

#SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose
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Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family β€” with 8 relatives affected. β€œTesting is so key β€” and blood donation even more so.” Thank you, Konnor, for helping raise awareness. #WorldSickleCellDay #SickleCellAwareness

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🩸 This #WorldSickleCellDay we’re highlighting the importance of screening. The NHS offers antenatal & newborn screening for sickle cell via a simple blood test. Early testing = informed choices & better care. Give Blood, Spread Love #SickleCellAwareness #KnowYourStatus

🩸 This #WorldSickleCellDay we’re highlighting the importance of screening.
The NHS offers antenatal &amp; newborn screening for sickle cell via a simple blood test. Early testing = informed choices &amp; better care. <a href="/givebloodlove/">Give Blood, Spread Love</a> #SickleCellAwareness #KnowYourStatus
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On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive Β£5,910.37 for the Sickle Cell Society. Massive thanks for your years of support β€” your impact is real! πŸ™ŒπŸΎπŸ©Έ#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou

On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive Β£5,910.37 for the Sickle Cell Society. Massive thanks for your years of support β€” your impact is real! πŸ™ŒπŸΎπŸ©Έ#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou
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On #WindrushDay, we honour the legacy of the Windrush Generation πŸ‡―πŸ‡²πŸ‡¬πŸ‡§ For many with sickle cell, the day holds deep meaning β€” a reminder of both heritage and the ongoing fight against stigma, inequality & poor care. 🩸 Let’s keep amplifying these voices. #SickleCell

On #WindrushDay, we honour the legacy of the Windrush Generation πŸ‡―πŸ‡²πŸ‡¬πŸ‡§

For many with sickle cell, the day holds deep meaning β€” a reminder of both heritage and the ongoing fight against stigma, inequality &amp; poor care.

🩸 Let’s keep amplifying these voices. #SickleCell
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World Sickle Cell Day may be over, but the work continues. Our North West & South Yorkshire mentoring teams are busting myths and sharing the facts πŸ’­ Myth or Truth? Let’s fact check! #SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters

World Sickle Cell Day may be over, but the work continues.

Our North West &amp; South Yorkshire mentoring teams are busting myths and sharing the facts πŸ’­

Myth or Truth? Let’s fact check!

#SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters
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πŸ—£οΈ Your voice matters in hospital care. Our NW & South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe & push for better treatment πŸ₯🩸 Let’s advocate for change where it’s needed most. #SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice

πŸ—£οΈ Your voice matters in hospital care.

Our NW &amp; South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe &amp; push for better treatment πŸ₯🩸

Let’s advocate for change where it’s needed most.

#SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice