Hey there #MyalgicEncephalomyelitis community. 💙 We have some really amazing advocates and educators in our community. Some are attached to orgs and some are independents (like me). Some work on projects and some use socials to boost key messages. It’s all important. 1/

Really grateful to 𝙰𝚗𝚑𝚎𝚍𝚘𝚗𝚒𝚊 𝙾𝚊𝚔𝚕𝚎𝚢 for bringing this matter to public attention and for all the work she did documenting the process. I share her concerns and have similar questions. When it comes to poverty the solution always seems to be handing public funds to everyone but us

When people need to navigate through so much bureaucracy for a small benefit, third-party companies will inevitably pop up to exploit the situation. Throw AI in and you have way more problems. Navigators should be aware. Great job bringing this to attention 𝙰𝚗𝚑𝚎𝚍𝚘𝚗𝚒𝚊 𝙾𝚊𝚔𝚕𝚎𝚢

My access to information request has not been processed even though its been more than 150 days. That means they haven't even assigned anyone to the task. This is not uncommon.

New MAiD report is out so here is my regular reminder that postal codes are not an accurate way to capture poverty in Canada, especially at an individual level and the Govt of Canada KNOWS this. Based on this methodology if I died they would count me as having moderate income.

And while we are here, let's talk about the utterly bs bogus methodology of only counting disabled death by MAiD if they self reported disability. The Govt of Canada does not accept "self-ID" for disability in life - ONLY in death.