🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji Narendra Modi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

#SMAawarenessMonth Day 16: Today's factsheet is on the nutrition and gastrointestinal concerns - the risk factors & common issues. Swallowing difficulty, constipation, acid reflux are some of the common problems faced by #SMAwarriors . #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 26: Today's #factsheet is about the drugs targeting muscle function improvement. There are many potential drugs on clinical trials currently. These drugs in combination with drugs acting on SMN gene may yield better treatment outcomes in all #SMA patients!

आदरणीय, श्री Tejashwi Yadav Nitish Kumar जी कृपया #SMA रोगियों की मदद करें जो लंबे समय से पीड़ित हैं , पहले भारत में कोई दवा स्वीकृत नहीं थी लेकिन अब एक दवा #RESDIPLAM स्वीकृत है इसलिए कृपया बच्चों की जान बचाएं। #आप हमारी आशा हैं Cure SMA Foundation of India 🇮🇳

सबसे मुश्किल घड़ी में खुद को भुलाकर साथ निभाना ही सच्ची दोस्ती है... भूकंप आते ही सभी बच्चे सुरक्षित स्थान की ओर भागे. सिर्फ एक बच्चा ने घायल मित्र की मदद की. घटना CCTV में रिकॉर्ड हो गयी.

SHOCKED AND DISGUSTED WITH ALBASTAR AIRLINES - told me I should wear a nappy on board as I’m disabled and they don’t have an aisle chair. This is what I had to resort to. Please share - This isn’t acceptable!!! #disabled #wheelchair #AlbastarAirlines

Please sign my petition for aisle chairs to be made mandatory on all U.K. flights. Let’s start here and then tackle the rest. Your support is really appreciated and I can’t thank you all enough ❤️ chng.it/bQ7f6ytDYD

#NovartisSupportCureSMAIndia Heartfelt gratitude 2 Amitabh Dube 😙𝓔𝓭𝔀𝓪𝓻𝓭🤟 vaishali Aditi Basu Novartis India 4 meeting 2day with Cure SMA Foundation of India 🇮🇳 Alpana Sharma 2 understand patient's journey in #BattleAgainstSMA. Looking frd 2 working 2gether 4 Indian SMA community 🙏

Many Congratulations AIIMS Jodhpur Rare Diseases Dr Kuldeep Singh Dr.Siyaram Didel AIIMS Jodhpur for being approved as the CoE in Rajasthan 👏👏👏. This was much awaited n long due. We look forward 2 working with u 4 d betterment of #SpinalMuscularAtrophy #RareDisease community.

Thank you INOX Movies for reaching out and looking forward to accessible theatre in future South City INOX kolkata

Thanks News24 Sandeep Chaudhary V Cure SMA Foundation of India 🇮🇳 lost more than30 life in last 6 month while waitin 4 d Govt support, lifesaving medicine #Risdiplam #zolgensma can save lives. we helpless parent hav to watch our child dyin slow death in front of our eye #BattleAgainstSMA

Patient & parent Cure SMA Foundation of India 🇮🇳 r livin d worst nightmare We hv been requestin 4 Govt intervention but r loosin precious live despite an approved therapy being available but not accessible. Sanjay Singh AAP 🙏🏻 4 agreein to take our plea to Narendra Modi PMO India #BattleAgainstSMA

Thank you News24 🇿🇦 for being the voice for our cause #BattleAgainstSMA 🙏 Dear PMO India Nirmala Sitharaman National Health Authority (NHA) Ministry of Health requesting you to wave off GST from #Evrysdi, DCGI approved drug for patients of all ages. #Zolgensma #Evrysdi can save lives! x.com/news24tvchanne…

It's really sad to hear about the Odisha train accident, Doing a charity stream at 9 pm today. Please come & support with whatever amount is possible from your side doesn't matter small or big every contribution counts. Livestream link: appopener.com/yt/pznznxxtu

#SMAawarenessMonth Day 29: #Zolgensma offers hope to those with #SMA, but it's crucial to remember: even if treated, individuals can still carry the SMA gene and pass it to their children. Genetic counseling to ensure screening is essential. Knowledge empowers! 💙 #SMA

#SMAawarenessMonth Day 30: 🔍 Curious about Risdiplam? We've gathered and answered some frequently asked questions about this drug to help you understand it better. Stay informed and empowered! 💡 #RisdiplamExplained #MedicalFAQs #BattleAgainstSMA #SMAawareness

#SMAjourney with #Evrysdi #Risdiplam : 🌟 Amazing progress for Visrutha, a 5.5-year-old from Tamil Nadu, thanks to Risdiplam! She's regained her crawling ability and is on a positive journey of improvement. Let's support and encourage this brave young princess. 🙌 #SMAawareness

#SMAawarenessMonth Day 31: Today's factsheet delves into the promising future of #SMA treatment with approved drugs and a robust pipeline of potential therapies. Discover the evolving therapeutic strategies and the potential of combination therapies. Let's envision a brighter

Safer Internet Day - Stay Smart, Stay Safe! Follow these tips to protect yourself online. G Kishan Reddy Satish Chandra Dubey Ministry of Coal Coal India Limited #teamsecl #coalindia #saferinternetday