Sjögren Europe (@sjogreneurope) 's Twitter Profile
Sjögren Europe

@sjogreneurope

European Federation of Sjögren's Patient Associations: together to raise awareness. More visibility, attention & solutions for Sjögren's #SjögrenEurope

ID: 1118479633605898240

linkhttp://sjogreneurope.org calendar_today17-04-2019 11:41:39

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🌟 Living with #Sjögren’s means living with uncertainty. The chronic fatigue, the dryness… but also the unknown. 🤝 Together, we raise awareness, amplify #patient voices, and work towards better recognition and care for this often misunderstood disease. #SjögrenAwarenessMonth

🌟 Living with #Sjögren’s means living with uncertainty. The chronic fatigue, the dryness… but also the unknown.
 
🤝 Together, we raise awareness, amplify #patient voices, and work towards better recognition and care for this often misunderstood disease.

#SjögrenAwarenessMonth
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Sjögren Europe Webinar, D-1 📣 Don't forget to register for this very interesting webinar on physical activity in #Sjögren's disease 🌟 👉 lc.cx/4U0kO_ 💙 Join us on Tuesday, April 15 at 17.00 CET with Suzanne Boezerooij-Arends #Sjögrenawarenessmonth #Disease #RMDS

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🌟 Sjögren Awareness Month 🌍 Sjögren’s isn’t just dryness — it’s chronic fatigue, pain, cognitive fog… and too often, disbelief. We work to make the invisible visible. Let’s choose empathy. 💙 #Sjögren #SjögrenAwarenessMonth #InvisibleIllness #ChronicPain

🌟 Sjögren Awareness Month 🌍

Sjögren’s isn’t just dryness — it’s chronic fatigue, pain, cognitive fog… and too often, disbelief.

We work to make the invisible visible.

Let’s choose empathy. 💙

#Sjögren #SjögrenAwarenessMonth #InvisibleIllness #ChronicPain
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🌟 #SJÖGREN #AWARENESS #MONTH 🌍 Living with Sjögren’s #disease means facing a complex, invisible, and often misunderstood disease — it’s time to give it the visibility and recognition it truly deserves. Together we are stronger and let’s make your voice heard ! 📣

🌟 #SJÖGREN #AWARENESS #MONTH 🌍

Living with Sjögren’s #disease means facing a complex, invisible, and often misunderstood disease — it’s time to give it the visibility and recognition it truly deserves.

Together we are stronger and let’s make your voice heard ! 📣
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Because some pain can’t be seen. Because there are silent battles behind a smile. Because sometimes, the hardest part isn’t the pain itself… but having to prove it exists. 💙 To those fighting silently: your #pain is real. #Sjögrenawarenessmonth #Disease #Invisibleillness

Because some pain can’t be seen.
Because there are silent battles behind a smile.
Because sometimes, the hardest part isn’t the pain itself… but having to prove it exists.

💙 To those fighting silently: your #pain is real. 

#Sjögrenawarenessmonth #Disease #Invisibleillness
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Brain fog, slow thinking, forgetfulness, speech struggles — invisible yet daily challenges for those with Sjögren’s. 🌟 Kindness, patience, and understanding make a world of difference. 💙 #SjogrenEurope #BrainFog #InvisibleDisabilities #SjögrenAwarenessmonth

Brain fog, slow thinking, forgetfulness, speech struggles — invisible yet daily challenges for those with Sjögren’s. 🌟

Kindness, patience, and understanding make a world of difference. 💙

#SjogrenEurope #BrainFog #InvisibleDisabilities #SjögrenAwarenessmonth
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🌍 Sjögren’s Awareness Month ends — but our voice stays strong 💙 Thank you for sharing, supporting & raising awareness 🌟 You’ve shown one powerful truth: you are not alone. We keep going. Together. 💙 #SjögrenEurope #SjögrenAwareness #YouAreNotAlone #Sjögrendisease

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⏰ Were you unable to attend the last #webinar on #physical #activity in #Sjögren's #disease? Watch the replay below, along with the full presentation by Suzanne Boezerooij-Arends PhD! 🎥 👉 lc.cx/05xfq_ Don't hesitate to ask questions in the comments ⬇️

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Living with #Sjögrendisease ? 🌟 Our new guide offers simple daily tips to ease dryness, pain & fatigue. Small changes = big comfort. 💙 Check it out & share! #AutoimmuneDisease #ChronicIllness #SjögrenEurope #HealthTips #PatientSupport #Wellbeing

Living with #Sjögrendisease ? 🌟 

Our new guide offers simple daily tips to ease dryness, pain & fatigue. 

Small changes = big comfort. 💙 

Check it out & share! 

#AutoimmuneDisease #ChronicIllness #SjögrenEurope #HealthTips #PatientSupport #Wellbeing
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Meet Katy Antonopoulou, President of Sjögren Europe 💙 Though she doesn’t have Sjögren’s, she knows: 👉 Every patient is unique 👉 Living well is possible “Every patient deserves to be supported, understood & empowered.” #Sjögrendisease #ChronicIllness #PatientPower

Meet Katy Antonopoulou, President of Sjögren Europe 💙

Though she doesn’t have Sjögren’s, she knows:
👉 Every patient is unique
👉 Living well is possible 

“Every patient deserves to be supported, understood & empowered.”

#Sjögrendisease #ChronicIllness #PatientPower
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🎥 Replay available ! Watch the ERN ReCONNET webinar - “Unmet Needs in Childhood-Onset Sjögren’s Disease”: With Dr Edoardo Marrani and our board member Ana Vieira 🌟 ▶️ youtu.be/rX2KSTrWh2Y #Sjögrendisease #ChildhoodSjögren #ERNReCONNET

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Meet Ana, Vice President of #Sjögren Europe ⭐️. After more than 20 years of uncertainty, she was diagnosed with Sjögren’s at 49. Today, she shares her story of pain, resilience & hope to raise #awareness and support others. #AutoimmuneDisease

Meet Ana, Vice President of #Sjögren Europe ⭐️. 
After more than 20 years of uncertainty, she was diagnosed with Sjögren’s at 49. 

Today, she shares her story of pain, resilience & hope to raise #awareness and support others. #AutoimmuneDisease
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Welcome to Sjögren’s Australia! ✨🌏 Sjögren Europe proudly shares the launch of our Australian partner this Monday, June 2nd — a key step in global advocacy for Sjögren’s. Visit, follow & share their pages. Together we are stronger ! 💙 #SjögrenAustralia #SjögrenDisease

Welcome to Sjögren’s Australia! ✨🌏

Sjögren Europe proudly shares the launch of our Australian partner this Monday, June 2nd — a key step in global advocacy for Sjögren’s.

Visit, follow & share their pages.

Together we are stronger ! 💙

#SjögrenAustralia #SjögrenDisease
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📢 Sjögren Europe will be at EULAR in Barcelona 🇪🇸! 📍 Meet our board members at Glass Walkway / O11 📅 From June 11 to 14, 2025 Let’s connect and advance research on Sjögren’s disease 💙 🔗 More info: eular.org #SjogrenEurope #EULAR2025

📢 Sjögren Europe will be at <a href="/eular_org/">EULAR</a> in Barcelona 🇪🇸!

📍 Meet our board members at Glass Walkway / O11

📅 From June 11 to 14, 2025

Let’s connect and advance research on Sjögren’s disease 💙

🔗 More info: eular.org

#SjogrenEurope #EULAR2025
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Breaking news 📣 The scientific publication confirming the name change of Sjögren’s disease is out : lc.cx/h1vz5U At EULAR today, Coralie Bouillot and Katherine Hammitt present how patients were involved in the renaming process. #Sjögrendisease #Sjögrenfoundation

Breaking news 📣 

The scientific publication confirming the name change of Sjögren’s disease is out : lc.cx/h1vz5U

At <a href="/eular_org/">EULAR</a> today, <a href="/CoBouillot/">Coralie Bouillot</a> and Katherine Hammitt present how patients were involved in the renaming process. 

#Sjögrendisease #Sjögrenfoundation
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✨ Massive bravo to Prof. Nocturne for her brilliant presentation and thank you for the kind words towards patient community !

✨ Massive bravo to Prof. Nocturne for her brilliant presentation and thank you for the kind words towards patient community !
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🔍 Fatigue is a major burden. A recent study shows fatigue severely affects daily functioning and emotional health for many living with #Sjögren’s. Have you experienced this? Comment below or tag someone who understands ⬇️ #SjögrenFatigue #ResearchMatters #Disease #Unmetneeds

🔍 Fatigue is a major burden.

A recent study shows fatigue severely affects daily functioning and emotional health for many living with #Sjögren’s.

Have you experienced this? Comment below or tag someone who understands ⬇️

#SjögrenFatigue #ResearchMatters #Disease #Unmetneeds
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« Everything You Always Wanted to Know About Clinical Trials (But Were Afraid to Ask) » Open and honest discussion with clinicians involved in research, patients and representatives from pharma. 🔗 Register now: lc.cx/oXeZkg #WSD2025 #SjögrenDisease #Unmetneeds

« Everything You Always Wanted to Know About Clinical Trials (But Were Afraid to Ask) »

Open and honest discussion with clinicians involved in research, patients and representatives from pharma.

🔗 Register now: lc.cx/oXeZkg

#WSD2025 #SjögrenDisease #Unmetneeds
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🎥 “It’s not just dry eyes or mouth…” “It’s exhaustion, pain, and not being believed.” – A real patient voice. 📣 Share this to help others understand what life with Sjögren’s truly looks like. #LifeWithSjögren #PatientVoices #SjögrenDisease #Unmetneeds

🎥 “It’s not just dry eyes or mouth…”

“It’s exhaustion, pain, and not being believed.” – A real patient voice.

📣 Share this to help others understand what life with Sjögren’s truly looks like.

#LifeWithSjögren #PatientVoices #SjögrenDisease #Unmetneeds