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Head on over to my other social platforms for updates from #PARE2024!

Day 2 of EULAR #PARE2024

📢 Are you a person living with a #rheumatic disease? Share your thoughts on #cardiovascular #disease and prevention in this 15-min survey. s2survey.net/rmd_cardio/ 🇩🇪🇵🇹🇭🇺🇪🇸🇬🇧🇫🇷 EULAR Young PARE Maarten de Wit Rheumatoid Patient Elsa Mateus Dr Simon Stones Ana Vieira

🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research 🏃🏻‍♀️‍➡️ We’ve come a long way but still have a far to go 💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm

The second Workshop round feedback during the #EULAR2024 #PARE conference: Dr Simon Stones feedbacks the main synthesis of our 3 tables discussions on co-authoring publications #PRPs Great insights Reflections Action plans for the future 🎢 Discussions could have continued😊

♥Interested in #cardiovascular risk in #rheumatology? Experience in #inflammatory diseases? Help us by participating in an international survey on awareness of EULAR guidelines (10 min) 🔗bit.ly/4gjx01C 🔄RT and share with your colleagues

"Giving patients a voice at scientific congresses" - what are the opportunities for improving accessibility? Great discussion with Dr Simon Stones peter llewellyn Dawn Lobban To watch a recording of the full discussion go to: networkpharma.tv/2024/12/04/giv…

📢 A EULAR study group project! Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular prevention in this 15-min survey. s2survey.net/rmd_cardio/ Languages: 🇬🇧🇮🇹🇪🇸🇫🇷🇩🇪🇵🇹🇭🇺 🇩🇰🇳🇱 Thank you!

What's a new year without new ICMJE recommendations? Not too many changes, but always worth another read. icmje.org/news-and-edito…

🚀Join us for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar! 💻Wednesday, 05 February, 2025, 18:00 -18:45 CET Register here👉 pulse.ly/fa0zmvogio #EULAR #Rheumatology

🚀 We’re excited to launch the EMEUNET x PARE Podcast Series! 🎙️ Patient representatives will interview young experts on key rheumatology topics. Help us make it relevant by sharing our questionnaire with your patients. 🙏 #EMEUNET#PARE Milena Bond Krystel Aouad Dr Simon Stones

Partnering with patients: the evolution of #PatientAuthorship from exclusion to tokenism to #PatientLeadership. #ISMPPEurope #ISMPP #PatientEngagement #PatientVoice #PatientAdvocacy #PubPlan #MedComms #MedPubs Dr Simon Stones Mercy Shibemba Aspire Scientific

🚀 We’re excited to launch the EMEUNET x PARE Podcast Series! Patient representatives will interview young experts on key rheumatology topics. Help us make it relevant by sharing our questionnaire with your patients. 🙏 #EMEUNET #PARE Milena Bond Krystel Aouad Dr Simon Stones

📣 Join us today for this important EULAR session on how to integrate patients (PRPs) into your research projects! 👉🏻 Gain insights into the recently updated EULAR recommendations on PRP involvement. Maarten de Wit Muriel Elhai Dr Simon Stones Heidi Bertheussen

💡 How can you effectively integrate patient research partners into your research projects? 👉🏻Watch our recent EULAR research webinar that brought together experts to discuss the updated EULAR recos and their application 👏🏻Maarten de Wit Muriel Elhai Dr Simon Stones EULAR

Power in patient partnerships. Do you have it? Do you share it? Don’t underestimate the power of power. Our preprint is live. doi.org/10.31219/osf.i… Janelle Bowden Patrick O. Gee, Ph.D. JLC Alex Haagaard (they / them) @anitarena Annette McKinnon Codie Primeau (he/him; il) Dr. Andrea C. Tricco Ellen Wang Linda Li Hetty Mulhall

Look forward to chairing with you this exciting final of #RheumaVision! Our 6 finalists will present their topics to a prestigious jury: Prof. Denis Poddubnyy Jette Primdahl Caroline Ospelt Dr Simon Stones. Audience vote will be essential so join us! 🎉

📢Sign up now for #PxP25! September 9-12, depending where you are based in the world. Our conference is virtual and free to attend. #PPI #ConsumerInvolvement #ForPatientsByPatients

Dr Simon Stones delivering the keynote lecture “From Patients to Partners: Shaping the Future of Rheumatology Together” #patientvoices

In Munich 🇩🇪 today with the EULAR #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!